A PUBLIC BENEFIT, NON-PROFIT ORGANIZATION
CHOOSE YOUR LANGUAGE      French    German    Italian    Spanish    Portuguese    Japanese    Chinese
Home
     Kennedy's Disease Association, Inc.
      P.O. Box 1105, Coarsegold, CA 93614 (U.S.A.)
      (559) 658-5950 email: info@kennedysdisease.org
WHAT'S NEW ON THE SITE

     ABOUT KENNEDY'S DISEASE
HOME  
   What is KD
   Who Gets KD
   KD Symptoms
   Genetic Counseling/Inheritance
   Common Misdiagnosis
     ABOUT THE KDA
   About the KDA
   Scientific Review Board
   Board of Directors
   Testimonials
   Contact Us
     JOIN THE KDA
     NEWS/RESEARCH
   Current Research
   Medical Articles
   KDA Conferences
   Published Articles
       about the KDA
   KD Treatments
     HELP THE KDA
   Make a Donation
   Fundraising
   Shopping to Help the KDA
   Make a Pledge
   Hope 5 Campaign
   Inform Others
   Buy a Cookbook
   Others Making a Difference
   Business Contributors
   What's Up For Auction
     DISCUSSIONS/SUPPORT
   Discussion Forums
   Chat
   Chat Transcripts
   Personal KD Stories
   KD Contacts
   Stepping Out of the Shadows
   Memorials
   Coakley's Corner
   General Tips
     OTHER RESOURCES
 • List of Doctors
   DNA Test Labs
   Medical Equipment
   Emergency Medical Card
   Medical Dictionary
   Links to Other Resources
     GUESTBOOK
   Sign
   View
OTHER RESOURCES • List of Doctors 
LIST OF DOCTORS

Doctors Familiar with Kennedy's Disease

The following doctors' names were given to us by individuals who have KD that utilize their services.  We have been told that these doctors have a familiarity with KD.  They have also agreed to have their name and contact information posted on the KDA Web site. While the Kennedy's Disease Association cannot recommend any one physician, we can make these names available by geographic location and give you the opportunity to decide if you would like to make contact with them.  This list is not all encompassing.  There are many doctors who are not on this list that treat KD and have knowledge of KD that we have not yet contacted and invited to be on this list.

Arizona

Peoria

Dr Steven R. Hempelman 

Arizona Medical Clinic

13760 N 83rd Ave.

Suite 101

Peoria, AZ 85381

Phone: 623-876-3940

 

Phoenix

Dr. Shafeeg Lahda

MDA Clinic-

St. Joseph’s Hospital & Medical Center

Barrow Neurological Institute

500 West Thomas Road, Suite 300

Phoenix, AZ 85013

Phone: 602-406-6274

 

 

 

Phoenix

 

 

K. Sivakumar, MD

Neuromuscular Research Center

10200 N. 92nd St., Ste. 101

Scottsdale, AZ 85258

(480) 314-1007

or

222 W. Thomas, Ste. 110-A

Phoenix, AZ 85013

Phone: (602) 406-6360

 

Phoenix

David S. Saperstein, M.D.

Phoenix Neurological Associates
1331 N 7th Street, Suite 350
Phoenix, AZ 85006
Phone: 602-258-3354
FAX: 602-258-3368
www.phoenixneurology.com

 

 Phoenix

Dr Shi

 St. Joseph's Hospital & Medical Center  

Barrow Neurological Institute

500 W. Thomas Rd.  Suite 720

Phoenix, AZ 85013

Phone: (602) 406-6262

 

Sun City

Andrew Gorman, M.D.

Arizona Neurological Center

Thunderbird Rd.

Sun City, Az.  85351

 

Tucson

Timothy M Miller, MD

University of Arizona Health Sciences Center

1501 N. Campbell Ave., Rm6208B
Tucson, AZ 85724
(520) 626-4147 Admin Office
(520) 874-2705 Clinical office (520) 694-8888 Appointment line
(520) 626-2111 Fax

tmmiller@u.arizona.edu
www.neuromuscular.arizona.edu

 

 

 

California

Palo Alto

Jonathan S. Katz, M.D.

Director, Neuromuscular Program

The Forbes Norris MDA/ALS Research Center

(California Pacific Medical Center)

2324 Sacramento Street, Suite 111

San Francisco, CA 94115

Telephone     415-600-3604

Fax              415-673-5184

Direct Line    415-600-3982

e-mail: katzjs@sutterhealth.org

 

 

 

 

         

 

Florida

Sarasota

Daniel Stein, MD

Neurologist

1921 Waldemere Street, Suite 701

Sarasota, FL  34239

Phone: (941) 917-6222

Fax: (941) 487-2170

Jacksonville

Kevin Boylan, M.D

Department of Neurology
Mayo Clinic
 
 
4500 San Pablo Road
Jacksonville, FL  32224
Phone:
(904) 953-0323
mcnally.debra@mayo.edu

St.  Petersburg

Alan Weiss, MD

Neurologist

1099 Fifth Ave No., St Petersburg, FL  33705-1419

Phone: (727) 820-7701

Fax: (727) 820-7700

 

 

Georgia

Atlanta & Dalton

Linton Hopkins, M.D. 

Emory University 
School of Medicine,  
Department of Neurology
- Also MDA clinic in Dalton
 

The Emory Clinic.

95 Wakefield Drive

Atlanta, GA 30322

Phone: 404-778-3452

Fax: 404-778-2162

Atlanta & Dalton

John Sladky, M.D. 

Emory University 
School of Medicine,  
Department of Neurology
- Also MDA clinic in Dalton
 

1365 Clifton Rd NE 3rd Fl, Atlanta, GA  30322-1013

Phone: 404-727-5756

Fax: 404-778-3075

 

Illinois

Chicago

Robert Sufit, M.D. 

Northwestern University 
Medical Center
 
Department of Neurology, Neuromuscular Disorders Program
 
675 N. St. Clair, #20-100
Chicago, IL  60611
Phone: 312-695-5886
pcasey@nmff.org

Chicago

Teepu Siddique, M.D. 

Northwestern University 
Medical Center
 
Department of Neurology, Neuromuscular Disorders Program
 
675 N. St.Clair, #20-100
Chicago, IL  60611
Phone: 312-695-5886
pcasey@nmff.org

Peoria

Richard H. Lee, M.D.

 

Suite 218, Proctor Professional Bldg. 1

5401 N Knoxville Ave.

Peoria, IL  61614

Phone: 309-692-1016

 

 

 
 

Indiana

Indianapolis

David A. Josephson, M.D.

 
8402 Harcourt Road
Suite 615
Indianapolis, IN 46260
Phone:
317.338.9191
http://www.neurologychannel.com/jwm

Indianapolis

Kristi K. George, M.D.

 
8402 Harcourt Road
Suite 615
Indianapolis, IN 46260
Phone: 317.338.9191
http://www.neurologychannel.com/jwm

 

 

 

 

Iowa

Council Bluffs

Jonathan Moravek, M.D.

 
Neurology Dept., Methodist Physicians Clinic
One Edmundson Place
Council Bluffs, IA 51503
Phone: 712-396-4050

 

 

 
 

Maine

Augusta

Anthony Pakiam, M.D.

Adult Neurology and Electromyography

56 Winthrop St.
Augusta, ME  04330
Phone: 207-626-0481

 

 

 
 

Maryland

Baltimore

Neil C. Porter, M.D.

University of Maryland School of Medicine- Department of Neurology
 
Director of the MDA clinic at Maryland
General Hospital in Baltimore
 
22 S. Greene St.
Baltimore, MD 21201

Phone: (410)328-3273
Fax:(410)328-5899
NPort001@Umaryland.edu

Baltimore

David R. Cornblath, M.D.

Johns Hopkins University

Johns Hopkins Hospital
Baltimore, MD 21287-6965
 
Phone: (410) 955-2229 
Fax:  (410) 502-6727 
dcornbl@jhmi.edu 

Massachusetts

Boston

Kenneth Gorson MD/SEM/CCHCS

St. Elizabeth's Medical Center of Boston
736 Cambridge Street
Boston Ma 02135-2997
Phone:
(617)789-2375
kenneth_Gorson_md@cchcs.org

Boston

Anthony Amato, M.D.

Vice-Chairman, Dept. of Neurology Brigham and Women’s Hospital

Division of Neuromuscular Medicine
75 Francis Street, Boston, MA 02115

Phone: 617-7328046

Boston

Dider Cross, M.D.

Neurology-Electromyography
Peripheral Nerve and Neuromuscular Diseases
3 Hawthorne Place
Suite 12
Boston, MA  02114
Phone:
617-720-0030
dcros@partners.org

 

 

 

 

 

Missouri

St. Louis

Alan Pestronk, M.D.

Director,
Neuromuscular Division
Department of Neurology
Washington University,
School of Medicine
660 South Euclid Ave.
St. Louis, MO 63110
Phone: 314-362-6981

 

 

 

 

 

 

 

 

 

Minnesota

Minneapolis

David Walk, M.D.

Assist. Professor
Director, Neurology Clerkship
Medical Director, Clinical Neurophysiology Laboratory -
University of Minnesota

Clinic 1A, Phillips Wangensteen Building, 516 Delaware Street SE
Minneapolis, MN 55455

Phone: 800-688-5252 Ext. 6-3004

Email: walkx001@umn.edu

Minneapolis

William David, M.D.

 

825 So. 8th St., Suite 250

Minneapolis, MN 55404

 

 

 

 

 

North Carolina

Charlotte

Elena Brawer, M.D.

ALS MDA Clinic

1010 Edgehill Road N

Charlotte, NC 28207

Phone: (704)-446-2775

Durham

Donald Saunders, M.D.

Duke Hospital

Durham, NC

Phone: 919-684-6078

 

 

 

 

 

Ohio

Lima

Douglas B. Karel, M.D..

Allen County Neurology

Private Practice

658 Market Street
Lima, Ohio 45801
 
Phone: (410) 225-5100
Fax: (410) 225-5110
libelul@wcoil.com

Cincinnati

John Quinlan, M.D.

University of Cincinnati Medical Center & Chairman of MD Clinic

UC Medical Arts Bldg.,

222 Piedmont Ave., Suite 3200,
Cincinnati, OH 45219

Phone: 513-475-8730

Cincinnati

Laura Sams, M.D.

Aring Neurology Center, University of Cincinnati

222 Piedmont Ave, #3200

Cincinnati, Ohio 45219

Phone: 513 475 8730

Fax 475 8033

Columbus

Jerry R. Mendell, M.D.

Professor and Chairman of Neurology
Director, Neuromuscular Disease Center
Ohio State University Medical Center
Department of Neurology
4th Floor Means Hall
1654 Upham Drive
Columbus, OH 43210-1228
Phone: 614-293-4962 

 

 

 

 

Pennsylvania

Philadelphia

Enrica Arnaudo, M.D.


Thomas Jefferson University

1025 Walnut Street
Room 310
Philadelphia, PA  19107
Phone:
(215) 955-7952
www.enrica.arnaudo@mail.tju.edu

Philadelphia

J. Paul Taylor, M.D., Ph.D

University of Pennsylvania

3 West Gates Building
3400 Spruce St.
Philadelphia, PA 19104-4283
Phone: (215) 573-0317
Fax (215) 573-1153

jpt@mail.med.upenn.edu

Allentown

Terry Heiman-Patterson, M.D.

Good Shepherd Rehabilitation Hospital &

MDA/ALS Clinic

850 South 5th. St.

Allentown, PA 18103

Phone: 610 776-3278

 

 

 

 

 

Texas

Houston

Dennis Mosier, M.D.


Methodist Neurological Institute

Scurlock Tower

Suite 802

6550 Fannin Street
Houston, TX 77030

dmosier@bcm.tmc.edu

Houston

Milvia Y. Pleitez, M.D.

Director of Muscle and Nerve Pathology

Methodist Neurological Institute

Scurlock Tower

Suite 802

6550 Fannin Street
Houston, TX 77030

Phone:  (713) 441-3335

Fax:      (713) 790-2059

Houston

Erica Simpson, M.D.

Methodist Neurological Institute

Scurlock Tower

Suite 802

6550 Fannin Street
Houston, TX 77030

Phone:  (713) 441-3336

Dallas

 Daragh Heitzman, M.D.

Teas Neurology, P.A.

6302 Gaston Ave
Suite 400 West Tower
Dallas, TX  75214

Utah

Salt Lake City

Dr. David Renner, M.D.

University of Utah Medical Center

729 Arapeen Drive, Salt Lake City, Utah 84108

Phone: 801-585-6387

 

 

 

 

 

Washington

Seattle

Albert La Spada, MD, PhD, FACMG

Dept. of Laboratory Medicine &
Div. of Medical Genetics (Medicine)

University of Washington
 
Medical Genetics Clinics
Box 357110, Room NW120
Seattle, WA 98195-7110

Phone:  (206) 598-2138
Fax:  (206) 598-6189  
 
Contact person for appointments/information:
Robin L. Bennett, MS, CGC
Genetic Counselor &   
    Manager
Phone:  (206) 616-2135
Fax:  (206) 616-2414
laspada@u.washington.edu

 

 

 

 

 

Wisconsin

Milwaukee

Wendy Larson Peltier, M.D.

Associate Professor,

Department of Neurology,

Neuromuscular Program -

Medical College of Wisconsin

8701 Watertown Plank Road
Milwaukee, WI 53226
Phone:
414-805-9719

 

 

 

 

United Kingdom

Nottingham

Adrian J. Wills, M.D.

Consultant Neurologist -

Queen's Medical Centre, University Hospital NHS Trust

Neurology Department, D Floor, West Block,

Queen's Medical Centre,

University Hospital NHS Trust, Nottingham, NG7 2UH

Phone: (+44) (0) 115 709141

Harrow

Angela F Brady, M.D.

Medical & Community Genetics, North West London Hospitals NHS Trust

Kenndy-Galton Centre, Medical & Community Genetics, Level 8,

North West London Hospitals NHS Trust,Watford Road,

Harrow, HA1 3UJ.

Oxford

Kevin Talbot, M.D.

Clinical Neurology- John Radcliffe Hospital

Third Floor, West Wing
John Radcliffe Hospital
Headington
Oxford OX3 9DU

Phone: 01865 231 904

Secretary: Sandra Steeples

Phone: 01865 231 904

kevin.talbot@clneuro.ox.ac.uk

 

 

 

 

South Korea

Seoul

Jung-Joon Sung M.D., Ph.D.

Assistant Professor,
Department of Neurology, Seoul National University Hospital

28 Yongon-Dong, Chongno-Gu, Seoul 110-744, Korea
Fax: +82-2-3672-7553
Phone: +82-2-2072-2237
E-mail: jjsaint@snu.ac.kr

 

 

 

 

 

Sweden

Stockholm

Lars-Olov Ronnevi, M.D.

Head of neurology,  Karolinska University Hospital

Stockholm, Sweden

Phone: +468-51775571 and www.neuromott@karolinska.se