Kennedy's Disease Association

ABOUT KENNEDY'S DISEASE • What's New

WHATS NEW ON THE KDA SITE

4/11/08

2008 research grant applications are now being accepted. Please click here for details, Also past grants awarded are listed on this page.

4/8/08

The latest edition of Coakley's Corner (Impacts) has been added to the site Click Here to go to Coakley's Corner page.

A lower back exercise guide has been added to the Exercise page Click Here to see it. Also read the disclaimer.

The last chat transcript has been added. Click Here to go to the transcripts page.

3/05/08

A list of KD Associates & Doctors/Researchers has been added. Click Here

1/17/08

The Kennedy's Disease Association is committed to promoting medical research to find a treatment and possibly a cure for Kennedy's Disease. Thanks to the generous donations of so many this past year, the KDA’s board of directors has approved the funding of $50,000 in research grants. Applications were accepted through September of 2007. The Scientific Review Board with the assistance of other researchers reviewed the proposals and recommended the finalists Click Here to read more about the grants

12/15/07

The KDA e-Xpress Winter newsletter is now online and available for download. Please click here to go to the page for downloading.

The 2007 KDA Conference Hi-Lites web page with pictures is now available for viewing. Please click here to go to the page.

11/27/07

Personal Stories 1 New 1 Updated

We have 1 new personal story (Roger Stoufer) and 1 updated story (Ted Abbott) Click Here

11/19/07

Current Fundraising Challenges

Ed Meyertholen and Sean Blasko are participating in the Runtex Distance challenge, a series of seven races starting in September 2007 and culminating in February 2008 with the Austin Marathon. Total distance covered will be 87 miles! Click here to read more and support this fundraising event.

Mike and Paula Goynes have been walking & rolling for several months now and plan to continue doing so indefinitely. Someday Mike hopes to be able to once again walk with Paula but, for now, I will keep rolling beside her in my power chair or golf cart. She is walking between 10,000 and 20,000 steps a day! Click here to read more and support this fundraising event.

10/5/07

Recycle that old outdated Cell Phone and help raise funds for the KDA. The KDA has partnered with www.WireFly.org to allow people to trade in or recycle that old cell phone that you have in that drawer or closet. Find out how here..

7/26/07

The KDA has added a detailed KD Questions & Answers PDF file to the web site

We have added a KDA Research Grants / Awards page to the web site. There you can view previous grants that the KDA has awarded. If you are a research lab you can also get information on applying for a research grant.

5/24/07

Where does the money go

A report on where money the KDA receives goes. Click Here

5/19/07

KD Smart Exercise Guide

The KD Smart Exercise Guide has been updated with a few new exercises that you can try.

Click Here to go to the exercise page.

3/27/07

Two interesting papers, well, interesting to those with KD, were published during the past several weeks. Read more here

The first paper is Soluble Androgen Receptor Oligomers Underlie Pathology in a Mouse Model of Spinobulbar Muscular Atrophy.by Li, Chevalier-Larsen, Merry and Diamond.

A second paper recently published on KD, well actually, it is about Huntington’s Disease, is “Ubiquitin-Interacting Motifs Inhibit Aggregation of Poly Q-Expanded Huntingtin” by Miller, Scappini and O’Bryan

Coakley's Corner

A new edition of Coakley's Corner has been added - "A Long Time" Click here to go to Coakley's Corner

KDA Memorial Page

If you have a loved one with Kennedy's Disease who has passed away and would like to have them added to the memorial page e-mail us at info@kennedysdisease.org with the information and a picture. If you do not have a picture on your computer to send via e-mail you can mail it to us via regular US mail at the address at the top of this page and we can scan it and return the original to you.

The last 2 chat transcript has been added. Click Here to go to the transcripts page.

2/20/07

KDA Funded Research Update

Chawnshang Chang, Ph.D. and a team of researchers at the University of Rochester Medical Center have published the attached news release concerning their research that could potentially lead to a treatment for Kennedy's Disease. The article was published in the March 6 issue of the journal Nature Medicine. Read more here

Thanks to the generous support of our associates, Dr. Chang received a $25,000 research grant from the Kennedy's Disease Association last fall.

2/22/07

The KDA 2006 Annual Report has been completed. Click here to download and read the report (adobe Reader Required)

1/8/07

Hilary Walklett has updated his personal story, Click here to read it.

What's New Archives