WHATS NEW ON THE KDA SITE -
Archive of 2006
12/31/06
New Chat
Transcript's Posted to Web Site
The last
chat transcript's has been added to
the web site.
Click Here to go to the
transcripts page
12/11/06
A new KDA XPress Fall 2006
has been added to the web site.
Click
here to go to the KDA Xpress
Page
11/30//06
Stem Cell's Treat Muscle Disease.
Read the
full story here
Administration of testosterone
results in reversible
deterioration in Kennedy’s disease
Case Report - Using an Epidural
Anesthesia during surgery for
patient's with KD
11/21//06
A
brief history of the KDA has been
posted on the website.
Click here
to go to the page and look for the
link called "The
History of the KDA"
A new
Mouth Exercise
has been added.
Click here to go to the
exercise page.
11/13//06
Interesting Article - Fall more
likely in men with low
Testosterone levels
(click here)
09/16//06
Muscle pathology in mice
with Kennedy's Disease Report
The results of a University of
Michigan research study that
is related to Kennedy's Disease.
The research project was partially
funded by the KDA through the
generous donations of our
associates, their family, and
friends.Click here to read the report
KD
Memorial page updated
2 of our
KD friends have been added to the
memorial page. They will be
dearly missed.
Click
here to go to the Memorial page
06/10//06
KD Smart
Exercise Guide
A Smart Exercise Guide for KD by
Bruce Gaughran has been posted to
the web site.
Click here to go
to the page with the guide.
02/20/06 Tissue Donation Program Doctors, researchers, and scientists have long recognized the benefit of human tissue to further their research. Kennedy's Disease research is no different. In response to this need, the Kennedy's Disease Association (KDA) is pleased to announce the creation of a Tissue Donation Program for individuals with Kennedy's Disease who wish to donate their tissue. This program is similar to an organ donation program, but is different because of the formalities required and the specific use for the tissue. Tissue will be stored at a KDA approved tissue storage facility and will be provided for biochemical and genetic studies. Tissue samples and results of clinical testing will be made available to qualified scientists only after their research proposal is reviewed and approved by the KDA Scientific Review Board (SRB) and Board of Directors. The KDA is hopeful that these studies will lead to advances in the diagnosis, treatment, and eventual cure of Kennedy's Disease. Since any donation decision affects others, we recommend that you discuss it with your family so that they will understand and support your decision. If you are interested in donating tissue for Kennedy's Disease research, please review the attached document that outlines the program and includes the forms needed to make a tissue donation. Questions should be emailed to info@kennedysdisease.org. The Tissue Donation Document can be downloaded in 2 different formats below; MS Word Format PDF Format (Adobe Acrobat Reader Required) New Chat Transcripts Posted to Web Site The past chat transcript has been added to the web site. Special Guest - J. Paul Taylor, M.D., Ph.D. Click Here to go to the transcripts page 02/06/06 An upcoming Clinical Trial for Men with Kennedy's Disease is about to be launched. Please Click Here to read more about it. 1/21/06 New Chat Transcript Posted The past chat transcript has been added to the web site. Special Guest - Nicholas Di Prospero, M.D., Ph.D. Click Here to go to the transcripts page 01/02/06 KDA Supplies Emergency Funding of Kennedy's Disease Research On December 21, the KDA awarded a $25,000 grant to J. Paul Taylor, MD, PhD, at the University of Pennsylvania. The grant will help support Dr. Taylor and his team's research using the Drosophila melanogaster (fruitfly) model system to investigate the molecular pathogenesis of Spinal and Bulbar Muscular Atrophy (aka Kennedy's Disease). To read more about this research, click on the following two links: http://www.kennedysdisease.org/fruitfly.html; http://www.kennedysdisease.org/fruitfly_update.html. In response to the KDA's notice of the possible funding of two grants in 2006, we received the following email from Dr. Taylor referencing the status of his current Kennedy's Disease research. "... This (grant) could be a life saver . We have made great strides with our work, in fact we have a manuscript on our Kennedy's Disease work that has received good reviews. This work was largely funded by (the) KDA and I have been anxiously waiting for this work to be accepted for publication before alerting you. I have also had two graduate students join my lab who are doing their Ph.D. thesis work on Kennedy's Disease.
However, I am greatly concerned about the NIH funding climate. I submitted an R01 application ... and it scored well (13th percentile which is extremely good for a first submission). However, because of NIH budget constraints, the pay line was just cut to 12% and I learned this past week that we will not be funded. I am resubmitting my application ... and trying to be as optimistic as possible, but if I am not funded, I am concerned that my lab could close. ..." To learn more about the NIH funding situation and its impact on research projects, please read the November 15, 2005, Philadelphia Inquirer Newspaper article: http://www.philly.com/mld/inquirer/13086779.htm. In November 2003, the KDA initially awarded Dr. Taylor a grant for this research. After reviewing the current situation and consulting with members of our Scientific Review Board, the KDA Board of Directors felt the need to continue funding Dr. Taylor's research while he applies for additional funding from the NIH. In closing, I want to thank you, our Associates, for your generosity and support of Kennedy's Disease research. Without it, we could have never supported this research project. Working together, we can make a difference.
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