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Tuesday, November 4, 2003 |
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5:00 p.m. |
Meet for Appetizers and Drinks at: |
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Hotel Lounge - (Optional/Dutch Treat) |
This is an optional gathering for those arriving Tuesday to meet and get acquainted with each other |
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Wednesday, November 5, 2003 |
On Location at the Renaissance Arts Hotel |
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7:00 - 8:30 a.m. |
Continental Breakfast & Registration |
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8:30 - 9:00 a.m. |
Welcome to New Orleans |
Dr. Kevin Stephens, Director of Health, City of New Orleans |
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9:00 - 10:15 a.m. |
Welcome & KDA Update |
Susanne M. Waite, KDA Founder, President and Executive Director |
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10:15 - 10:45 a.m. |
Break |
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10:45 - 12:00 noon |
Social Security Disability |
Dinah Laurich, Area Work Incentives Coordinator, Social Security Administration, Louisiana |
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12:00 - 1:30 p.m. |
Lunch (on your own) |
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1:30 - 2:45 p.m. |
Making your Life Physically Easier |
Randolph L. Roig, M.D., American Board of Physicial Medicine and Rehabilitation Certified Physiatrist |
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2:45 - 3:15 p.m. |
Break |
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| 3:15 - 4:00 p.m. | First Aid: Swallowing & Choking | EMT Members of New Orleans Health Department | |
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4:00 - 4:45 p.m. |
Personal Transportation: Options/Funding/ Reimbursements/Tax Breaks |
(Round Table Discussion) |
Murray Williams, KDA Secretary and individual with KD |
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4:45 - 6:00 p.m. |
Free Time |
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6:00 p.m. |
Group Dinner (Optional/Dutch Treat) |
New Orleans' Paddlewheel Boat - Jazz Dinner Cruise $42.00 per person (usually $51.00 per person) Click Here for more information |
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Thursday, November 6, 2003 |
On Location at the Renaissance Arts Hotel |
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7:30 - 8:30 a.m. |
Continental Breakfast |
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8:30 -12:00 noon |
Men's Group Discussion |
Nothing Held Back: What its Truly Like Living with KD |
Facilitator: John A. Coakley, Sr., KDA Vice President |
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8:30 -12:00 noon |
Wives'/Significant Others' Discussion |
Nothing Held Back: What its Truly Like Living with KD |
Facilitator: Susanne M. Waite, KDA Founder, President, and Executive Director |
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8:30 -12:00 noon |
Carriers' Discussion |
Nothing Held Back: What its Truly Like Living with KD |
Facilitator: To Be Determined |
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12:00 - 1:30 p.m. |
Lunch (on your own) |
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1:30 - 3:00 p.m. |
"Keeping Busy - Staying Involved" Reducing Stress & Depression | Dr. Persephanie Silverthorn, Psychologist, University of New Orleans | |
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3:00 - 3:30 p.m. |
Break |
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3:30 - 4:30 p.m. |
"I'm the Government and I'm Here to Help" FDA - Rare Disease Update |
Dr. Deb Lewis, Director of Grants, Orphan Products Development, Federal Drug Administration (FDA) |
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4:30 - 6:30 p.m. |
Free Time |
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6:30 - 10:00 p.m. |
Dinner Banquet & Silent Auction (on location at the Hotel) |
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Friday, November 7, 2003 |
On Location at the Renaissance Arts Hotel |
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7:30 - 8:30 a.m. |
Continental Breakfast |
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8:30 - 10:15 a.m. |
Doctors/Researchers Discussion Panel |
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Kenneth Fischbeck, M.D., Chief of Neurogenetics Branch, National Institutes of Health, (Maryland, United States), KDA Scientific Review Board --------------------------------------Diane Merry, Ph.D., Thomas Jefferson University, (Pennsylvania, United States), KDA Scientific Review Board --------------------------------------Albert La Spada, M.D., Ph.D., University of Washington (Washington, United States), KDA Scientific Review Board -------------------------------------- Lisa Ellerby, Ph.D., Buck Institute of Aging (California, United States) Andrew Lieberman, Ph.D., University of Michigan (Michigan, United States) Dr. Jean-Marc Gallo Kings' College London (London, England) Anne Sperfeld, M.D., University of Ulm (Ulm, Germany) Charlotte Sumner, M.D. National Institute of Health/NINDS (Maryland, United States) Gen Sobue, M.D. University of Nagoya (Nagoya, Japan)
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Angelo Poletti, Ph.D., University of Milano (Milan, Italy) Paul Taylor, M.D., Ph.D. University of Pennsylvania (Pennsylvania, United States) Nick Di Prospero, M.D., PH.D., NINDS - National Institute of Neurological Disease & Stroke (Maryland, United States) Patrick Weydt, M.D., University of Washington (Washington, United States) Erica Chevelier-Larson (Grad Student) Thomas Jefferson University (Pennsylvania, United States) P.J. Thomas (Grad Student) University of Washington (Washington, United States) --------------------------------------Other Doctors and Researchers invited - will update as they confirm they will attend the meeting. |
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10:15 - 10:45 a.m. |
Break |
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10:45 - 12:00 Noon |
Doctors/Researchers Discussion Panel (Continued) |
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Noon - 12:15 p.m. |
Closing Statements |
Terry A. Waite, KDA Founder and Vice President |
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12:15 p.m. |
Meeting Adjourns for Attendees -- Doctors/Researchers Invited to stay for Private Discussion Commencing at 1:30 p.m. |
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1:30 - 5:00 p.m. |
Researchers' Private Discussion Symposium |
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