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Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

Our Focus Remains on Research, Education and Support

The Kennedy’s Disease Association has worked to educate others about this lesser-known disease and to support clinical research efforts. We distributed information to more than 10,000 neurologists to help them recognize clinical signs and symptoms of Kennedy’s Disease.

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Will my child be born with this DNA defect?

It takes an enormous amount of money to fund research…more than any of us can afford alone, but together, we are capable of great accomplishments. We are searching for available foundation grants, but the process is lengthy. We need researchers to continue their work, and it is only the KDA that makes funding this disease a priority.

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Kennedy’s Disease Knows No Boundaries...

It is passed on from generation to generation in families worldwide. Males generally inherit the disease symptoms and females are the carriers. The defect is in the ‘X’ Chromosome that makes testosterone almost a poison to his body.

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What is Kennedy's Disease?

Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50. However, onset has also been reported as early as in the teens and as late as the 60s.

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Personal Stories PDF Print E-mail
Personal Stories of those living with Kennedy's Disease and Coakley's Corner

 

Each of the following individuals live with Spinal Bulbar muscular Atrophy (Kennedy's Disease). They have been kind enough to share their personal stories for others so that they can understand the disease on a more personal level. We thank these individuals for their information.

Individuals with SBMA:

Family & Friends Point-of-View:

 

Coakley's Corner

They say "Laughter is the Best Medicine"...

coakleyJohn A. Coakley, Sr. is an individual living with Kennedy's Disease.  His sense of humor shows through every conversation or email he writes.  He has written several humorous personal stories of what it is like living with KD.

 

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