Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

"The web site acted as a central organizing influence for the sharing of information and brotherhood. Without the KDA, I was alone, as this disease is very rare and even my neurologist was less than fully knowledgeable."

 

Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50.

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The Kennedy’s Disease Association has worked to educate others about this lesser-known disease and to support clinical research efforts.

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It takes an enormous amount of money to fund research…more than any of us can afford alone, but together, we are capable of great accomplishments.

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It is passed on from generation to generation in families worldwide. Males generally inherit the disease symptoms and females are the carriers.

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Our focus is on research

 

The Kennedy’s Disease Association (KDA) has worked to educate others about this lesser-known disease and to support clinical research efforts.  We distributed information to more than 10,000 neurologists to help them recognize clinical signs and symptoms of Kennedy’s Disease and let their patients know we are here to help them.  The KDA uses conferences to help those living with Kennedy's Disease to better understand the disease as well as provide additional education and support tools to make life easier.

Research is cResearchrucial to finding treatments and a cure for this disease that has affected all of our lives.  Unfortunately, the federal government has reduced the funding available for medical research.  As a result, research projects for Kennedy’s Disease, along with other lesser known illnesses are being seriously under-funded.

Because of your continued support, the Kennedy’s Disease Association has awarded $280,000 in research grants.  Because of the efforts of  dedicated researchers around the world, those of us living with Kennedy’s Disease are much closer to seeing a treatment for the disease.

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For Research Updates

 

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For Clinical Trial information

 

Working together to find a cure . . .  for our generation . . . and for our children and our grandchildren