Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

"I had just been diagnosed with Kennedy's Disease and had no idea what it was or what to expect. The KDA maintains an excellent website that explains the disease. I found details on symptoms, the cause, and exercises I could do to maintain my strength."

 

Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50.

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The Kennedy’s Disease Association has worked to educate others about this lesser-known disease and to support clinical research efforts.

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It takes an enormous amount of money to fund research…more than any of us can afford alone, but together, we are capable of great accomplishments.

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It is passed on from generation to generation in families worldwide. Males generally inherit the disease symptoms and females are the carriers.

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2018 Kennedy's Disease Grant Information - The Kennedy's Disease Association (KDA) is planning to fund one or more research grants this fall to further the understanding of the pathological mechanisms of Kennedy's Disease. The KDA projects that funding for each grant will be up to $50,000. Applications from junior investigators and from senior post-doctoral fellows are encouraged. Your proposals must be received by Monday July 30, 2018. The KDA will send a confirmation email within three days of receipt. For information regarding the 2018 grant proposal guidelines and review schedule, click here. Please send your proposals as a pdf file to the following email address: This email address is being protected from spambots. You need JavaScript enabled to view it. and please cc to This email address is being protected from spambots. You need JavaScript enabled to view it..  


  • SAVE THE DATE! The 2018 KDA Conference will be held in San Diego, CA. Wednesday, 10/31 thru Friday 11/2/18. Details will be posted soon. Look forward to seeing everyone!


  •  The NIH (National Institutes of Health) is collecting DNA samples for a KD study. They are looking for genetic markers that impact the progression of KD and our quality of life. If you have been diagnosed with Kennedy's Disease, please contact Angela Kokkinis at This email address is being protected from spambots. You need JavaScript enabled to view it. and she will send you a saliva collection kit.

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    The Living with Kennedy's Disease Blog