11/24/03 A new personal KD story from Jerry Hamblen has been added to the web site. Click Here to go to his story.

11/19/03 Coakley's Corner has just added another laughter installment called "Falling down on the job"  Click Here to visit Coakley's Corner.

11/16/03 Bruce Gaughran has taken the time to write up a detailed document outlining the process of the Social Security Disability application process.  It is well worth the read if you are thinking of, or beginning this process.  Click here to go directly to the page with the downloadable document.

11/15/03 The 2003 KDA conference was a great success.  lot's of new research information was shared and many new friendships were made.  We are in the process of putting together some of the information from the conference to post on the web site and also we will be posting photo's on the website.  We have a volunteer that is going to transcribe the doctors presentations from audio tape to text for the KDA so please allow a bit of time for this to be posted because a lot of information was presented. 

10/28/03 Dr. David H. Gershuni has written up a article for the KDA on Safe Mobility and the use of a special leg brace that he had made to assist him in stability when walking around. Please follow this link to his article. Safe Mobility

10/27/03 The past 2 chat transcripts has been added to the web site. Social Security chat and also What Challenges do you face. Click Here to go to the transcripts page.

07/28/03 The past 4 chat transcripts have been added to the web site. Click Here to go to the transcripts page.

04/20/03 Compounds like Congo Red might be used to treat SBMA someday. Click here to go to the research page.

The past chat transcript has been added to the web site. Click Here to go to the transcripts page.

04/11/03 Possible drug treatment for KD on the horizon. Click here to go to the research page.

DNA Sticky Tape procedure may be able to correct some genetic disorders. Click here to go to the Medical Articles page.

The past 3 chat transcripts have been added to the web site. Click Here to go to the transcripts page.

Terry Waite has updated his personal story with a progress report. Click Here

03/11/03 J. Murray Williams has joined the KDA Board of Directors in the Secretary position:  Click Here.

Coakley's Corner has a new edition with a look at living with KD and the snow:        Click Here.

02/26/03 The last chat transcript has been added to the Web site.  Click Here.

02/16/03 Some fantastic brand new garden items were donated to the KDA to help raise funds. The KDA is using Ebay to auction off these items.  100% of the proceeds from the sale of these items will go towards research/support so bid away. Click here to see the items that are up for auction. The auction will end on Feb 23, 2003

02/16/03 The last 2 chat transcripts has been added to the Web site.  Click Here.

01/23/03 A new personal story has been added to the site. Murray Williams has sent us his story with photos. Click Here to read his story.

01/13/03 Recent studies find that Kennedy's Disease is an adolescent-onset disease.  Click Here.

01/04/03 New Funding Opportunities for Kennedy's Disease Research, Letters of Intent due by March 15, 2003.  Click Here for more information.

Ed Meyertholen running the Motorola Marathon in Austin, Texas - February 16, 2003 to help find a cure for Kennedy's Disease.  Click Here.