The KDA recognizes the benefits of Regional Chapters and invites those who would like to spearhead a Regional Chapter to contact the KDA.

Currently there are some individuals who meet informally because they live near each other or contact others via the public contact lists made available when they are going to "be in town".

The KDA would like to take this to the next level (although still on a rather informal basis) and invite those interested in forming or joining a regional chapter group to contact us at info@kennedysdisease.org

We will post information regarding Regional Chapter Coordinators, contact information and their plans/functions for meeting, etc. on this page of the Website as they form and plans are made public.

Regional Chapters' Established:

North-Eastern USA - (including the following states:  Maine, New Hampshire, Vermont, Connecticut, New York, Pennsylvania, Rhode Island, New Jersey, Massachutsetts, Delaware, Washington DC, Maryland, Ohio, West Virginia, Virginia, Michigan, Indiana or Kentucky)

Click Here for North-Eastern Region Information

Contact Paul DeSchamp, North-Eastern Regional Coordinator at:  PkDeschamp@capcomp.com  

KDA Regional Chapter Meeting Guidelines:

The Kennedy's Disease Association supports the concept of Regional Meetings.

Kennedy's Disease meetings can be held for any of the following reasons:

• Support Groups
• Camaraderie/Sharing
• Fundraising
• Distribution of information
• Education - no more than one or two speakers

These meetings need to be organized, funded, and supported at the local or regional level. The meetings should not conflict or compete with any Kennedy's Disease Association conferences, symposiums, fundraising events, educational programs, etc.

The Kennedy's Disease Association should be notified of all planned events including the date(s), location, expected attendees, purpose of the meeting, and meeting leader(s). For additional information, contact info@kennedysdisease.org