Send Flowers? Buy
them here and the KDA receives 15% of the
purchase price.
Benefit Cruise
Book a cruise though this travel
company and the KDA gets 25% of
the profits
KDA E-Xpress Newsletter page
1
/27/10
The KDA is pleased to announce the dates of the
2010 KDA Conference. The dates are as follows;
Nov 10th, 11th & 12th. The location is the Holiday
Inn - Bayside, San Diego, California.
Click here to see
more information on the conference page.
12
/9/09
The
MDA has issued
a letter stating that due to the current economy,
that as of
January 1st 2010 they will be stopping assistance
in the purchase of durable medical equipment, also
transportation to MDA clinics. Please
click here to
read the letter. (requires Adobe reader)
The
letter may take a couple of
minutes to load if you are on
dial-up so please be patient.
12
/01//09
The KDA Winter 2009
newsletter is now available for download. You will
need the adobe viewer. Please
Click here
to download
10
/28//09
Therapy Investigated for ALS May
Find New Role in Kennedy's
...
IGF1 might work better and more
specifically in Kennedy's disease
than in ALS says ...
Kennedy's disease also called
spinal and bulbar muscular
atrophy SBMA.
10
/19//09
Research Article -
Rescuing SBMA-Affected Muscles - Maria Pennuto
9/16//09
Ed Meyertholen is at it again, He is running to
raise funds for the KDA. He is
running the San Antonio Rock and Roll Marathon.
Please help us by
clicking here and sponsoring his run. Ed
really pushes himself to the limit in these runs
and lets show him some support.
9/10/09
Living with
Kennedy's Disease Blog
- Bruce Gaughran has
created a blog focused on Kennedy's Disease. Many
posts (some serious and others humorous) are
personal experiences, stories and thoughts about
living with Kennedy's Disease. Interspersed
throughout the posts are articles on Kennedy's
Disease including tips on applying for Social
Security-Disability, recent research, profiles of
young researchers, exercise programs, tips on
using mobility devices, etc. If you have a
chance, take a look and see if anything sparks an
interest.
http://kennedysdisease.blogspot.com
9/3/09
KDA Fall
Newsletter
The KDA fall 2009
newsletter is now available for download. You will
need the adobe viewer. Please
Click here
to download
We have added a new
vendor to our
shopping page, Avon Products. A portion of the
sales will go towards research
8/10/09
EMAIL TEST IN
PROGRESS
You may have received
an e-mail from the KDA stating to open an e-mail
and click on a link to go to the KDA web site.
THIS E-MAIL IS A REAL KDA
E-MAIL and needs you open it and follow the
instructions and click the link in order for you
to be verified as a KDA legitimate e-mail
addressee.. Otherwise our new e-mail delivery
system may delete your address thinking that the
e-mail address is invalid because it was never
delivered and read.
Thank you.
Terry Waite
6/1/09
Sean
Blasko has been training for the 2009 Ironman
competition. He is doing this to raise
research funds for the KDA. Please show your
support to Sean and the KDA by
Clicking this link and helping us meet our
goal. thank you
5/23/09
The KDA is pleased to
announce that 3 Young Investigator awards of $500
each have been given by the Kennedy's Disease
Association to Heather Montie, Jill Yersak and
Jamie OHansen. These awards are to be applied
towards their registrations at the upcoming GRC (Gordon
Research Conference) on
CAG Triplet Repeat Disorders.
Published Paper on the
leuprorelin study
Neuropathology and Therapeutic Intervention in
Spinal and Bulbar Muscular Atrophy
5/8/09
2009 Research Grant
applications are now being accepted. Please Click Here
to go to the research grants page.
05/4/09
The KDA XPress Spring/Summer 2009 Newsletter is
now available for viewing
Click here to view. (Adobe
PDF reader required)
The KDA's latest fundraising effort is underway. "You
are not alone in your quest for a treatment and
cure"
Click here to view the letter![]()
04/21/09
The KDA welcomes our newest KDA Board of
Directors member Lou Tudor. Please
see this link
for a short bio for Lou.
03/09/09
The last chat transcript where
special guest Kenneth Fischbeck NIH/NINDS gives us
the latest research updates has been
added.
Click Here to go to the
transcripts page
01/09/09
The 2008 KDA Annual
Report is available for viewing. Please
Click
Here to open the Adobe PDF file.
As of Dec 31, 2008 the KDA has granted a total
of $ 225,000 in research grants. This
would not have been possible without your
continued support. Thank you
Click here for
details
01/09/09
Kennedy's Disease 'Smart' Exercise Guide -
Part II.
Click here to go to the Exercise page for more
details..
Researchers Explore Self-Defense in Nerve
Cells for SBMA
Click here to read more
12/17/08
Conference/Research
Highlights
Mike Goynes has put
together a nice summary of what took place at
the 2008 KDA Conference. You can read about what
took place at the
KDA Forums
9/1/08
2008 Helping Neighbors
Fundraiser launched (please read)
Click Here to
find out more.
8/27/08
Use Goodsearch to
search the web and raise funds for the KDA.
Click Here to
read more.
8/13/08
The 2008 Kennedy's Disease
Association Conference is
scheduled for November
19-21, 2008 at the BWI
Airport Marriot Hotel, Baltimore
MD. CLICK
HERE to go to the conference's page for
detailed info.
7/22/08
Take a look at the new KDA Calendar.
The green button to the left will take you there
to see current and upcoming events with links on
the calendar to take you to more information.
5/13/08
The KDA has a new
chat room. If you use chat you will need to
re-register in order to use the new room.
Click Here to go to the chat schedule page
and look for the ENTER CHAT button to
register.
4/5/08
Don't forget to check
what's new on the website by clicking on the link
above the Google search box at the top of this
page.
3/5/08
A list of KD
Associates & Doctors/Researchers has been added.
Click Here
2/22/08
The 2007 KDA Annual
Report is available for viewing. Please
Click
Here to open the Adobe PDF file.
1/17/08
The Kennedy's Disease
Association is committed to promoting medical
research to find a treatment and possibly a cure
for Kennedy's Disease.
Thanks to the
generous donations of so many this past year, the KDA’s board of directors has approved the funding
of $50,000 in research grants. Applications were
accepted through September of 2007. The
Scientific Review Board with the assistance of
other researchers reviewed the proposals and
recommended the finalists
Click Here to read
more about the grants
1/15/08
The KDA has
added a 2nd option for making Secure credit card
donations to the KDA. "Google Checkout" is a new
way for non-profit corporations to accept
donations. During year 2008 there is no
processing fee for transactions so the KDA gets
100% of all monies donated. Click on the
Blue "Donate to
the KDA" button to the left or
Click Here to see the
new Google checkout option.
Help the KDA by
shopping through our Web site. Click on the
Green button to the
left and take a look!
KDA Printable
Brochure