STEPPING OUT OF THE SHADOWS - SUPPORT GROUPS
Those who
actually exhibit symptoms of
Kennedy's Disease need support and
understanding, as do those who
love them and live with them.
Many issues may need to be
addressed that others who do not
live with Kennedy's Disease may
not understand or know how to help
answer. That's why the
support groups, led by volunteers
were established. These
groups help seek solace, guidance
and support from those who join
the support groups.
Together, there is much knowledge
to be shared and experience has
been the teacher for all of us.
Join with us to
share, support, maybe find
solutions and/or some peace of
mind knowing that you are not
alone in dealing with challenges while standing in the shadows of
Kennedy's Disease.
Wives and
Significant Others
Paula Goynes, wife of a Mike
Goynes who has Kennedy's Disease,
has volunteered to coordinate the
Wives/Significant Others' support
group.
Paula volunteered to take the
position of Significant
Others Support Coordinator because
she remembers the fears,
confusion, and the sense of
helplessness, that she dealt with
in the weeks and months after she
and Mike realized that a simple,
annual physical exam had changed
their lives forever.
To join this group, e-mail
Paula Goynes:
PGGoynes@Verizon.net
Carriers
The KDA is currently seeking a
volunteer to head up a support
group for KD carriers. If you are
interested please contact the KDA
at
nfo@kennedysdisease.org and
let us know.
Individuals Exhibiting
Symptoms
For individuals exhibiting
symptoms you can contact Paul Buck
at
pbuck@nexicom.net
for support
Family Members and Friends
The KDA is currently seeking an
individual to volunteer to
coordinate this group. Email Susanne Waite if you are
interested in volunteering for
this position: info@kennedysdisease.org
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DISCUSSIONS/CONTACT • Stepping Out of the Shadows 
