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     Kennedy's Disease Association, Inc.
     P.O. Box 1105, Coarsegold, CA 93614 (U.S.A.)
     (559) 658-5950 email: info@kennedysdisease.org
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DISCUSSIONS/SUPPORT • Questionnaire Report 


Questionnaire Report

 In Year 2002, the KDA sent a questionnaire (drafted by Patrick Griffin and Susanne Waite, reviewed by Dr. Merry and Dr. Fischbeck) to all current KDA Associates.  34 responded and the results have been painstakingly tallied by a number of volunteers who were given the questionnaires with the names removed - each questionnaire was given a number.

Susan Wiebusch spent innumerable hours drafting the below reports that are comprehensible summaries of the results.

The KDA thanks everyone who participated in this survey - from the respondents to the talliers.

These reports are in PDF format to make for quicker downloading & reading. They require the free PDF reader to read them. 

Get the PDF Reader here if you do not already have it.

Please Note: Certain report sections are missing because there was no data to report or enough responses to the section to be meaningful. 

Table of Contents

SECTION A - DEMOGRAPHIC INFORMATION

SECTION B - FAMILY HISTORY

SECTION D - PAIN

SECTION E - PREVIOUS MEDICAL PROBLEMS

SECTION F - MOST RECENT LAB RESULTS

SECTION G - PRESCRIPTION MEDICATIONS

SECTION H - NON-PRESCRIPTION MEDICAL OR THERAPY

SECTION I - COMPLEMENTARY THERAPIES

SECTION J - VITAMINS, MINERALS, & DIET

SECTION K - NUTRITION AND DIET

SECTION L - DAILY ROUTINE

SECTION M - PHYSICAL THERAPY/EXERCISE

SECTION N - ASSISTIVE DEVICES

SECTION O - MENTAL HEALTH COPING

SECTION S - DIAGNOSIS JOURNEY

SECTION T - GENERAL

SECTION U - PHYSICIANS

SECTION V - OTHER COMMENTARY