Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

"Kennedy's Disease can be a lonely existence in many ways, but the KDA makes me feel I'm not alone, thank you."

 

Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50.

read more

 

The Kennedy’s Disease Association has worked to educate others about this lesser-known disease and to support clinical research efforts.

read more

 

It takes an enormous amount of money to fund research…more than any of us can afford alone, but together, we are capable of great accomplishments.

read more

 

It is passed on from generation to generation in families worldwide. Males generally inherit the disease symptoms and females are the carriers.

read more

 
 
DonateNowbuttonpng


Whatsnew-button

Updateyourcontactinformationbutton

WaystofindaCbutton

 

button join-the-kda-today

Home

Welcome

button first-time-visitor

KDA Logo 152x91

KDAnews

The NIH (National Institutes of Health) is collecting DNA samples for a KD study. They are looking for genetic markers that impact the progression of KD and our quality of life. If you have been diagnosed with Kennedy's Disease, please contact Angela Kokkinis at This email address is being protected from spambots. You need JavaScript enabled to view it. and she will send you a saliva collection kit.

The 2017 KDA Conference Research presentations have been posted on the website. To view the PowerPoint presentations, click here. To view photo's and some video presentations, go to our Facebook page by clicking here.

As of November, 2017 the KDA has awarded over $1,000,000 in research grants to help find a cure or treatment for Kennedy's Disease. To view the 2017 award recipients and summaries of their planned research as well as past years reicpients. Click here.


  •  Living with KD Logo medium

    The Living with Kennedy's Disease Blog