Kennedy's Disease Association

"Every few days a baby boy is born with this DNA defect"

"Volunteers do not necessarily have the time;

they just have the heart."

(Elizabeth Andrew)

KDA

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Current Fund Raising Events

• None Scheduled

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Our thanks goes out to all of you who are helping us find a cure for Kennedy's Disease

• Queen Anne's Race

• KDA Golf Tournaments

• Those racing to help find a cure

• Others who are finding ways to help

• KDA business contributors

You Can Also Help By Donating Today

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Queen Anne's Race

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• The 2013 Queen Anne's Race was a great success.  The event raised over $13,000 for the KDA.  Read More

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KDA Golf Tournaments

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The first Kennedy's Disease Association Golf Tournament was held in October, 2011 at the Jersey Meadow Club, Houston, TX. The event raised $16,000. 

• The core committee consisted of Murray Williams, Ed and Nancy Noack, Louise and Charley Goforth, Verna and Mike Hoke and Krissy McLaren.  Read More

The second Kennedy's Disease Golf Tournament was held in September, 2012 at the Jersey Meadow Club, Houston, TX.  The event raised $18,000.

• The committee members responsible for putting on this exciting event are:  Murray Williams, Johnny Farrell, Ed & Nancy Noack, Charley & Louise Goforth, Jamie Zbranek, Lori & Chillie May, Verna & Mike Hoke, and   Krissy McLaren.   Read More

Over $32,000 in two years!

The KDA sincerely thanks the golf tournament fund raising team

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If you are interested in holding your own KDA golf scramble,

the organizing committee has developed

a process to help insure your success.

[Read More]

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Those racing to help find a cure

Below are just some of the special people that have helped the KDA fund research grants and educational symposiums

Ed Meyertholen ran in several marathons including the Boston Marathon, Motorola, and San Antonio. Read More	Beth DuVall has run three half-marathons, the latest in May 2011. Read More	Sean Blasko has participated in several triathlons, the latest was the Canadian Ironman. Read More - Ironman-Canada Read More - Ironman-Couer d'Alene
Devon Perry has ridden her bike in several races ... most recently to help the KDA. Read More	Dave Heraper ran a race in 2010. He ran the race two reasons: (1) to improve my own health, and, (2) to promote awareness and funding for the KDA. Read More	Tara & Erin Mills - Running Erin's 1st Mini-Triathlon. Tara and Erin Mills met their goal of $1,000 in funds raised through sponsorships and a bake sale. Read More

Tom Goynes and Sandy Goynes - "Paddling for Kennedy's Disease"

Tom Goynes and his daughter, Sandy Goynes, are experienced Texas Water Safari veterans and they paddled again in 2001 in this 260-mile long river adventure. However, this time, Tom and Sandy paddled for Kennedy's Disease. They secured pledges and donations for the Kennedy's Disease Association. Tom & Sandy Finished 16th out of 119 Boats with a finish time of 51 hrs 24 min.  Read More

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Others who are finding ways to help

1. April 2 thru 4, 2011 - Sean Blasko held a plant and tree sale to benefit Kennedy's Disease research during the community-wide yard sale in Austin, TX
2. May 15, 2011 - Carla and Stan Highe and family sold 'KDA muscle shirts' at the Gilmore Car Museum "Dust Off" car show and swap meet. in Kalamazoo, MI
3. Mike Goynes "Re-organizing Chat Transcripts for Easier Reading" - Immediately following each KDA chat, Mike Goynes takes the raw transcript file and cleans it up for easier reading for us all. Thank you Mike.
4. Cookbook Sales

• Annette Clipman, Anita Johnson, Vern Quimby, Chris & Jodee Coulter, and Alison Pasiuk, Susanne & Terry Waite -- "Cookbook Sales"
• Annette Clipman, past-KDA Vice President and Director of Fundraising, was able to secure free press in her hometown for selling KDA cookbooks and Entertainment books. She also has negotiated the free printing of KDA business stationary. Click Here to see the newspaper article.
• Anita Johnson, a member of the fundraising committee, went door-to-door with cookbooks and sold to many friends, family and co-workers.
• Vern Quimby, a gentleman with KD, decided he could help sell cookbooks through his mobile home park's magazine, so he submitted some text and an order form instructing individuals where to send their order and check.

• Chris & Jodee Coulter, Murray and Karol Williams and Alison Pasiuk sold multiple cookbooks to friends, family and co-workers! Susanne & Terry Waite, the KDA Founders, have sold numerous KDA cookbooks and Entertainment books to friends, family and co-workers around the country. They even set up a booth at a local Chili Cook-Off and in front of grocery stores.

KDA Business Contributors

The following businesses have contributed services or goods to the Kennedy's Disease Association.  We thank them for their support and encourage you to utilize their services as they have helped us tremendously.

Zebra Graphic Designs
Linda Stephens was the designer, developer and project lead for the new KDA website.

Robert Beyer - Website Hosting
Robert Beyer has helped to make a difference with the KDA by hosting the Kennedy's Disease Association Web site free of charge from year 2001 up until November 2002.

Duffy Design Works
The KDA would like to thank the team over at Duffy Design Works for the donation of design and web services to the KDA.  From November 2002 through 2009 Duffy Design Works hosted the website.

Andrews Papers
York, PA
(Supplied letterhead stock and envelopes at no charge)

Cadmus Professional Communications
Lancaster, PA
(Printed 12,000 KDA Brochures at no charge)

Donald Blyler Offset
Lebanon, PA
(Printed 5,000 Holiday Cards at no charge)

Evenas Graphics - Graphic Design Firm
Sherman Oaks, CA 
(Designed the KDA Logo, business cards, letterhead, envelopes, donation, holiday and thank you cards at no charge)

Hess' Graphic Works
Pequea, PA
(Produced two 5' by 2' banners for the KDA at no charge)

Halliburton Foundation Inc
Houston TX
(Giving Choices Campaign)

Honey Brook Sporting Goods - Screenprinting and Embroidery
Honey Brook, PA
(Printed 48 t-shirts and golf shirts for the KDA at no charge)

Allegra Print & Imaging - Printers
Lancaster, PA
(Printed Letterhead and Envelopes for the KDA at no charge)

Prestige Color - Printers
Lancaster, PA
(Printed Thank You card and mailing labels for the KDA at no charge)

Red Rose Awards
Lancaster, PA
(Donated an appreciation plaque at no charge)

Robert C. Miller Printing - Printers
Lititz, PA 
(Printed 2,500 business cards for the KDA at no charge)

Screen Printing Plus
Lititz, PA
(Donated and printed logo on 100 tote bags at no charge)

Whoast Inc.
Chicago, IL
(Donation of hosting the KDA website free of charge)