Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

"Every day parents-to-be wonder whether their child will be born with this DNA defect"

Our Focus Remains on Research, Education and Support

The Kennedy’s Disease Association has worked to educate others about this lesser-known disease and to support clinical research efforts. We distributed information to more than 10,000 neurologists to help them recognize clinical signs and symptoms of Kennedy’s Disease.

Will my child be born with this DNA defect?

It takes an enormous amount of money to fund research…more than any of us can afford alone, but together, we are capable of great accomplishments. We are searching for available foundation grants, but the process is lengthy. We need researchers to continue their work, and it is only the KDA that makes funding this disease a priority.

Kennedy’s Disease Knows No Boundaries...

It is passed on from generation to generation in families worldwide. Males generally inherit the disease symptoms and females are the carriers. The defect is in the ‘X’ Chromosome that makes testosterone almost a poison to his body.

What is Kennedy's Disease?

Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50. However, onset has also been reported as early as in the teens and as late as the 60s.

How is Your Donation Used?

We realize that every charity in the world is asking for support these days and many have huge overhead expenses including salaries and fundraising costs. Fortunately, the Kennedy’s Disease Association is an “all volunteer” organization. Because of the generosity of some of our service providers coupled with no salaries being paid, the KDA’s overhead costs are relatively low considering the services provided.

Over the last five years, 91¢ of every dollar spent by the Kennedy’s Disease Association went to funding Kennedy’s Disease (KDA) Research Grants (79¢) **and Education (12¢). Only 9¢ of every dollar spent went to paying operating costs(*).**

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“Without you there is no KDA.”

* FY 2007 thru 2011. Operating expenses include the maintenance and upgrading of the KDA web site, our message forum, the chat rooms, office supplies, office equipment, postage, insurance premiums, banking fees, ISP charges, etc.