TESTIMONIALS
Please
let us know if you would like to
share your experience with the KDA
with others. Write to us
at: info@kennedysdisease.org
"I have only recently been
diagnosed with Kennedy's Disease
(mis-diagnosed Muscular Dystrophy
in the 1980s) and I went searching
the internet trying to find out
what I could. I quickly found your
site and am having a great time
informing myself!!!
Thank you for being in cyberspace
to meet me at a time of
need." -- Kevin Brennan,
Australia
"I
thank God there are so many who
will share their story to give
others hope! My brother was
diagnosed with SMA in 1996 and
today after a subsequent visit to
the doc, they now believe his
disease is Kennedy's. I am
relieved to know that it's similar
to the SMA diagnosis. This younger
brother of mine is a very special
person and I'd like to have him
around for awhile. Thanks to all
who have shared their
stories." -- Sharon Durda,
Ohio, USA
"My
husband was diagnosed with KD last
year. He is coping with the
thought of having to use a
wheelchair in the future. I think
this is a good site to have,
because it has some encouraging
words. Thank you for having it
available." -- Julie
Nolte, Minnesota, USA
"My
father passed away on September
10, 2002 from respiratory
distress, brought on by advanced
KD and lupus. I miss him very
much. He was in the Ottawa Civic
Hospital for almost a month before
passing, and almost all of the
nurses and doctors did not know
about Kennedy's Disease. I want to
thank the creators of this
website. I referred them here."
-- Elisse Meshake,
Ontario, Canada
"Finally
diagnosed with KD after 3 1/2
years of testing. Thanks to a
wonderful Neurologist and General
MD who were equally driven to
determine my ailment. That was 4
years ago, and am continuing to
walk (slowly) and take care of
chores around the house. Thanks to
a wonderful family and
stubbornness on my part.. I might
be slowing down, but not giving up
.... Am glad to see finally
information being made available
about this disease.. THANKS for
the website." -- Robert
Antolin, California, USA
"I
am very glad to see that you have
added the personal stories, they
are a great help. They give an
outlook on what to expect with
such a disease. It makes me proud
to see people who are willing to
express and share their stories
with the world, keep up the good
work!" -- Jennifer Cullen,
Ontario, Canada
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ABOUT THE KDA • Testimonials