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"I am amazed at the wonderful support that the KDA gives to the men and families affected by KD. The progress made by current research on animal models of KD and by therapeutic trials gives reason to hope that the disease that I described 40 years ago will finally be conquered." -- William R. Kennedy, M.D.
WARNING Anesthesia & Surgery for KD individuals
Kennedy's Disease Association, Inc., Established in August 2000. |
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The KDA is pleased to announce the dates of the 2010 KDA Conference. The dates are as follows; Nov 10th, 11th & 12th. The location is the Holiday Inn - Bayside, San Diego, California. Click here to see more information on the conference page. 12
Ed Meyertholen is at it again, He is running to raise funds for the KDA. He is running the San Antonio Rock and Roll Marathon. Please help us by clicking here and sponsoring his run. Ed really pushes himself to the limit in these runs and lets show him some support. Living with Kennedy's Disease Blog - Bruce Gaughran has created a blog focused on Kennedy's Disease. Many posts (some serious and others humorous) are personal experiences, stories and thoughts about living with Kennedy's Disease. Interspersed throughout the posts are articles on Kennedy's Disease including tips on applying for Social Security-Disability, recent research, profiles of young researchers, exercise programs, tips on using mobility devices, etc. If you have a chance, take a look and see if anything sparks an interest. http://kennedysdisease.blogspot.com KDA Fall Newsletter The KDA fall 2009 newsletter is now available for download. You will need the adobe viewer. Please Click here to download We have added a new vendor to our shopping page, Avon Products. A portion of the sales will go towards research EMAIL TEST IN PROGRESS You may have received an e-mail from the KDA stating to open an e-mail and click on a link to go to the KDA web site. THIS E-MAIL IS A REAL KDA E-MAIL and needs you open it and follow the instructions and click the link in order for you to be verified as a KDA legitimate e-mail addressee.. Otherwise our new e-mail delivery system may delete your address thinking that the e-mail address is invalid because it was never delivered and read. Thank you. Terry Waite Sean Blasko has been training for the 2009 Ironman competition. He is doing this to raise research funds for the KDA. Please show your support to Sean and the KDA by Clicking this link and helping us meet our goal. thank you The KDA is pleased to announce that 3 Young Investigator awards of $500 each have been given by the Kennedy's Disease Association to Heather Montie, Jill Yersak and Jamie OHansen. These awards are to be applied towards their registrations at the upcoming GRC (Gordon Research Conference) on CAG Triplet Repeat Disorders. Published Paper on the leuprorelin study Neuropathology and Therapeutic Intervention in Spinal and Bulbar Muscular Atrophy 5/8/09 2009 Research Grant applications are now being accepted. Please Click Here to go to the research grants page.
The KDA's latest fundraising effort is underway. "You
are not alone in your quest for a treatment and
cure"
Click here to view the letter
The KDA welcomes our newest KDA Board of Directors member Lou Tudor. Please see this link for a short bio for Lou.
The last chat transcript where special guest Kenneth Fischbeck NIH/NINDS gives us the latest research updates has been added. Click Here to go to the transcripts page
As of Dec 31, 2008 the KDA has granted a total of $ 225,000 in research grants. This would not have been possible without your continued support. Thank you Click here for details 01/09/09Kennedy's Disease 'Smart' Exercise Guide - Part II. Click here to go to the Exercise page for more details.. Researchers Explore Self-Defense in Nerve Cells for SBMA Click here to read more 12/17/08 Conference/Research Highlights Mike Goynes has put together a nice summary of what took place at the 2008 KDA Conference. You can read about what took place at the KDA Forums 9/1/082008 Helping Neighbors Fundraiser launched (please read) Click Here to find out more. 8/27/08Use Goodsearch to search the web and raise funds for the KDA. Click Here to read more. 8/13/08The 2008 Kennedy's Disease Association Conference is scheduled for November 19-21, 2008 at the BWI Airport Marriot Hotel, Baltimore MD. CLICK HERE to go to the conference's page for detailed info. 7/22/08 Take a look at the new KDA Calendar. The green button to the left will take you there to see current and upcoming events with links on the calendar to take you to more information. 5/13/08 The KDA has a new chat room. If you use chat you will need to re-register in order to use the new room. Click Here to go to the chat schedule page and look for the ENTER CHAT button to register. 4/5/08 Don't forget to check what's new on the website by clicking on the link above the Google search box at the top of this page. 3/5/08 A list of KD Associates & Doctors/Researchers has been added. Click Here 2/22/08The 2007 KDA Annual Report is available for viewing. Please Click Here to open the Adobe PDF file. 1/17/08 The Kennedy's Disease Association is committed to promoting medical research to find a treatment and possibly a cure for Kennedy's Disease. Thanks to the generous donations of so many this past year, the KDA’s board of directors has approved the funding of $50,000 in research grants. Applications were accepted through September of 2007. The Scientific Review Board with the assistance of other researchers reviewed the proposals and recommended the finalists Click Here to read more about the grants 1/15/08 The KDA has added a 2nd option for making Secure credit card donations to the KDA. "Google Checkout" is a new way for non-profit corporations to accept donations. During year 2008 there is no processing fee for transactions so the KDA gets 100% of all monies donated. Click on the Blue "Donate to the KDA" button to the left or Click Here to see the new Google checkout option. Help the KDA by shopping through our Web site. Click on the Green button to the left and take a look! KDA Printable Brochure
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