Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

"... almost all of the nurses and doctors did not know about Kennedy's Disease. I referred them here. I want to thank the creators of this website."

 

Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50.

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The Kennedy’s Disease Association has worked to educate others about this lesser-known disease and to support clinical research efforts.

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It takes an enormous amount of money to fund research…more than any of us can afford alone, but together, we are capable of great accomplishments.

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It is passed on from generation to generation in families worldwide. Males generally inherit the disease symptoms and females are the carriers.

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REGISTER NOW FOR THE 2018 KDA CONFERENCE in sunny San Diego, California! The conference runs Wednesday, 10/31/18 thru Friday 11/2/18. Look forward to seeing everyone! For more information, click hereTo register, click here!


  • 8thannualgolfscramble

    Our 8th Annual KD Golf Scramble will be held on September 29th at High Meadow Ranch Golf Course, Magnolia Texas. You don't have to be there in order to donate to help us find a cure. Be a sponsor and get your name on the Tree of Hope or signs placed throughout the golf event. For more information, click here. Golf Scramble Brochure, click here. Donate $25 or more to the KD Golf Scramble and recieve a Why Not Today Bracelet. To donate, click here.

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    A HUGE thanks to Gloria & Dennis Kalkowski of Slowlane Guitars for their generous donation of an artistically unique, custom-made guitar to be auctioned at the golf tournament. Dennis who has been diagnosed with KD in his early 40s founded Slowlane Guitars to create a “one of a kind” guitar with total attention to every detail that would be a rewarding experience to play. For more information on Slowlane Guitars. Click here. If you’re interested in putting a reserve bid on this beautiful, artistic musical instrument that will be auctioned on September 29th, please contact Louise Goforth This email address is being protected from spambots. You need JavaScript enabled to view it.  or 281.330.0828

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  • The NIH (National Institutes of Health) is collecting DNA samples for a KD study. They are looking for genetic markers that impact the progression of KD and our quality of life. If you have been diagnosed with Kennedy's Disease, please contact Angela Kokkinis at This email address is being protected from spambots. You need JavaScript enabled to view it. and she will send you a saliva collection kit.

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    The Living with Kennedy's Disease Blog