| UTE |
|
Good morning Lou, how's the weather? |
| UTE |
|
Morning Stan |
| Stan |
|
Good morning all from freezing cold Michigan |
| UTE |
|
We Got alot of snow overniter |
| Stan |
|
I heard it's on the way here, UTE |
| loutudor |
|
Good morning Guys! |
| UTE |
|
Gets a person in the Xmas mood |
| Stan |
|
Morning Lou |
| loutudor |
|
I do miss snow at Christmas! |
| UTE |
|
I forgot, what state are you in Lou? |
| Stan |
|
It doesn't put me in the XMas mood like it used to. |
| loutudor |
|
I'm in Florida now |
| loutudor |
|
I've lived in Mich, the Carolinas and Calif too |
| loutudor |
|
Where are you, UTE? |
| UTE |
|
Lou, what part of Michigan where you in? |
| loutudor |
|
Detroit suburbs |
| UTE |
|
I'm a Michigander...went to Jr HI in Dearborn...but Navy took me to Oregon..but now in Salt Lake |
| loutudor |
|
My husband grew up in Dearborn, MI...went to Fordson HS |
| UTE |
|
Small world...I grew uo se of there in the Irish Hills |
| Gary_KC |
|
Good morning. This is Gary joining in from Kansas City. |
| loutudor |
|
My husband just came in...he went to Woodworth JHS in Dearborn... |
| Stan |
|
Morning, Gary |
| loutudor |
|
Good morning Gary |
| UTE |
|
Is everything up to date in KC? |
| Gary_KC |
|
Hi Stan and loutudor. |
| Stan |
|
I grew up in Detroit, went to Cass Tech. Live in Albion now I'm retired. |
| UTE |
|
I was at Stout Jr HI but the ford testing ground |
| loutudor |
|
Small group this morning, but a few more may join later |
| Gary_KC |
|
UTE, it is 59 degrees with overcast this morning. I am fine thank you. |
| UTE |
|
32 here |
| loutudor |
|
Amazing what a small world we live in...or did we all just leave the Detroit area?? |
| Stan |
|
Cloudy, windy, and it finally made it to 46 here. |
| loutudor |
|
None of you want to know about the lovely weather here today, of course don't ask me in August :) |
| loutudor |
|
Hey everyone, don't forget to order the new cookboks and Muscle car t-shirts! |
| Stan |
|
Wife already got ours |
| loutudor |
|
Has anyone heard about the KDA conference that just took place in Baltimore? |
| loutudor |
|
Good morning Funchal and Stewart! |
| Stan |
|
There was a little blurb on Facebook about the conf. |
| Stewart |
|
Good morning |
| Stan |
|
Morning funchal and Stewart. Hope all is well. |
| loutudor |
|
We awarded three different researchers checks for KD research!! |
| loutudor |
|
There will be a full conference report coming out... |
| loutudor |
|
I'm anxious to hear what the dietician had to say in her presentation |
| loutudor |
|
Any problems with the colder weather to discuss? |
| Stan |
|
Do the dieticians ever address issues with people constantly underweight, or just those with problems being overweight? |
| loutudor |
|
Stan, as you know, I had to leave the conference so I don't know what she discussed. However I talked with some folks in Houston recently that praise the use of juicers for fresh fruits and vegetables. |
| Stewart |
|
Most of what she talked about is on www.nutrition.gov/ |
| Stan |
|
Now that it's gotten cold here, my legs, and hands cramp very easily. Can't get warm. Same every winter. |
| loutudor |
|
Thanks Stewart! |
| UTE |
|
My motor neuron disease clinic advises me to maintain the same weight and drink lots of water. |
| loutudor |
|
UTE, to maintain is good |
| loutudor |
|
Stan, it must be difficult to prevent falling on the ice and snow |
| Stan |
|
I have never seen anyone address issues with being underweight. I'm under a drs. care to try and keep my weight up. Juicers, fruits and vegetables are more for losing weight. Do not work with me. |
| UTE |
|
Two dumb questions...for the cookbook do they take debit cards...and what do you type to get on kda facebook? |
| Stan |
|
It is difficult walking, Lou. I usually have a cane just in case. |
| loutudor |
|
Stan, how do you calorie up? |
| Stan |
|
Feeding tube. Jevity 1.5, Lou |
| loutudor |
|
kennedysdisease.org |
| UTE |
|
oops |
| loutudor |
|
Stan, I guess milkshakes, etc would be good? |
| Stan |
|
Milkshakes are good once in a while. McD's is 6 miles away. |
| loutudor |
|
Ute, once you get on the KDA website, go to ways to help and the KDA store had a place on the drop down menu |
| UTE |
|
tks |
| loutudor |
|
Stan, you are very active and probably have high metabolism |
| loutudor |
|
funchal, where are you located? |
| Stan |
|
Yes. I have had an issue maintaining my weight all my life. |
| loutudor |
|
Stan, you can drink the supplemental drinks as a snck |
| Stan |
|
Yes. I usually have an Ensure or two every day for the last 20 years. |
| loutudor |
|
So, your weight problem is not caused by KD |
| Stan |
|
I don't think so. But it does have a potentially serious detrimental effect. |
| loutudor |
|
Most people with KD work at keeping a normal weight, as being overweight causes more mobility problems |
| Stewart |
|
Before I went to the conference (which I found it very worthwhile). I started the first steps on the exercise study at NIH, What a great place. In 12 weeks or so I have to go back. |
| Stewart |
|
They were saying next years conference will be in New Orleans. |
| loutudor |
|
Tell us more about that, Stewart! |
| Stan |
|
An inability to keep weight on, means muscle loss. |
| Stewart |
|
I just started drinking muscle milk stuff |
| Stan |
|
I'll have to look into other sources |
| loutudor |
|
My son has completely given up coffee and diet soda...he now drinks tea or water |
| loutudor |
|
Good morning Paul |
| Stan |
|
Hi, Paul |
| Stewart |
|
There are two parts to the study you are randomly picked as to which exercises you do I don’t know the difference, they won’t tell until after the study. |
| UTE |
|
Good morning Paul |
| loutudor |
|
Stewart, do you know how many of our KD folks are in the exercise program? |
| Paul Sramek |
|
Hi from Dallas |
| Gary_KC |
|
I have muscle weakness for mouth and chin. I hardly eat carrot sticks in salada bar. |
| loutudor |
|
Gary, that's why some guys are using juicers for the fruits and vegetables |
| Stewart |
|
It’s good, to be involved so far I think 18, they signed up a few more at the conferance, they are looking for 50-75 in all. In a couple of years there will be some new medications trials coming I’m told don’t know much more. |
| loutudor |
|
Many men are hopeful that Avadart will be determined to have a positive effect |
| loutudor |
|
Stewart, are you feeling better thru the exercise program yet? |
| Gary_KC |
|
I am hoping that Avodart will be slow down the progress too. :-) |
| Paul Sramek |
|
I took Avadart for two years + It did not help me, that I could tell. |
| Stewart |
|
I noticed a guy at the conference with gum, I was surprised my jaws would get to tired, he said his Dr has him going it for exercise. |
| loutudor |
|
That;s the first I've heard about gum... |
| Stewart |
|
To early to tell I just started but I will share once my results are in. |
| loutudor |
|
Everyone is different, Paul Was it Avadart prescribed or was it a blind study? |
| Gary_KC |
|
Paul, I am taking it too for about 2 years. Do you feel that the progress is being slow down??? |
| Paul Sramek |
|
I tald to the blind study & found out the Drug Avadart. I them went to Southwest Medical. The doctors they put me on it. |
| loutudor |
|
Two men at the conference told me they take Avadart and it's helped to keep them from progressing with KD |
| Paul Sramek |
|
The test did not a inprovement or a decline. 76 still able to walk some work full time. |
| loutudor |
|
Paul you're doing very well! |
| loutudor |
|
Stan, I remember my Dad loved buttermilk...he also drank eggnog during the holidays |
| Paul Sramek |
|
I think that you need a good mind set. push, push. Thank you. |
| UTE |
|
Paul, do u think your work helps keep u in shape? |
| Gary_KC |
|
My understanding is that Avadart may slow down the progress but may not improve. Exercise may improve the strenght. |
| Stan |
|
I drink home made eggnog most of the year. |
| loutudor |
|
You are correct, Gary |
| Stewart |
|
I'm on Dutasteride (Avadart) I believe it helped me, I’ve been on it for six months I’m going to hang in there for a while longer. Your mind set is so important. |
| Paul Sramek |
|
Yes!!!!!!!!! My Doctors @ Southwest, it is important to keep pushing as long as you can. |
| loutudor |
|
Stewart, keep up the good work! |
| loutudor |
|
Even in retirement...you just find something else to keep busy |
| Stan |
|
I still do most of my car and equipment repairs, as well as yard work and home repairs. I walk the few hundred feet to the mailbox. Could not work full time anymore. |
| Paul Sramek |
|
If something helps you need to build on that, if you thing think it works then it work. Just keep going. |
| loutudor |
|
Stan, you are so right! |
| loutudor |
|
Paull, I love your positive mind set! |
| loutudor |
|
Well, any last words this morning guys? |
| Paul Sramek |
|
I find that there is always a way to do the thinks I need done. |
| Stewart |
|
It’s my turn to make breakfast my son (13) did it last Saturday so I have to go (pancakes), Have a great day a great thanksgiving. |
| loutudor |
|
Happy Thanksgiving Everyone!! |
| Stan |
|
Just stay upright, keep trying, and have a Great Holiday everyone. |
| loutudor |
|
Take care guys |
| Paul Sramek |
|
Happy Thanksgiving !! |
| Gary_KC |
|
Take care all, too. Bye. |
| Stan |
|
Bye Lou, Paul, Gary, UTE. Gotta go hang lights. |
| UTE |
|
I must be the one who's furthest out of shape...at 65 my powerchair takes me to the mailbox and no strength for working with tools unless it's a computer mouse ...happy turkey day to all |
| loutudor |
|
YES!! Stan!! |
| loutudor |
|
UTE, you're still doing well at 65...some in their 40's are at this stage |
| loutudor |
|
Bye for now and take care |
| UTE |
|
When in Detroit was your dad in the auto industry |
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