Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

"Every day parents-to-be wonder whether their child will be born with this DNA defect"

Our Focus Remains on Research, Education and Support

The Kennedy’s Disease Association has worked to educate others about this lesser-known disease and to support clinical research efforts. We distributed information to more than 10,000 neurologists to help them recognize clinical signs and symptoms of Kennedy’s Disease.

Will my child be born with this DNA defect?

It takes an enormous amount of money to fund research…more than any of us can afford alone, but together, we are capable of great accomplishments. We are searching for available foundation grants, but the process is lengthy. We need researchers to continue their work, and it is only the KDA that makes funding this disease a priority.

Kennedy’s Disease Knows No Boundaries...

It is passed on from generation to generation in families worldwide. Males generally inherit the disease symptoms and females are the carriers. The defect is in the ‘X’ Chromosome that makes testosterone almost a poison to his body.

What is Kennedy's Disease?

Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50. However, onset has also been reported as early as in the teens and as late as the 60s.

Exercises - Throat

Medical Disclaimer PLEASE READ FIRST !

The exercise information provided here is of a general nature and can not be substituted for the advice provided by a medical doctor or certified health practitioner. This information is designed for educational purposes only and must not be construed as medical advice or a professional service. This information must not be used as diagnosing or treating a medical problem or situation. You must verify whether the information provided here is appropriate for you by checking with your doctor before you begin any extended exercising. You are solely responsible for the way that this information is perceived and utilized and do so at your own risk.

Throat Exercises:

Do each exercise 5 times. Do all twice a day.

1. Open and close mouth slowly several times. be sure the lips are all the way closed.

2. Pucker your lips, as for a kiss, hold, then relax.

3. Spread your lip into a big smile, hold, then relax.

4. Pucker, hold, smile, hold.

5. Open your mouth, then try to pucker with your mouth wide open. Don't close your jaw. Hold & relax.

6. Close your lips tightly and press together.

7. Close your lips firmly, slurp all the saliva onto the top of your tongue.

8. Open your mouth, stick out your tongue. Be sure your tongue comes straight out of your mouth and doesn't go off the side. Hold, relax and repeat several times. Work toward sticking your tongue out farther each day, but still pointing straight ahead.

9. Stick out your tongue and move it slowly from corner to corner of your lips. Hold in each corner, relax and repeat several times. Be sure your tongue actually touches each corner each time.

10. Stick out your tongue and try to reach your chin with the tongue tip. Hold at the farthest point.

11. Stick out your tongue and try to reach your nose with the tongue tip. Pretend you are licking a popsicle or cleaning off some jelly from your top lip. Don't use your bottom lip or your fingers as helpers. Hold as far up as you can reach.

12. Use tongue blade or spoon. Stick out your tongue. Hold spoon against the tip of your tongue and try to push the spoon even farther away with your tongue while your hand is holding the spoon steadily in place. Hold the spoon like a popsicle or a sucker upright, not in your mouth.

13. Stick out your tongue. Pretend to lick a sucker moving the tongue tip from down by chin to up by nose. Go slowly and use as much movement as you can.

14. Stick your tongue out and pull it back fast. Repeat as many times as you can and as quickly as you can.

15. Move tongue from corner to corner as quickly as you can.

16. Move tongue all around your lips in a circle as quickly, but as
completely as you can, touching all of both upper lip, corner, lower lip, and corner
in your circle.

17. Open and close mouth as quickly as you can. Be sure your lips close each time.

18. Say Ma-Ma-Ma-Ma as quickly as you can without losing the Ma sound. Be sure there's an M and an AH each time.

19. Say La-La-La-La as quickly and accurately as you can.

20. Say Ka-Ka-Ka-Ka as quickly and accurately as you can.

21. Say Kala-Kala-Kala-Kala as quickly and accurately as you can.