KDA NEWS ARCHIVE 2005
10/27/05-
The KDA Becomes a Member of NORD -
The National
Organization for Rare Disorders (NORD), a 501(c)3
organization, is a unique federation of voluntary
health organizations dedicated to helping people
with rare "orphan" diseases and assisting the
organizations that serve them. NORD is committed
to the identification, treatment, and cure of rare
disorders through programs of education, advocacy,
research, and service.
Click Here
to see the NORD web site.
09/09/05-
The KDA Announces the New Message Forums
We are please to
announce that the KDA has set up yet another way
to bring fellow KD individuals together and
communicate and share information with ease
Click Here to go
to the page with the forums link.
09/09/05-
KDA Annual Report
The Kennedy's
Disease 2004 Annual Report is available for
viewing. Please Click
Here to go to the page with the report.
08/23/05-
New KDA Board Positions
The Kennedy's
Disease Association Board of Directors announce
the following changes effective August 20, 2005.
Susanne Waite
has stepped down from the positions of Executive
Director and President. Because of her
long-standing involvement and dedication to the
KDA, Susanne was named 'President Emerita' and
given an honorary position for life on the
board. Board member positions have changed.
Click Here
to see the changes.
08/02/05-
Purchase Holiday Cards to help the KDA
Click Here
08/01/05-
KDA Questionnaire Results-
2002 study tallied and report made available
Click Here
07/31/05-
The KDA welcomes 43new KD associates year-to-date 2005.
04/01/05-
Looking for answers? Try posting your questions in the "Discussion
Forum" and others may have the answer for you!
Click Here
02/09/05-
KDA E-Xpress Archives -
Current & Previous editions of the KDA E-Xpress
Newsletter are now Online.
Click Here to go
to the page.
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