Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

Kennedy’s Disease Knows No Boundaries...

Our Focus Remains on Research, Education and Support

The Kennedy’s Disease Association has worked to educate others about this lesser-known disease and to support clinical research efforts. We distributed information to more than 10,000 neurologists to help them recognize clinical signs and symptoms of Kennedy’s Disease.

Will my child be born with this DNA defect?

It takes an enormous amount of money to fund research…more than any of us can afford alone, but together, we are capable of great accomplishments. We are searching for available foundation grants, but the process is lengthy. We need researchers to continue their work, and it is only the KDA that makes funding this disease a priority.

Kennedy’s Disease Knows No Boundaries...

It is passed on from generation to generation in families worldwide. Males generally inherit the disease symptoms and females are the carriers. The defect is in the ‘X’ Chromosome that makes testosterone almost a poison to his body.

What is Kennedy's Disease?

Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50. However, onset has also been reported as early as in the teens and as late as the 60s.

Others Making a Difference

"Volunteers do not necessarily have the time;

they just have the heart."

(Elizabeth Andrew)

KDA
Our thanks goes out to all of you who are helping us find a cure for Kennedy's Disease

Those racing to help find a cure
Others who are finding ways to help
KDA business contributors

You Can Also Help By Donating Today

Those racing to help find a cure

Below are just some of the special people that have helped the KDA fund research grants and educational symposiums

May, 2011 - Beth DuVall is at it again this year. Last year, Beth raised $4,000 in donations for her "Running for a Cure" for the KDA (see article below). She is hoping to top that amount this year and is asking for everyone's help to get the word out. Please support Beth in her run that will take place in May. You can make a donation directly to the KDA, PO Box 1105, Coarsegold, CA 93614 or via the Razoo Website which will add your donation to Beth's page which shows if she is on track to meet her goal or not. http://www.razoo.com/story/Running-For-A-Cure-Part-Deux?1299045182

Ed Meyertholen ran in several marathons including the Boston Marathon, Motorola, and San Antonio. Read More	Beth DuVall has run two half-marathons, the latest in May 2010. Read More	Sean Blasko has participated in several triathlons, the latest was the Ironman Couer d'Alene. Read more


Devon Perry has ridden her bike in several races ... most recently to help the KDA. Read More	Dave Heraper ran a race in November, 2010. Dave ran the race two reasons: (1) to improve my own health, and, (2) to promote awareness and funding for the Kennedy's Disease Association. I'm running for those who can't... Read More	Tara & Erin Mills - Running Erin's 1st Mini-Triathlon - $1,000.00 Tara and Erin Mills met their goal of $1,000 in funds raised through sponsorships and a bake sale - Read More

Tom Goynes and Sandy Goynes - "Paddling for Kennedy's Disease"

Tom Goynes and his daughter, Sandy Goynes, are experienced Texas Water Safari veterans and they paddled again this year (2001) in this 260-mile long river adventure. However, this time, Tom and Sandy paddled for Kennedy's Disease. They secured pledges and donations for the Kennedy's Disease Association. Tom & Sandy Finished 16th out of 119 Boats with a finish time of 51 hrs 24 min. Read More

Others who are finding ways to help

April 2 thru 4, 2011 - Sean Blasko will hold a plant and tree sale to benefit Kennedy's Disease research during the community-wide yard sale in Austin, TX
May 15, 2011 - Carla and Stan Highe and family will sell 'KDA muscle shirts' at the Gilmore Car Museum "Dust Off" car show and swap meet. in Kalamazoo, MI
October 1, 2011 - Murray Williams, Ed Noack, Mike and Verna Noack and Charlie and Louise Goforth. will hold a Golf Tournament to benefit Kennedy's Disease Research at the Jersey Meadow Club, Houston, TX
Mike Goynes "Re-organizing Chat Transcripts for Easier Reading" - Immediately following each KDA chat, Mike Goynes takes the raw transcript file and cleans it up for easier reading for us all. Thank you Mike.
Cookbook Sales

Annette Clipman, Anita Johnson, Vern Quimby, Chris & Jodee Coulter, and Alison Pasiuk, Susanne & Terry Waite -- "Cookbook Sales"
Annette Clipman, past-KDA Vice President and Director of Fundraising, was able to secure free press in her hometown for selling KDA cookbooks and Entertainment books. She also has negotiated the free printing of KDA business stationary. Click Here to see the newspaper article.
Anita Johnson, a member of the fundraising committee, went door-to-door with cookbooks and sold to many friends, family and co-workers.
Vern Quimby, a gentleman with KD, decided he could help sell cookbooks through his mobile home park's magazine, so he submitted some text and an order form instructing individuals where to send their order and check.

Chris & Jodee Coulter, Murray and Karol Williams and Alison Pasiuk sold multiple cookbooks to friends, family and co-workers! Susanne & Terry Waite, the KDA Founders, have sold numerous KDA cookbooks and Entertainment books to friends, family and co-workers around the country. They even set up a booth at a local Chili Cook-Off and in front of grocery stores.

KDA Business Contributors

The following businesses have contributed services or goods to the Kennedy's Disease Association. We thank them for their support and encourage you to utilize their services as they have helped us tremendously.

Zebra Graphic Designs
Linda Stephens was the designer, developer and project lead for the new KDA website.

Robert Beyer - Website Hosting
Robert Beyer has helped to make a difference with the KDA by hosting the Kennedy's Disease Association Web site free of charge from year 2001 up until November 2002.

Duffy Design Works
The KDA would like to thank the team over at Duffy Design Works for the donation of design and web services to the KDA. From November 2002 through 2009 Duffy Design Works hosted the website.

Andrews Papers
York, PA
(Supplied letterhead stock and envelopes at no charge)

Cadmus Professional Communications
Lancaster, PA
(Printed 12,000 KDA Brochures at no charge)

Donald Blyler Offset
Lebanon, PA
(Printed 5,000 Holiday Cards at no charge)

Evenas Graphics - Graphic Design Firm
Sherman Oaks, CA
(Designed the KDA Logo, business cards, letterhead, envelopes, donation, holiday and thank you cards at no charge)

Hess' Graphic Works
Pequea, PA
(Produced two 5' by 2' banners for the KDA at no charge)

Halliburton Foundation Inc
Houston TX
(Giving Choices Campaign)

Honey Brook Sporting Goods - Screenprinting and Embroidery
Honey Brook, PA
(Printed 48 t-shirts and golf shirts for the KDA at no charge)

Allegra Print & Imaging - Printers
Lancaster, PA
(Printed Letterhead and Envelopes for the KDA at no charge)

Prestige Color - Printers
Lancaster, PA
(Printed Thank You card and mailing labels for the KDA at no charge)

Red Rose Awards
Lancaster, PA
(Donated an appreciation plaque at no charge)

Robert C. Miller Printing - Printers
Lititz, PA
(Printed 2,500 business cards for the KDA at no charge)

Screen Printing Plus
Lititz, PA
(Donated and printed logo on 100 tote bags at no charge)

Whoast Inc.
Chicago, IL
(Donation of hosting the KDA website free of charge)