Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

Kennedy’s Disease Knows No Boundaries...

Our Focus Remains on Research, Education and Support

The Kennedy’s Disease Association has worked to educate others about this lesser-known disease and to support clinical research efforts. We distributed information to more than 10,000 neurologists to help them recognize clinical signs and symptoms of Kennedy’s Disease.

Will my child be born with this DNA defect?

It takes an enormous amount of money to fund research…more than any of us can afford alone, but together, we are capable of great accomplishments. We are searching for available foundation grants, but the process is lengthy. We need researchers to continue their work, and it is only the KDA that makes funding this disease a priority.

Kennedy’s Disease Knows No Boundaries...

It is passed on from generation to generation in families worldwide. Males generally inherit the disease symptoms and females are the carriers. The defect is in the ‘X’ Chromosome that makes testosterone almost a poison to his body.

What is Kennedy's Disease?

Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50. However, onset has also been reported as early as in the teens and as late as the 60s.

Medical Equipment

Long Term Care Products

walker_-_house Technology for Long-Term Care focuses on products related to important care issues including assistance / nurse call, falls, wandering, incontinence, and bathing. As funding and resources permit, Technology for Long-Term Care will add more categories or "Care Issues", expand existing categories by including more products, and provide supplemental resources. Examples of future care issue categories may include lifting and transferring, medication management, mobility, assistive cognition, eating, dressing, and leisure to name a few.

Here you will find a spreadsheet that Murray Williams has put together of Mobility Aid. Scooters, Lifts, Ramps, Chairs and various other equipment. This spreadsheet also lists the website for the vendor and contact information. Click on the link below to view the MS Excel spreadsheet or in PDF.