Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

Kennedy’s Disease Knows No Boundaries...

Our Focus Remains on Research, Education and Support

The Kennedy’s Disease Association has worked to educate others about this lesser-known disease and to support clinical research efforts. We distributed information to more than 10,000 neurologists to help them recognize clinical signs and symptoms of Kennedy’s Disease.

Will my child be born with this DNA defect?

It takes an enormous amount of money to fund research…more than any of us can afford alone, but together, we are capable of great accomplishments. We are searching for available foundation grants, but the process is lengthy. We need researchers to continue their work, and it is only the KDA that makes funding this disease a priority.

Kennedy’s Disease Knows No Boundaries...

It is passed on from generation to generation in families worldwide. Males generally inherit the disease symptoms and females are the carriers. The defect is in the ‘X’ Chromosome that makes testosterone almost a poison to his body.

What is Kennedy's Disease?

Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50. However, onset has also been reported as early as in the teens and as late as the 60s.

2008 KDA News

NOTE: NEEDS LINKS

12/17/08 - Conference Highlights Mike Goynes has put together a nice summary of what took place at the 2008 KDA Conference. You can read about what took place at the KDA Forum.
11/03/08 - Distance Challenge Fundraiser Ed Meyertholen is on the run again to raise research funds for the KDA.
8/27/08 - Use Goodsearch to raise research funds for the KDA - I am sure that most of you use the internet to search for many things each day as I do myself. There is a new Web search engine that will pay the KDA for people to do a search using Goodsearch and it is very simple to do. All you have to do is go to following link www.goodsearch.com and on the screen where it asks you "Who do you Goodsearch for?" type in Kennedys Disease Association and it will find the KDA as a listed charity. Next step - Below that box select Add Goodsearch to your IE, FIrefox or MAC toolbar. this will install and add a small toolbar to your web browser and that is all there is to it. The next time you want to search for something on the internet you can use it and at the same time raise funds for the KDA. This is a very easy way to help the KDA and the more people we get to do this the more funds we raise. Thank you for your consideration.
8/13/08 - The 2008 Kennedy's Disease Association Conference is scheduled for November 19-21, 2008 at the BWI Airport Marriot Hotel, Baltimore MD.
7/23/08 - Take a look at the new KDA Calendar. On the KDA main page you will see a green button like this It will take you there to see current and upcoming events with links on the calendar to take you to more information.
5/13/08 - The KDA has a new chat room. If you use chat you will need to re-register in order to use the new room.
4/11/08 - 2008 research grant applications are now being accepted.
1/17/08 - The Kennedy's Disease Association is committed to promoting medical research to find a treatment and possibly a cure for Kennedy's Disease. Thanks to the generous donations of so many this past year, the KDA’s board of directors has approved the funding of $50,000 in research grants. Applications were accepted through September of 2007. The Scientific Review Board with the assistance of other researchers reviewed the proposals and recommended the finalists.