Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

"The site is essential for a source for the general public, whenever one encounters the diagnosis of Kennedy's Disease and has no idea what that might be."

Our Focus Remains on Research, Education and Support

The Kennedy’s Disease Association has worked to educate others about this lesser-known disease and to support clinical research efforts. We distributed information to more than 10,000 neurologists to help them recognize clinical signs and symptoms of Kennedy’s Disease.

Will my child be born with this DNA defect?

It takes an enormous amount of money to fund research…more than any of us can afford alone, but together, we are capable of great accomplishments. We are searching for available foundation grants, but the process is lengthy. We need researchers to continue their work, and it is only the KDA that makes funding this disease a priority.

Kennedy’s Disease Knows No Boundaries...

It is passed on from generation to generation in families worldwide. Males generally inherit the disease symptoms and females are the carriers. The defect is in the ‘X’ Chromosome that makes testosterone almost a poison to his body.

What is Kennedy's Disease?

Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50. However, onset has also been reported as early as in the teens and as late as the 60s.

KDA Forum

Welcome to the KDA Discussion Forum

The KDA has enlisted the services of Groupee.Com to provide 'forum' services. The benefits of this service include:

No advertising/pop-ups
(Optional) Email notification back to you on messages you post letting you know someone has replied to the message.
Improved ease of use, message handling and storage
Private Messaging - Since the KDA Forum is a public forum, you can send a "Private Message". This option is a means for community members to talk to each other outside the realm of the public community. Members never have to know each other's email, so this is a more secure way of having a private conversation within a community. Multiple members can participate in a private message.
Polls - With polls, your community members can vote on a particular question. Comments are also supported on polls.

Click on the button to the left to join the discussion forums

Registration Required: If you have not already registered, you will need to do so before using these forums. It is a very simple verification process that helps prevent forums abuse by non wanted guests.

Disclaimer: The KDA Forum is a public forum. The information provided in these forums is of a general nature and can not be substituted for the advice provided by a medical doctor or certified health practitioner. This information is the opinion of the personal individual that submitted post and is in no way endorsed by the Kennedy's Disease Association. The information is provided for informational purposes only. This information must not be used as diagnosing or treating a medical problem or situation. You must verify whether the information provided here is appropriate for you by checking with your doctor. You are solely responsible for the way that this information is perceived and utilized and do so at your own risk.