Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

"Surfing the internet I found the KDA and for me it was like an island for a castaway."

Our Focus Remains on Research, Education and Support

The Kennedy’s Disease Association has worked to educate others about this lesser-known disease and to support clinical research efforts. We distributed information to more than 10,000 neurologists to help them recognize clinical signs and symptoms of Kennedy’s Disease.

Will my child be born with this DNA defect?

It takes an enormous amount of money to fund research…more than any of us can afford alone, but together, we are capable of great accomplishments. We are searching for available foundation grants, but the process is lengthy. We need researchers to continue their work, and it is only the KDA that makes funding this disease a priority.

Kennedy’s Disease Knows No Boundaries...

It is passed on from generation to generation in families worldwide. Males generally inherit the disease symptoms and females are the carriers. The defect is in the ‘X’ Chromosome that makes testosterone almost a poison to his body.

What is Kennedy's Disease?

Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50. However, onset has also been reported as early as in the teens and as late as the 60s.

Privacy Statement

This is the official Web Site of the Kennedy's Disease Association, Inc.

Our mailing address is

P.O. Box 1105
Coarsegold, CA 93614-1105.

We can also be reached by email at This e-mail address is being protected from spambots. You need JavaScript enabled to view it , or by phone at (559) 658-5950.

The KDA has created this privacy statement in order to demonstrate our firm commitment to an individual's privacy when visiting our Web Site. The following discloses any information gathering and dissemination practices for this Web Site.

Information Collected

When you visit our Web site, the KDA's server does not automatically capture your domain name or e-mail address.
Cookies Our Site does not use cookies except to save your forum and chat room log-on and password. This information is only collect so you don't have to re-enter the information each time that you use these services.

Registration Forms

To join the KDA, our site's registration form requires users to give us contact information (their first and last name, email address, mailing address, and postal code). Contact information from the registration form is used to advise of new on-line material, provide updates about research efforts, trials, as well as potential treatments and cures, and keep registered associates up to date with the latest KDA news. No information is shared with anyone outside of KDA's management without the express consent of the individual.

If you do not wish to receive future e-mail communication from the KDA, you can send an email message to This e-mail address is being protected from spambots. You need JavaScript enabled to view it with the word "Remove" in the subject line and we will remove your name from our distribution list.

External Links

This site contains links to other sites. Even though the Kennedy's Disease Association carefully screens all links before adding them to our web site, we cannot be responsible for the privacy practices or the content of other Web sites.

Public Forums and Chat Rooms

This site makes a public forum and chat room available to its users. Please remember that any information that is disclosed in these and other public areas become public information and you should exercise caution when deciding to disclose any personal information.

Security

This site has security measures in place to protect the loss, misuse, and alteration of the information under our control. While measures are in place, please be aware that nothing is 100% secure.