Home

Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

"KDA is One SUPER, Non-Profit Organization."

Our Focus Remains on Research, Education and Support

The Kennedy’s Disease Association has worked to educate others about this lesser-known disease and to support clinical research efforts. We distributed information to more than 10,000 neurologists to help them recognize clinical signs and symptoms of Kennedy’s Disease.

Will my child be born with this DNA defect?

It takes an enormous amount of money to fund research…more than any of us can afford alone, but together, we are capable of great accomplishments. We are searching for available foundation grants, but the process is lengthy. We need researchers to continue their work, and it is only the KDA that makes funding this disease a priority.

Kennedy’s Disease Knows No Boundaries...

It is passed on from generation to generation in families worldwide. Males generally inherit the disease symptoms and females are the carriers. The defect is in the ‘X’ Chromosome that makes testosterone almost a poison to his body.

What is Kennedy's Disease?

Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50. However, onset has also been reported as early as in the teens and as late as the 60s.

Memorials

Associates and friends of our Association who are no longer with us and for whom we grieve and remember...

If you have a loved one with Kennedy's Disease who has passed away and would like to have them added to the memorial page e-mail us at This e-mail address is being protected from spambots. You need JavaScript enabled to view it with the information and a picture. If you do not have a picture on your computer to send via e-mail you can mail it to us via regular US mail at the address at the top of this page and we can scan it and return the original to you.