Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

"Surfing the internet I found the KDA and for me it was like an island for a castaway."

Our Focus Remains on Research, Education and Support

The Kennedy’s Disease Association has worked to educate others about this lesser-known disease and to support clinical research efforts. We distributed information to more than 10,000 neurologists to help them recognize clinical signs and symptoms of Kennedy’s Disease.

Will my child be born with this DNA defect?

It takes an enormous amount of money to fund research…more than any of us can afford alone, but together, we are capable of great accomplishments. We are searching for available foundation grants, but the process is lengthy. We need researchers to continue their work, and it is only the KDA that makes funding this disease a priority.

Kennedy’s Disease Knows No Boundaries...

It is passed on from generation to generation in families worldwide. Males generally inherit the disease symptoms and females are the carriers. The defect is in the ‘X’ Chromosome that makes testosterone almost a poison to his body.

What is Kennedy's Disease?

Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50. However, onset has also been reported as early as in the teens and as late as the 60s.

Awareness Campaigns

Kennedy's Disease Brochures

research-genes The Kennedy's Disease Association has developed a comprehensive easy to read brochure on Kennedy's Disease. The brochure explains what is Kennedy's Disease, how it is contracted, how to join the KDA and much more. Many people have found this guide helpful and have given a copy to their doctor.

You can print the PDF brochure (*) by clicking on the links below, or, you can send an This e-mail address is being protected from spambots. You need JavaScript enabled to view it requesting that we mail you some brochures.

Brochure's Front Side - - - Brochure's Back Side

Mailers Were Sent To Neurologists

In the spring of 2005, over 10,000 neurologists received a cover letter and brochures from the KDA that included the following:

An explanation of Kennedy's Disease
How Kennedy's Disease is contracted
A list of symptoms that may be useful in diagnosing Kennedy's Disease
The possibility of a misdiagnosis of ALS unless a DNA test is given to the patient
What is the Kennedy's Disease Association?

Inform Others

The information is for your use. You may copy, paste, print or email these pages to your friends, family, coworkers or anyone else you would like to inform about Kennedy's Disease (Spinal Bulbar Muscular Atrophy) and the KDA. (Brochures, Educative Materials, Letters, etc. will be added over time.)

(*) The brochure was created in Adobe format so you can easily view it and print it. Print as many copies as you wish and distribute them freely. (You will need the adobe viewer to open it) If the file does not open automatically for you, you can download the viewer here.