Our Focus Remains on Research, Education and Support
The Kennedy’s Disease Association has worked to educate others about this lesser-known disease and to support clinical research efforts. We distributed information to more than 10,000 neurologists to help them recognize clinical signs and symptoms of Kennedy’s Disease.
Will my child be born with this DNA defect?
It takes an enormous amount of money to fund research…more than any of us can afford alone, but together, we are capable of great accomplishments. We are searching for available foundation grants, but the process is lengthy. We need researchers to continue their work, and it is only the KDA that makes funding this disease a priority.
Kennedy’s Disease Knows No Boundaries...
It is passed on from generation to generation in families worldwide. Males generally inherit the disease symptoms and females are the carriers. The defect is in the ‘X’ Chromosome that makes testosterone almost a poison to his body.
What is Kennedy's Disease?
Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50. However, onset has also been reported as early as in the teens and as late as the 60s.
|Tissue Donation Guide|
Doctors, researchers, and scientists have long recognized the benefit of human tissue to further their research. Kennedy's Disease research is no different. In response to this need, the Kennedy's Disease Association (KDA) is pleased to announce the creation of a Tissue Donation Program for individuals with Kennedy's Disease who wish to donate their tissue. This program is similar to an organ donation program, but is different because of the formalities required and the specific use for the tissue.
Please Note: Pre-planning is important. If you wish to be a donor, certain paperwork must be signed and arrangements need to be made with the hospital and pathologist ahead of time.
The Tissue Donation Document can be downloaded in 2 different formats below;