Kennedy's Disease Association

Send Flowers? Buy them here and the KDA receives 15% of the purchase price.

Benefit Cruise

Book a cruise though this travel company and the KDA gets 25% of the profits

KDA E-Xpress Newsletter page

03/02/10

The KDA has nice new Polo Shirts for sale. To see the new shirts and get order information Click here. Quantities are limited

03/01/10

The 2009 KDA Annual Report is available Please Click Here to open the Adobe PDF file.

2/17/10

Beth DuVall will be running a 1/2 marathon this May. She has graciously agreed to run in honor of the KDA. Please show your support and make a pledge towards her goal. Click here to read her personal story and make a pledge.

The KDA awarded 3 new research grants in 2009 totaling $55,000. This brings the KDA up to a grand total of 11 grants funded totaling $280,000 since the conception of the KDA .Click here to read more about the grants.

1/27/10

The KDA is pleased to announce the dates of the 2010 KDA Conference. The dates are as follows; Nov 10th, 11th & 12th. The location is the Holiday Inn - Bayside, San Diego, California. Click here to see more information on the conference page.

12/9/09

The MDA has issued a letter stating that due to the current economy, that as of January 1st 2010 they will be stopping assistance in the purchase of durable medical equipment, also transportation to MDA clinics. Please click here to read the letter. (requires Adobe reader) The letter may take a couple of minutes to load if you are on dial-up so please be patient.

12/01//09

The KDA Winter 2009 newsletter is now available for download. You will need the adobe viewer. Please Click here to download

10/28//09

Therapy Investigated for ALS May Find New Role in Kennedy's ...
IGF1 might work better and more specifically in Kennedy's disease than in ALS says ... Kennedy's disease also called spinal and bulbar muscular atrophy SBMA.

10/19//09

Research Article - Rescuing SBMA-Affected Muscles - Maria Pennuto

9/10/09

Living with Kennedy's Disease Blog - Bruce Gaughran has created a blog focused on Kennedy's Disease. Many posts (some serious and others humorous) are personal experiences, stories and thoughts about living with Kennedy's Disease. Interspersed throughout the posts are articles on Kennedy's Disease including tips on applying for Social Security-Disability, recent research, profiles of young researchers, exercise programs, tips on using mobility devices, etc. If you have a chance, take a look and see if anything sparks an interest. http://kennedysdisease.blogspot.com

9/3/09

KDA Fall Newsletter

The KDA fall 2009 newsletter is now available for download. You will need the adobe viewer. Please Click here to download

We have added a new vendor to our shopping page, Avon Products. A portion of the sales will go towards research

5/23/09

The KDA is pleased to announce that 3 Young Investigator awards of $500 each have been given by the Kennedy's Disease Association to Heather Montie, Jill Yersak and Jamie OHansen. These awards are to be applied towards their registrations at the upcoming GRC (Gordon Research Conference) on CAG Triplet Repeat Disorders.

Published Paper on the leuprorelin study Neuropathology and Therapeutic Intervention in Spinal and Bulbar Muscular Atrophy

5/8/09

2009 Research Grant applications are now being accepted. Please Click Here to go to the research grants page.

05/4/09

The KDA XPress Spring/Summer 2009 Newsletter is now available for viewing Click here to view. (Adobe PDF reader required)

The KDA's latest fundraising effort is underway. "You are not alone in your quest for a treatment and cure" Click here to view the letter

04/21/09

The KDA welcomes our newest KDA Board of Directors member Lou Tudor. Please see this link for a short bio for Lou.

03/09/09

The last chat transcript where special guest Kenneth Fischbeck NIH/NINDS gives us the latest research updates has been added. Click Here to go to the transcripts page

01/09/09

The 2008 KDA Annual Report is available for viewing. Please Click Here to open the Adobe PDF file.

As of Dec 31, 2008 the KDA has granted a total of $ 225,000 in research grants. This would not have been possible without your continued support. Thank you Click here for details

01/09/09

Kennedy's Disease 'Smart' Exercise Guide - Part II. Click here to go to the Exercise page for more details..

Researchers Explore Self-Defense in Nerve Cells for SBMA Click here to read more

Help the KDA by shopping through our Web site. Click on the Green button to the left and take a look!

KDA Printable Brochure