Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

"The web site acted as a central organizing influence for the sharing of information and brotherhood. Without the KDA, I was alone, as this disease is very rare and even my neurologist was less than fully knowledgeable."

KDA Information Guides

Below are four information guides that you might find helpful


The "Smart Exercise Guide - Part II"

KDA-exerciseThe link below is a PDF guide that contains 35 exercises recommended by a certified Physical Therapist. This guide has specific exercises for those who are wheelchair bound and for those who are experiencing some problems walking with a cane or walker. Many of the exercises have different difficulty levels to ensure they benefit more people. Once a person gains more strength and confidence, he can move to a more difficult level.  The author has personally performed all of these exercises and found them to be very helpful in maintaining and improving his strength and balance as well as providing him with improved self-confidence.

KD Smart Exercise Guide Part II (2009)

 

The "Smart Exercise Guide - Part I"

The link below is a PDF guide that contains several different types of exercises that have been approved by a neurologist. Many of the exercises have different difficulty levels to ensure they benefit more people. Once a person gains more strength and confidence, he can move to a more difficult level.  The author has personally performed all of these exercises and found them to be very helpful in maintaining and improving his strength and balance as well as providing him with improved self-confidence.

Smart Exercise Guide - Part I (2007)

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The Social Security - Disability Application Process

social-securityThe application process for applying for Social Security - Disability is often daunting.  Proper planning and preparation can help a family move through this process more easily.  The following guide contains information, insights and recommendations for preparing for and submitting the Social Security - Disability application.  Click here to go to thr Social Security Disability website.

 

 SS-D Guide:  (Microsoft Word Format 272kb) -    -    -    (PDF Format 638kb)

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Preparing for early Retirement

financial_planningFinancial planning is important at any age, but it becomes critically important when you are diagnosed with Kennedy’s Disease because you might have to retire earlier than expected. In the guide, the author will introduce you to the process that, if completed, will help you achieve your financial goals and hopefully allow you to retire early, if the need arises.

 

Financial Planning Guide (PDF)

 

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ALS Manuals

ALS

Although not as agressive as ALS, SBMA has many similarities.  The ALS Association has compiled six information manuals that you may find helpful.  Here are a few that may be more closely related to Kennedy's Disease:

 
 
 
 
 
  
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