Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

"I had just been diagnosed with Kennedy's Disease and had no idea what it was or what to expect. The KDA maintains an excellent website that explains the disease. I found details on symptoms, the cause, and exercises I could do to maintain my strength."


The KDA's mission is to inform, support, educate, fund research, and find a cure for Kennedy's Disease 


The KDA Family

First and foremost, the KDA is a Family

We came together because we had a common bond

Every day we live with Kennedy's Disease

We stay together because we are now friends with a common goal

We all seek a treatment or cure


 Our family continues to grow


The KDA family has grown over the last seventeen years.  As of February, 2017, 1,429 people in 51 countries have registered with the KDA. Of those registered: 

  • 613 men with the defective gene

  • 181 women that are carriers

  • 331 family members and friends of someone living with Kennedy's Disease

  • 186 researchers and doctors