Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

"Every day parents-to-be wonder whether their child will be born with this DNA defect"

Our Focus Remains on Research, Education and Support

The Kennedy’s Disease Association has worked to educate others about this lesser-known disease and to support clinical research efforts. We distributed information to more than 10,000 neurologists to help them recognize clinical signs and symptoms of Kennedy’s Disease.

Will my child be born with this DNA defect?

It takes an enormous amount of money to fund research…more than any of us can afford alone, but together, we are capable of great accomplishments. We are searching for available foundation grants, but the process is lengthy. We need researchers to continue their work, and it is only the KDA that makes funding this disease a priority.

Kennedy’s Disease Knows No Boundaries...

It is passed on from generation to generation in families worldwide. Males generally inherit the disease symptoms and females are the carriers. The defect is in the ‘X’ Chromosome that makes testosterone almost a poison to his body.

What is Kennedy's Disease?

Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50. However, onset has also been reported as early as in the teens and as late as the 60s.

Fund Raising

Join the Fundraising Committee today

Get involved in the KDA Fundraising Team!

E-mail This e-mail address is being protected from spambots. You need JavaScript enabled to view it , Committee Chairman, and let her know you'd like to join this effort.

Helping Raise Needed Donations

Any fund raiser is only as good as the level of support from our associates and their families, friends and neighbors. That is why we need your help to distribute annual 'appeal' letters either in person, the preferred method, or by email or mail.

Once or twice each year the KDA will email our associates asking them to distribute the 'appeal' letter. The document is designed to be printed on two sides of a sheet of paper. If you cannot print the 'appeal' and would still like to distribute them to family, neighbors and friends, please contact the KDA at This e-mail address is being protected from spambots. You need JavaScript enabled to view it and ask us to mail you a certain number of pre-printed letters.

2010 Appeal Letter

Recycle that old Cell Phone and help the KDA

Click on the link above to learn more how you can help

"Hope 5 Campaign"

"Hope 5" is the KDA fundraising campaign in which members, friends and family support the KDA with a $5.00 a month check. Collectively, these numbers add up and help the KDA with its mission and objectives.

"Hope 5" is a campaign to raise funds for the KDA. The more money we raise, the more effective the KDA is. The KDA creates awareness. provides needed education. offers support and connections. and grants funds for research. It is our heartfelt desire to find a cure for Kennedy's Disease.

"Hope 5" is designed to encourage you to donate $5.00 per month (or more if you so decide) to this very valuable mission. Five dollars is a nominal amount individually ~ BUT collectively it can grow to significant numbers. (For example: 350 members participate x $5.00 x 12 months = $21,000.)
Please send in your $5.00 donation today. It is a tax-deductible contribution in the United States.
It is our "Hope" that "$5.00" is an amount you will gladly contribute monthly to help the valuable lives Kennedy's Disease has changed.
We also ask that you encourage and invite at least 5 friends and family members to participate in "Hope 5". This will help spread the word about Kennedy's Disease and think how "Hope 5" could grow exponentially with each new friend or family member becoming a supporter.

To participate in this campaign, mail your contributions to:

Kennedy's Disease Association
P.O. Box 1105
Coarsegold, CA 93614-1105

If you have questions, please contact us at This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

Ideas to hold a local fundraiser on your own

Hold a fundraiser and forward the money collected to the

Kennedy's Disease Association
P.O. Box 1105
Coarsegold, CA 93614-1105 (U.S.A.)

Idea #1: Hold a car wash at a local gas station or business that will donate the space and water. You supply the volunteers, soap, and towels!

Idea #2: Hold a garage or rummage sale, asking friends, family and coworkers to donate items. You can obtain receipts from the KDA to give to those who donate by contacting the Kennedy's Disease Association and letting us know what you plan to do. Advertise the garage sale in the local paper, put up signs directing potential buyers to your sale.

Idea #3: Hold a dinner at your home or a local restaurant. Invite friends and family to your dinner, asking for a minimum donation that exceeds the cost of the food. Perhaps its hot dogs and hamburgers in your backyard or its a more lavish affair with cocktails and appetizers. Its up to you what you think is best. Charge accordingly. Again, the KDA can supply you with donation receipts to give to your supporters.

Idea #4: Hold a bake sale and sell your baked goods outside a local grocery store, church or other location where you believe you could obtain management's permission to do so. Bake up a bunch of goodies and sweet-treats and sell them!

Idea #5: Hold a bowl-a-thon at your local bowling alley. Approach the manager with the idea. Ask them to donate bowling lanes on a specific date and time, and don't forget to drop the hint that the participants will be thirsty and they will be more than happy to purchase drinks from the bowling alley! Also, tell them you will alert the local newspaper and attempt to get them other free publicity for their altruistic support. Then contact the KDA to help you make flyers up about your event. Give the flyers to friends, family and coworkers, post them around town and collect a minimum donation from each participant on the day the bowl-a-thon takes place.

Idea #6: Have your friends, family and co-workers go on an aluminum can hunt, aluminum can drive at work, or save their aluminum cans and then collect them all and take to a recycling center. We've heard of the recycling centers giving .35 cents a pound. Small things add up quick!

If you have additional ideas for a local fundraiser, please e-mail us at: This e-mail address is being protected from spambots. You need JavaScript enabled to view it