DISCUSSIONS/SUPPORT • Chat Transcripts

CHAT TRANSCRIPTS   04/05/08 - Open Forum   03/15/08 - Special Guest - Dr. Kenneth Fischbeck NIH/NINDS   03/01/08 - Open Forum   02/16/08 - Open Forum   02/02/08 - Open Forum   12/15/2007 - Tip for functioning in cold weather   12/01/2007 - Open Forum   11/17/2007 - Post KDA Conference Thoughts   11/03/2007 - Open Forum   10/20/2007 - Open Forum   10/06/2007 - Open Forum   09/15/2007 - Open Forum   09/01/2007 - A Question of Balance   08/18/2007 - Special Guest - J. Paul Taylor, M.D., Ph.D.   08/04/2007 - Open Forum   07/21/2007 - Open Forum   07/07/2007 - Open Forum   06/16/2007 - Special Guest - Dr. Andrew Lieberman Ph.D. 06/02/2007 - Special Guest - Dr. Diane Merry Ph.D.   05/19/2007 - Open Forum   05/05/2007 - Open Forum   04/21/2007 - Special Guest - Angela Hokkins   04/07/2007 - Open Forum   03/17/2007 - Open Forum   03/03/2007 - Open Forum   02/17/2007 - Positive Thinking   02/03/2007 - Special Guest - Kenneth Fischbeck, M.D.   01/20/2007 - The Biology of KD   01/06/2007 - The effects of stress in our lives   12/16/2006 - Open Forum   12/02/2006 - Open Forum   11/18/2006 - Open Forum   11/04/2006 - Coping with Cold Weather   10/21/2006 - Post Conference Discussion   10/07/2006 - Open Forum   09/16/2006 - Open Forum   09/02/2006 - Open Forum   08/19/2006 - Open Forum- Patrick Griffin Passing   08/05/2006 - Open Forum   07/15/2006 - Traveling to NIH   07/01/2006 - The Biology of KD   06/17/2006 - Open Forum   06/03/2006 - Special Guest - Andy Lieberman M.D., Ph.D   05/20/2006 - Open Forum   05/06/2006 - Special Guest - Alison La Pean   04/15/2006 - Open Forum   04/01/2006 - Fundraising   03/18/2006 - Coping Emotionally & Mentally with KD   03/04/2006 - Open Forum   02/18/2006 - Special Guest - J. Paul Taylor, M.D., Ph.D.   2/04/2006 - Mobility   1/21/2006 - Special Guest - Nicholas Di Prospero, M.D., Ph.D.   1/7/2006 - No Transcript Available   12/17/2005 - No Transcript Available   12/03/2005 - Open Forum   11/19/2005 - Special Guest -Lenore K. Beitel Ph.D   11/05/2005 - Fundraising   10/15/2005 - Special Guest - John Test - Medical Equipment   10/08/2005 - Maintaining a Good Attitude   09/17/2005 - Special Guest - Diane E. Merry Ph.D.   08/20/2005 - Open Forum   08/20/2005 - Learning from challenges in life   08/06/2005 - Special Guest - Kenneth Fischbeck, M.D.   07/16/2005 - Open Forum   07/02/2005 - Special Guest - Cheunju Chen, M.D.   06/18/2005 - Mobility Products   06/04/2005 - Open Forum   05/21/2005 - Open Forum   05/07/2005 - Open Forum   04/16/2005 - Mobility,Safety   04/02/2005 - Open Forum   03/19/2005 - Open Forum   03/05/2005 - Open Forum   02/19/2005 - Open Forum   02/05/2005 - 2004 Accomplishments, 2005 The Year Ahead   01/15/2005 - Open Forum   01/01/2005 - Open Forum   2004   10/30/2004 - Post KDA Conference Discussion   10/16/2004 - Open Forum   10/02/2004 - Open Forum   09/18/2004 - Open Forum   07/24/2004 - Medications to alleviate symptoms   07/10/2004 - KD Research Update   06/26/2004 - Open Forum   06/12/2004 - Fun in the Sun, what are you doing this summer   05/15/2004 - Open Forum   05/01/2004 - Open Forum   04/17/2004 - Everyday Tasks   04/03/2004 - Special Guest - Dr. Lieberman M.D. Ph.D.   03/20/2004 - Regional Chapters   03/06/2004 - KD and sleep issues   02/21/2004 - The New Chat Room   02/07/2004 - General Discussion/Open Forum   01/24/04 - Vacation spots that cater to the disabled   01/10/04 - The Year Ahead   2003   12/13/03 - Open Forum   11/29/03 - Other ways of doing things   11/15/03 - Conference Thoughts   11/01/03 - Open Forum   10/18/03 - What challenges do you face   10/04/03 - Social Security Disability   09/20/03 - Exercise, What do you think?   09/06/03 - What are you doing to keep active?   08/23/03 - Open Forum   08/09/03 - Open Forum   07/26/03 - Tips for Moving/Relocating   07/12/03 - 2002 Conference Reunion   06/28/03 - Medical Aids for the home   06/14/03 - Carriers Chat   05/31/03 - Depression, How to fight it   05/17/03 - Wives & Significant Others Chat   05/03/03 - Use of a Cane/Wheelchair   4/19/03 - Falling - A Real Concern   4/5/2003 - Carrier Support/Concerns   3/22/2003 - General Discussion/Open Forum   3/08/2003 - General Discussion/Open Forum   2/22//2003 - Easily Accessible Vacations   2/08/2003 - General Discussion/Open Forum   1/25/2003 - Hobbies   1/11/2003 - General Discussion/Open Forum   2002   12/28/2002 - General Discussion/Open Forum   12/14/2002 - Questionnaire results (KD Symptoms)   11/18/2002 - Carriers Support Chat 11/02/2002 - General Discussion/Open Forum   10/19/2002 - 2002 Post Conference Update   10/05/2002 - Sleep Apnea & CPAPS   09/21/2002 - Cruising, Vacations   09/07/2002 - General Discussion/Open Forum   08/24/2002 - Overdoing it, How not to   08/10/2002 - Mobility, Freedom1, Lark   07/27/2002 - General Discussion/Open Forum   07/13/2002 - Dealing with Frustrations   06/29/2002 - Weight Control   06/15/2002 - Prescriptions & Alternative Medicine   06/01/2002 - Vacation Travel Tips   05/18/2002 - Wives and Significant Others   05/04/2002 - Carriers Concerns   04/20/2002 - Social Security & Disability   04/06/2002 - General Discussion/Open Forum   03/23/2002 - Pre-Surgery Considerations   03/09/2002 - Helpful Solutions for everyday tasks   02/23/2002 - Hobbies   02/09/2002 - KD Discussion - Dr. Jonathan Katz   01/26/2002 - General Discussion/Open Forum   01/12/2002 - Dr. Diane Merry Special Guest   2001   12/15/2001 - Dr. Albert LaSpada Special Guest   11/20/2001 - Life Insurance NY Life Special Guest   11/03/2001 - General Discussion/Open Forum   10/20/2001 - General Discussion/Open Forum   10/06/2001 - General Discussion/Open Forum   09/22/2001 - Pain   08/25/2001 - Numbness   07/25/2001 - General Discussion/Open Forum   07/14/2001 - Spouses and Significant Others   06/30/2001 - FSMA Conference Q&A   06/16/2001 - General Discussion/Open Forum   06/02/2001 - Mental Health and Depression   05/19/2001 - Asking for help   05/05/2001 - General Discussion/Open Forum   04/21/2001 - Exercise & Weight Control   04/07/2001 - Vacations & Travel Tips   3/24/2001 - General Discussion/Open Forum   3/10/2001 - Medical Aids, Prescription Drugs    2/24/2001 - Disability Aids & Devices    2/10/2001 - SBMA and Career (Current & Options)    1/27/2001 - Spouses & Significant others dealing with SBMA   1/13/2001 - SBMA carriers and their concerns   2000   12/09/2000 - SBMA, How it affects Family & friends   11/11/2000 - Dr. Fischbeck Q&A on SBMA   10/28/2000 - Disability benefits, Open Forum   10/14/2000 - Introduction, Open Forum