Kennedy's Disease Association

ABOUT KENNEDY'S DISEASE • What's New

WHATS NEW ON THE KDA SITE

12/01/04

Whole-body Gene Therapy Developed for Muscular Dystrophy

"Proof of principle" that delivering new genes to all muscles is possible Click Here

11/05/04

The past 2 chat transcripts has been added to the web site. (Post KDA Conference discussion) Click Here to go to the transcripts page

The latest edition of Coakley's Corner has been added. Click on the link below to read it.

Proper Perspectives on Life

08/02/04

A Warning for anyone with Kennedy's Disease that may be having surgery should read prior to having the operation COPING WITH ANESTHESIA Neuromuscular Disorders Pose Special Risks.

The past 3 chat transcripts has been added to the web site. Click Here to go to the transcripts page

06/10/04

KDA funded research grant update - The KDA funded a grant to J. Paul Taylor, MD PhD at University of Pennsylvania for $25,000 in November 2003 for a Drosophila melanogaster (fruitfly) model system to investigate the molecular pathogenesis of Spinal and Bulbar Muscular Atrophy. Paul has provided us with an update as to how their research is coming along. Please Click Here to read his update

05/19/04

The past 2 chat transcripts has been added to the web site. Click Here to go to the transcripts page

04/26/04

A recent MDA-supported study found that a deficiency of a protein called vascular endothelial growth factor (VEGF) is likely to be a major contributor to spinal-bulbar muscular atrophy Click here for full article

04/06/04

John Coakley Sr. has sent us a new addition to Coakley's Corner. Please Click Here to read it.

The past chat transcript has been added to the web site, (Special Guest Speaker Dr. Andrew Lieberman M.D. Ph.D.). Click Here to go to the transcripts page

03/20/04

The past chat transcript has been added to the web site, (Regional Chapters). Click Here to go to the transcripts page

02/14/04

A new KD Personal Story of Paul France from England has been added to the web site. Paul is working with the KDA and has started up a UK chapter. Click here to go to his personal story. To see his SBMA UK web site Click Here.

The past chat transcript from the new KDA chat room has been added to the web site. Click Here to go to the transcripts page

02/14/04

Regional Chapters - Volunteers Needed- If you would like to form or join a regional chapter of the KDA Click Here

Awarded Grant Updates - to see the latest in what is happening with grants awarded by the KDA to researchers Click Here

The past chat transcript has been added to the web site. Click Here to go to the transcripts page.

01/02/04 Articles regarding Kennedy's Disease research posted; click on the links below:

Spinal & Bulbar Muscular Atrophy Clinical Features and Pathogenesis

Leuprorelin Rescues Polyglutamine-Dependent Phenotypes in Transgenic Mouse model of Spinal & Bulbar Muscular Atrophy