| TerryW |
|
[b]Hello Dan |
| danmoore44055 |
|
good morning |
| TerryW |
|
[b]how long have you been waiting in chat? |
| danmoore44055 |
|
litte while |
| TerryW |
|
[b]we are early, more should be joining us later |
| danmoore44055 |
|
ok I am going to make some coffee |
| TerryW |
|
[b]Where are you from? |
| TerryW |
|
[b]ok |
| danmoore44055 |
|
cleve |
| TerryW |
|
[b]ok |
| TerryW |
|
[b]California here, Near Yosemite Natl Park |
| danmoore44055 |
|
we have spoken by chat before I was away for a few years now I am retired |
| TerryW |
|
[b]I am glad that you are back |
| danmoore44055 |
|
My sister is Sue Ball |
| TerryW |
|
[b]How are you doing KD wise? |
| TerryW |
|
[b]Hi Stan |
| danmoore44055 |
|
on and off |
| Stan |
|
Hi Terry. |
| TerryW |
|
[b]Yes, it seems with KD we have good days & bad (weaker) days |
| danmoore44055 |
|
lots of falls |
| Stan |
|
Every day I wake up is a good day. |
| TerryW |
|
[b]Are you doing too much |
| danmoore44055 |
|
yep |
| TerryW |
|
[b]I have to look down and really watch my feet and the ground to prevent falls |
| danmoore44055 |
|
me to rocks are bad |
| TerryW |
|
[b]If I look ahead and not watch thats when I fall |
| TerryW |
|
[b]yes rocks or a slight rise in the walk path |
| danmoore44055 |
|
I also have neuropothy in both legs |
| TerryW |
|
[b]what is that? |
| danmoore44055 |
|
Numbness loss of feeling |
| TerryW |
|
[b]oh, ok, that must make it worse |
| Stan |
|
Loss of feeling. People with b-12 deficiency get that too. |
| danmoore44055 |
|
some days it no problem other days it feels like I am standing barefoot in snow |
| danmoore44055 |
|
like when foots asleep |
| Stan |
|
I get that too. Real unsteady on my feet then. |
| danmoore44055 |
|
thats when I stay home and its movie day |
| danmoore44055 |
|
hard to do today its 75 degrees |
| TerryW |
|
[b]The only time I have ever noticed that with me is when I am down on the ground with my legs in a nealing position for a bit and get up on my feet. feels like legs went to sleep |
| TedA |
|
Good morning all |
| TerryW |
|
[b]Hi Ted |
| Stan |
|
Morning, TedA |
| danmoore44055 |
|
good morning |
| Stan |
|
Hi Gary |
| Gary_KC |
|
Good morning. This is Gary joining in from Kansas City. It is 64 degrees with cloudy this morning. |
| Gary_KC |
|
Hi Stan. |
| TerryW |
|
[b]RIght now I am having a battle with something really painful. I have a case of Shingles inside my head on the inner ear on the cranial nerve. Hurts terrible. |
| TerryW |
|
[b]this is the 3rd time in 6 months |
| danmoore44055 |
|
Ihad a friend with that |
| TerryW |
|
[b]no external visible signs |
| Stan |
|
Never heard of it occurring there, Terry |
| danmoore44055 |
|
thats adult chicken pox coming back right |
| TerryW |
|
[b]Feels like I have a rat inside my head tring to eat its way out |
| TerryW |
|
[b]Yes Dan |
| TerryW |
|
[b]hard to think or do tings sometimes the pain is do intense |
| TerryW |
|
[b]things |
| TerryW |
|
[b]but It is starting to subside a bit now |
| danmoore44055 |
|
how long will it last |
| TedA |
|
Terry, What is the treatment for it? |
| TerryW |
|
[b]the shingles can last a couple of weeks but the pain can remain for a month up to a year |
| danmoore44055 |
|
thats bad |
| TerryW |
|
[b]WHen it is in the head it can cause permanant deafness, loss of taste in the tounge, peralisis of the facial muscles |
| TerryW |
|
[b]Paralisis |
| TerryW |
|
[b]Ahhhh spelling |
| TerryW |
|
[b]Hi Stewart |
| TerryW |
|
[b]Ted, they gave me Valtrex |
| Stan |
|
Hi Stewart |
| danmoore44055 |
|
I saw video of gentleman in Strongsville Ohio he lives right by me |
| TedA |
|
You know what the say - geniuses can't spell. |
| TerryW |
|
[b]LOL |
| stewart |
|
Hi, Good morning all |
| TerryW |
|
[b]Hi Stewart |
| TerryW |
|
[b]Well today is supposed to be Rapture day |
| TerryW |
|
[b]nothing happening yet |
| danmoore44055 |
|
i heard |
| TerryW |
|
[b]If it happens I am ready |
| danmoore44055 |
|
me too |
| TedA |
|
I heard 6 pm but not sure which time zone. |
| TerryW |
|
[b]I know where I am going |
| danmoore44055 |
|
when I was young did not give it much thought but age has a way of changing that |
| TerryW |
|
[b]We got some good rain this past week which washed away a lot of the pollen. |
| Stan |
|
We've had a lot of rain here too. Sunshine today. More rain tomorrow. |
| TerryW |
|
[b]Stewart I was from Simi Valley until I moived up here by Yosemite |
| danmoore44055 |
|
going to rain here all week but not today |
| TerryW |
|
[b]So much flooding back east, and all the tornado damage. So sad |
| stewart |
|
Today in Torrance we have an arm forces day parade, fly bye etc, I hope the cloud lifts |
| danmoore44055 |
|
thats all its been doing here rain and flood |
| TedA |
|
I got a letter form DMV the other day. Some incident was reported to them and now they want to take away my driveres license unless the doctors fill out a form. I think someone saw me fall in the parking lot and my friend helped me up and I drove off. True I can't walk very well but I can drive. |
| TerryW |
|
[b]Tomorrow a Highschool girl we know is holding a BBQ fundraiser for the KDA as a class project |
| TerryW |
|
[b]that is terrible ted |
| TedA |
|
Anyone else had a similar situation? |
| danmoore44055 |
|
no but sounds like dmv is being unfair |
| TerryW |
|
[b]Ted they give you a letter like that but I bet the person that reported you talks on the phone while driving |
| TerryW |
|
[b]or texts |
| danmoore44055 |
|
both |
| TedA |
|
True because a para can not walk and many of them drive! |
| TerryW |
|
[b]I never heard of that ted |
| Stan |
|
I've had slip and fall, but no issue with my license. I think each state is different in that respect. Many that can't walk have hand controls so they can drive. So, I don't see the issue. |
| TedA |
|
In VA EVERYONE talks on their cell phone - it is legal - do NOT need a hands free device! |
| danmoore44055 |
|
I cant go 10 miles without seeing 20 people on the phone or texting |
| TedA |
|
And Virginia is the 13th WORSE in US for auto accidents according to the list I saw on AARP website. |
| stewart |
|
It's illegal in CA but people still do it |
| Gary_KC |
|
TedA, I gave up my driver license when I can't stand up. As long as you can stand up, I think you are fine. |
| danmoore44055 |
|
I have a friend that just moved there I had to tell him |
| TerryW |
|
[b]I have people on their phones pull right out in front of me and almost hit me and they don't even realize it happened because they are on the phone. |
| TerryW |
|
[b]Can anyone here still drive a car with a clutch? |
| TedA |
|
I use a bluetooth all the time so I do not have to hold the phone to my ear. Phone is TOO heavy! Also use head set for land line phones |
| danmoore44055 |
|
there is a application called DriveSafe.ly that read all text and emails out loud and responds that your driving and cant talk |
| TerryW |
|
[b]I have one of those trash cans in the kitchen and I can hardly step on the foot pedal and make it lift the lid |
| TedA |
|
No, automatic and even then I use cruse control as often as possible |
| Stan |
|
I can as long as the pedal isn't too stiff. I can drive an Escort no problem. When I tried the Ford GT clutch, it was too stiff for me. |
| danmoore44055 |
|
I gave the clutch up last year |
| TerryW |
|
[b]I drive with 2 feet, one on gas the other hovers over the brake pedal |
| Stan |
|
Leg gets real tired using clutch in traffic, so I avoid cars with standard trans. |
| TedA |
|
Gave up low vehicles about 8 years ago. Van or SUV only. The mechanic loaned me a truck for the day when he was doing work on my van as he knew I was not able to get out of low cars. |
| stewart |
|
I can still drive a clutch, But I don't, In LA traffic I know after awhile it would be too much. |
| Stan |
|
My daughter's Contour can be an issue sometimes. Sold my MG years ago. |
| TerryW |
|
[b]I could imagine stewart |
| stewart |
|
I quite often have one foot ready to push the gas pedal and the other on the brake while waiting at a stop light. |
| TerryW |
|
[b]Anyone have big plans for the upcoming weekend |
| danmoore44055 |
|
communion party |
| Stan |
|
My grand-daughter's birthday, daughter's birthday |
| TedA |
|
Going to a memorial service for those that gave all! |
| TerryW |
|
[b]Does anyone have difficulty swallowing Pills, I get pills stuck in my throat by my Larynx |
| danmoore44055 |
|
yep |
| Gary_KC |
|
No, I don't have the plan. :-( |
| TerryW |
|
[b]I now have to take the pill and get a spoonful of jellow and push the pill inside it and then swallow fast |
| TerryW |
|
[b]Jello |
| TerryW |
|
[b]slides right past |
| TedA |
|
I use great caution when taking pills, eating, etc as I do choke sometimes |
| Stan |
|
I have had trouble swallowing for a few years. Have PEG tube |
| danmoore44055 |
|
I sleep half sitting up to because of choking |
| TerryW |
|
[b]peg tube |
| TerryW |
|
[b]? |
| TerryW |
|
[b]dan are you using a Bi-pap? |
| Stan |
|
Feeding tube. That's how I take my meds and most food. It's coming. |
| TedA |
|
Dan, do you have sleep apena or have you been tested for it? |
| danmoore44055 |
|
no |
| danmoore44055 |
|
I live alone too |
| TerryW |
|
[b]stan does that tube go dow your throat? |
| TerryW |
|
[b]down |
| Stan |
|
In my stomach. |
| TerryW |
|
[b]oh, ok |
| TerryW |
|
[b]:( |
| danmoore44055 |
|
wow |
| danmoore44055 |
|
not fun |
| TerryW |
|
[b]sorry dan, |
| TerryW |
|
[b]dan, how old are you? |
| danmoore44055 |
|
little scary but i get by |
| TerryW |
|
[b]49 here |
| danmoore44055 |
|
my ex left because she said KD was a fake illness |
| TerryW |
|
[b]????what |
| stewart |
|
I was going to start bitching about my aches and pains never mind, I'm 52. |
| TerryW |
|
[b]People like that have Karma come back around |
| danmoore44055 |
|
she was tired of dealing with it she said oh well better off |
| danmoore44055 |
|
lol |
| TerryW |
|
[b]So sorry dan, it is better off not to have a person like that around you anyhow |
| TedA |
|
Dan, Do you a way to get help if you fall or something else happens? |
| Stan |
|
I'll be 59. Dan, that sounds like a lame excuse to me. |
| danmoore44055 |
|
yes I do |
| danmoore44055 |
|
I just told her goodbye |
| TerryW |
|
[b]Dan, we are here if you ever need to talk to someone.
This e-mail address is being protected from spambots. You need JavaScript enabled to view it
|
| TerryW |
|
[b]that understands |
| TedA |
|
I think my KD was part of the reason my Ex left me. But then she had lots of issues, even with HER Neice we had guardianship of! Better without her negative |
| danmoore44055 |
|
thanks my brother also has KD |
| danmoore44055 |
|
my sister ran an add for cruise on website |
| TerryW |
|
[b]on our website |
| danmoore44055 |
|
yes |
| danmoore44055 |
|
sue ball |
| TerryW |
|
[b]Oh ok, I remember |
| Stan |
|
I can be a real PITA. My wife has never even mentioned the thought of leaving. We all have problems. We both believe in "for better or for worse..." |
| danmoore44055 |
|
she watches over me |
| TerryW |
|
[b]good :) |
| TerryW |
|
[b]My sister told me to die and rot in my wheelchair |
| TerryW |
|
[b]nice eh? |
| danmoore44055 |
|
wow |
| TerryW |
|
[b]she is evil |
| Stan |
|
I guess it takes all kinds. I've never had anyone say anything negative to me Terry. |
| danmoore44055 |
|
I stay away from bad people iot makes me feel better |
| TerryW |
|
[b]A short time after she said that she has now been diagnosed with another type of Neuromuscular disease and was told she will be in a wheelchair within a year |
| TerryW |
|
[b]Karma |
| danmoore44055 |
|
very true my ex is sick too |
| danmoore44055 |
|
and yet still smokes two packs a day |
| TerryW |
|
[b]I believe in Karma, you get what you give |
| danmoore44055 |
|
thats right |
| TerryW |
|
[b]Well folks, I have a busy day in front of me so I am going to have to leave you and start getting ready |
| danmoore44055 |
|
I am in the process of getting some type of wheelchair |
| Stan |
|
I question it sometimes. I know some very good people that have been stricken with illnesses nobody should get. |
| danmoore44055 |
|
me to talk later have a great day |
| Stan |
|
That was kind of abrupt. I have stuff to do, but I'll sit here all day if someone needs to chat. |
| Gary_KC |
|
I got go too. Talk to you later, Stan. Bye. |
| Stan |
|
Ok, Gary. Until next time. |
