Home Provide Support Schedule of Upcoming Chats

Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

Our Focus Remains on Research, Education and Support

The Kennedy’s Disease Association has worked to educate others about this lesser-known disease and to support clinical research efforts. We distributed information to more than 10,000 neurologists to help them recognize clinical signs and symptoms of Kennedy’s Disease.

READ MORE

Will my child be born with this DNA defect?

It takes an enormous amount of money to fund research…more than any of us can afford alone, but together, we are capable of great accomplishments. We are searching for available foundation grants, but the process is lengthy. We need researchers to continue their work, and it is only the KDA that makes funding this disease a priority.

READ MORE

Kennedy’s Disease Knows No Boundaries...

It is passed on from generation to generation in families worldwide. Males generally inherit the disease symptoms and females are the carriers. The defect is in the ‘X’ Chromosome that makes testosterone almost a poison to his body.

READ MORE

What is Kennedy's Disease?

Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50. However, onset has also been reported as early as in the teens and as late as the 60s.

READ MORE


Schedule of Upcoming Chats PDF Print E-mail

A. The Regular Hosted Public KDA chats are held on the 1st and 3rd Saturday's of each month at 10:30 a.m. Eastern (USA) Time. The chats normally last one hour.

B. Wives & Significant Others KDA chats are held on the 2nd Saturday of each month at 11:00 a.m. Eastern (USA) Time. The chats normally last one hour.

These chats are scheduled for the wives, carriers, caretakers and significant others of KD individuals to discuss anonymously everyday issues that they face supporting someone living with Kennedy's Disease or being a carrier.  Note: These chats transcripts are not posted to the KDA site.

C. Three Unhosted Public KDA Chats are held on the 3rd Saturday of each month.  The chats normally last one hour.

 

1)  Europe:  10:00 a.m. GMT (London).
2)  North and South America:  10:30 a.m. Eastern Time (New York).
3)  Pacific Rim:  10:00 a.m. Central Time (Darwin, Australia)

The chat room is open to anyone who wishes to discuss what it is like living Kennedy's Disease.

Note:  If you need help converting the start time to your time zone click on this link: World Time Server.

2012 Chat Room Schedule

 

Chat Date Host Guest Topic




January 7, 2012 Terry Waite
Open Forum
January 14, 2012

Unhosted
For Wives, Carriers and Care Givers
January 21, 2012 Unhosted
Open Forum
February 4, 2012 Bruce Gaughran
Open Forum
February 11, 2012 Unhosted
For Wives, Carriers and Care Givers
February 18, 2012 Unhosted
Open Forum
March 3, 2012 Lou Tudor
Open Forum
March 10, 2012 Unhosted
For Wives, Carriers and Care Givers
March 17, 2012 Unhosted
Open Forum
April 7, 2012 Mike Goynes Yes - Julie Bindeman, MD
 Anger & Frustration Issues
April 14, 2012 Unhosted
For Wives, Carriers and Care Givers
April 21, 2012 Unhosted
Open Forum
May 5, 2012 Terry Waite
Open Forum
May 12, 2012 Unhosted
For Wives, Carriers and Care Givers
May 19, 2012 Unhosted
Open Forum
June 2, 2012 Lou Tudor
Open Forum

June 09, 2012

 Unhosted
For Wives, Carriers and Care Givers
June 16, 2012 Unhosted
Open Forum
July 7, 2012 Ed Meyertholen
Open Forum
July 14, 2012 Unhosted
For Wives, Carriers and Care Givers
July 21, 2012 Unhosted
Open Forum
August 4, 2012 Mike Goynes
Angela Kokkinis
Exercise Trial Update
August 11, 2012 Unhosted
For Wives, Carriers and Care Givers
August 18, 2012 Unhosted
Open Forum
September 1, 2012 Terry Waite
Open Forum
September 08, 2012 Unhosted
For Wives, Carriers and Care Givers
September 15, 2012 Unhosted
Open Forum
October 6, 2012 Ed Meyertholen
Open Forum
October 13, 2012 Unhosted
For Wives, Carriers and Care Givers
October 20, 2012 Unhosted
Open Forum
November 3, 2012 Ed Meyertholen
Open Forum
November 10, 2012 Unhosted
For Wives, Carriers and Care Givers
November 17, 2012 Unhosted
Open Forum
December 1, 2012 Mike Goynes
KDA Conference
December 08, 2012 Unhosted
For Wives, Carriers and Care Givers
December 15, 2012 Unhosted
Open Forum