Sunday, October 13, 2002

6:00 p.m.

Meet for Dinner at: 

This is an optional dinner for those arriving on Sunday to meet and get acquainted with each other

Monday, October 14, 2002

On location at the BWI Airport Marriott

7:00 - 8:00

Continental Breakfast & Registration

8:00 - 9:00

Welcome & KDA Update

Susanne Waite, KDA President and Executive Director

9:00 - 9:15

Break

9:15 - 11:45

KD Research and Doctor Panel

Kenneth H. Fischbeck, M.D.,                   Chief, Neurogenetics Branch,              National Institutes of Health                   (Bethesda, MD, United States)

Diane Merry, Ph.D.,                                Thomas Jefferson University                 (Philadelphia, PA, United States)

Albert R. La Spada, M.D., Ph.D.,
University of Washington                      (Seattle, WA, United States)

Neil C. Porter, M.D.,                              University of Maryland School of Medicine, Director of the Muscular Dystrophy Association clinic at Maryland General Hospital in Baltimore,                         University Hospital, Department of Neurology (Baltimore, MD, United States)

J. Paul Taylor, M.D., Ph.D.,
Neurogenetics Branch, NINDS/NIH                (Bethesda, MD, United States)

Professor Jeffrey D. Zajac
Head, Department of Medicine A&RMC University of Melbourne                               Austin & Repatriation Medical Centre    (Victoria, Australia)

Karen Greenland, Ph.D.
Murdoch Childrens Research Institute
Royal Children's Hospital
(Victoria, Australia)

Others will be posted as they state they will attend.  20+ researchers/doctors have been invited.

Jennifer Leib, Sc.M.,  Genetic Counselor,  National Institutes of Health                             (Bethesda, MD, United States)

Lenore K. Beitel, Ph.D.,  Lady Davis Institute,
Sir M.B. Davis - Jewish General Hospital       (Montreal, Canada)

Mark Trifiro, M.D.,          Lady Davis Institute, SMBD-Jewish General Hospital                 (Montreal, Canada)
 

Lisa Ellerby, Ph.D.,
Assistant Professor,
Buck Institute for Research in Aging                  (Novato, CA, United States)

Andy Lieberman, Ph.D., University of Michigan (Ann Arbor, MI, United States)

Marc I. Diamond, M.D.
Assistant Professor
Dept. of  Neurology
University of California, San Francisco
(San Francisco, CA, United States) 

11:45 - 1:00

Lunch (On your own)

1:00 - 2:00

Estate Planning

1:00 p.m. KD Symposium (Researcher discussion in private - separate room)

2:00 - 2:15

Break

KD Symposium (Researcher discussion in private - separate room)

2:15 - 3:15

Modifying your home for easier use

KD Symposium (Researcher discussion in private - separate room)

3:15-4:15

Mood Management

Steve Kowalick,  Motivational Speaker, Retired in 1993 at the rank of Captain, U.S. Navy 

KD Symposium (Researcher discussion in private - separate room)

4:15-6:00

Free time

6:00

Sit-Down Italian Dinner with a Silent Auction - on location at the hotel

Tuesday, October 15, 2002

On location at the BWI Airport Marriott

7:00 - 8:30 a.m.

Continental Breakfast

Wives/Significant Others -- KD Individuals -- Carriers

8:30 - 9:30

Family Planning & Inheritance Pattern Explained

Jennifer Leib, Sc.M.,               Genetic Counselor,                 National Institutes of Health 

9:30 - 9:45

Break

9:45 - 10:45

Qigong - Chinese Isometrics for Improved Health

Bruce Gaughran, individual with KD who has studied Qigong with a master and applies Qigong on a daily basis.

10:45 - 11:45

Applying for Social Security Disability

Diane Kistler,                      Disability Services Specialist, Social Security Administration

Linda Benson,                   Public Affairs Specialist,    State of Maryland

11:45 - 1:00

Lunch (On your own)

1:00 - 2:00

Mobility Aides & Options

Meir Raskas,           Advanced Medical Concepts

2:00 - 3:00

Case History:  Speech Therapy and Throat Dilation

William J. Ravich, M.D.            Associate Professor, Medicine  John Hopkins Hospital

Kim Webster, M.A.,             CCC-SLP, Speech Therapist  John Hopkins Hospital 

3:00 - 3:15

Break

3:15 - 3:45

Fundraising

Annette Clipman,                      KDA Vice President and Director of Fundraising

3:45 - 4:45

Financial Planning (Retirement, Disability Insurance, etc.)

5:05 - 5:45

Laughter is the Best Medicine

John Coakley, KDA Meeting Committee Participant and KD Individual with a never-ending sense of humor 

5:45 p.m.

Meeting Adjourns