Doctors, researchers, and scientists have long recognized the benefit of human tissue to further their research.  Kennedy's Disease research is no different.  In response to this need, the Kennedy's Disease Association (KDA) is pleased to announce the creation of a Tissue Donation Program for individuals with Kennedy's Disease who wish to donate their tissue.  This program is similar to an organ donation program, but is different because of the formalities required and the specific use for the tissue.

Tissue will be stored at a KDA approved tissue storage facility and will be provided for biochemical and genetic studies.  Tissue samples and results of clinical testing will be made available to qualified scientists only after their research proposal is reviewed and approved by the KDA Scientific Review Board (SRB) and Board of Directors.  The KDA is hopeful that these studies will lead to advances in the diagnosis, treatment, and eventual cure of Kennedy's Disease.

Since any donation decision affects others, we recommend that you discuss it with your family so that they will understand and support your decision.  If you are interested in donating tissue for Kennedy's Disease research, please review the attached document that outlines the program and  includes the forms needed to make a tissue donation.  Questions should be emailed to info@kennedysdisease.org. 

The Tissue Donation Document can be downloaded in 2 different formats below;

MS Word Format                  PDF Format (Adobe Acrobat Reader Required)