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Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

Our Focus Remains on Research, Education and Support

The Kennedy’s Disease Association has worked to educate others about this lesser-known disease and to support clinical research efforts. We distributed information to more than 10,000 neurologists to help them recognize clinical signs and symptoms of Kennedy’s Disease.

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Will my child be born with this DNA defect?

It takes an enormous amount of money to fund research…more than any of us can afford alone, but together, we are capable of great accomplishments. We are searching for available foundation grants, but the process is lengthy. We need researchers to continue their work, and it is only the KDA that makes funding this disease a priority.

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Kennedy’s Disease Knows No Boundaries...

It is passed on from generation to generation in families worldwide. Males generally inherit the disease symptoms and females are the carriers. The defect is in the ‘X’ Chromosome that makes testosterone almost a poison to his body.

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What is Kennedy's Disease?

Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50. However, onset has also been reported as early as in the teens and as late as the 60s.

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Archives - 2009 and Older Transcripts
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# Article Title
1 2009 - December 19, Open Forum
2 2009 - December 05, Research Update - Guest - Heather Montie, Ph.D.
3 2009 - November 21, Open Forum
4 2009 - November 07, IGF-1 Research - Guest - Maria Pennuto, Ph.D.
5 2009 - October 17, Open Forum
6 2009 - October 03, Fund Raising Ideas
7 2009 - September 19, Research Update - Guest - Diane Merry, Ph.D.
8 2009 - September 05, Open Forum
9 2009 - August 15, Open Forum
10 2009 - August 01, Research Update - Guest - Dr. Andrew Lieberman
11 2009 - July 18, Open Forum
12 2009 - June 20, Open Forum
13 2009 - June 06, Open Forum
14 2009 - May 16, Open Forum
15 2009 - May 02, Open Forum
16 2009 - April 18, Open Forum
17 2009 - April 04, Open Forum
18 2009 - March 21, Research Update - Guest - Dr. J. Paul Taylor
19 2009 - March 07, Research Update - Guest - Dr. Kenneth Fischbeck
20 2009 - February 21, Open Forum
21 2009 - February 07, Open Forum
22 2009 - January 17, Open Forum
23 2009 - January 03, Open Forum
24 2008 - December 20, Research Update and KDA Conference
25 2008 - December 06, Open Forum
 
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