Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

"KDA is One SUPER, Non-Profit Organization."

Our Focus Remains on Research, Education and Support

The Kennedy’s Disease Association has worked to educate others about this lesser-known disease and to support clinical research efforts. We distributed information to more than 10,000 neurologists to help them recognize clinical signs and symptoms of Kennedy’s Disease.

Will my child be born with this DNA defect?

It takes an enormous amount of money to fund research…more than any of us can afford alone, but together, we are capable of great accomplishments. We are searching for available foundation grants, but the process is lengthy. We need researchers to continue their work, and it is only the KDA that makes funding this disease a priority.

Kennedy’s Disease Knows No Boundaries...

It is passed on from generation to generation in families worldwide. Males generally inherit the disease symptoms and females are the carriers. The defect is in the ‘X’ Chromosome that makes testosterone almost a poison to his body.

What is Kennedy's Disease?

Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50. However, onset has also been reported as early as in the teens and as late as the 60s.

KDA Store

All proceeds will go to the Kennedy's Disease Association. We are an 'all volunteer' non-profit organization supporting researchers who are searching for a treatment or cure for Kennedy's Disease.

KDA Polo Shirts

KDA t-shirts and cookbooks

We now have some beautiful KDA Polo Shirts for sale. They were donated one of our associates so 100% of the money paid (less shipping) will go to the KDA. These are top quality shirts with the KDA logo embroidered on the front of the short and SBMA under it to indicate the medical term for our particular Neuromuscular Disease (Spinal Bulbar Muscular Atrophy).

The price for the shirt is $35.00*, which includes shipping in U.S.A.and Canada (* please contact us for possible shipping charges outside of US and Canada.)
Available in Small, Medium, Large, X-Large, XX-Large
Indicate quantity and sizes
There are a limited number of shirts/sizes, so get yours early.
To order email, write or call the Kennedy's Disease Association
You can use your credit card at this site: http://www.razoo.com/organization/Kennedys-Disease-Association.

The new KDA Cookbooks Vol. II are in!

“Recipes from Around the World”

KDA_Cookbook-1 Hot off the press and ready for gift giving … order now! Each book is a $20 donation which includes shipping to USA addresses. Proceeds benefit the Kennedy’s Disease Association for research grants. We gratefully thank Mike and Paula Goynes for their generous donation which paid for the book publication.

You can use your credit card at this site: http://www.razoo.com/organization/Kennedys-Disease-Association. Please remember to indicate you want cookbooks and the number you are ordering.

You can also write a check and send it with your cookbook order to:

Kennedy’s Disease Association

P.O. Box 1105

Coarsegold, CA 93614

For shipping cost outside the USA:

Please send your request to This e-mail address is being protected from spambots. You need JavaScript enabled to view it

KDA WordCloud Cups

Be the first in your area to sport the new KDA WordCloud Cup

The price for the cup is $15.00*, which includes shipping in U.S.A. and Canada (* please contact us for possible shipping charges outside of US and Canada or for volume discounts on orders of six cups of more)
Indicate the number of cups and your mailing address (sorry no P.O. Boxes)
To order email, write or call the Kennedy's Disease Association
You can use your credit card at this site: http://www.razoo.com/organization/Kennedys-Disease-Association.

KDA-Wordle-3

“Back on Track” CD

Ronnie Upton, of the band Monkey Spanner, and Steve Jinks, U.K. KDA Associate produce album to benefit the Kennedy’s Disease Association

Steve_Jinks-CD-small Ronnie Upton of the U.K. ska band Monkey Spanner with Steve Jinks, U.K. KDA Associate have recorded the album “Back on Track” to benefit the Kennedy’s Disease Association. All proceeds from the sale of the CD are being donated to the KDA and they have already raised over $700. The CD is available at www.stevejinks.com and is 10£ with shipping included (approximately $15) payable through Paypal. You can also listen to free MP3 samples of the songs on the album on the website.

About Steve Jinks: Steve has been gigging since 1969, starting as a drummer and then guitarist before moving to the bass in 1980. He retired from live gigs in 2009 after being diagnosed with Kennedy’s Disease and he now concentrates his time on recording. Steve has played with a number of bands and has supported stars such as Bo Diddley, The Bachelors, H Shapiro, Freddie and the Dreamers and Brian Poole, as well as others such as Wilko Johson and Black Lace.

KDA Muscle Car T-shirts

We completely sold out all the previous t-shirts in stock. This new design was created by our members, Carla and Stan KDA-Muscle-Shirts-1 Highe. They introduced and sold these shirts at a custom car and hot rod show in Michigan! Order yours now while all sizes S-M-L-XL-XXL are still available. The shirts are white with blue lettering. A donation of $25 includes shipping in the USA. Your generosity helps the Kennedy’s Disease Association fund research grants to find a cure for this neuromuscular disease.

You can use your credit card at this site: http://www.razoo.com/organization/Kennedys-Disease-Association. Please remember to indicate you want t-shirts and the number and sizes you are ordering.

You can also write a check and send it with your order to:

Kennedy’s Disease Association

P.O. Box 1105

Coarsegold, CA 93614

For shipping cost outside the USA:

Please send your request to This e-mail address is being protected from spambots. You need JavaScript enabled to view it