Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

"Every few days a baby boy is born with this DNA defect"

Our Focus Remains on Research, Education and Support

The Kennedy’s Disease Association has worked to educate others about this lesser-known disease and to support clinical research efforts. We distributed information to more than 10,000 neurologists to help them recognize clinical signs and symptoms of Kennedy’s Disease.

Will my child be born with this DNA defect?

It takes an enormous amount of money to fund research…more than any of us can afford alone, but together, we are capable of great accomplishments. We are searching for available foundation grants, but the process is lengthy. We need researchers to continue their work, and it is only the KDA that makes funding this disease a priority.

Kennedy’s Disease Knows No Boundaries...

It is passed on from generation to generation in families worldwide. Males generally inherit the disease symptoms and females are the carriers. The defect is in the ‘X’ Chromosome that makes testosterone almost a poison to his body.

What is Kennedy's Disease?

Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50. However, onset has also been reported as early as in the teens and as late as the 60s.

About the Kennedy's Disease Association (KDA)

The Kennedy's Disease Association is a non-profit corporation, incorporated in California on August 21, 2000.

We are recognized under United States of America Internal Revenue Code 501(c)3 as a publicly supported organization as described in sections 509(a)1 and 170(b)1(A)(vi).

In the United States, donations are considered tax deductible by the I.R.S. Please see the following documents for more detailed information:

Articles of Incorporation
IRS Determination letter
2013 IRS Determination Confirmation (PDF)

Kennedy's Disease Association

P.O. Box 1105
Coarsegold, CA 93614-1105 (United States)

The Mission of the Kennedy's Disease Association

Financially support and promote medical research to find a cure for Kennedy's Disease
Share information about Kennedy's Disease for those who seek it
Improve awareness of Kennedy's Disease in the medical community
Create a support system for those living with Kennedy's Disease
Increase public awareness about Kennedy's Disease and its effects on families

The KDA is Growing

The KDA has grown over the last eleven years. There are now 1,123 people in 43 countries that have registered with the KDA.(*)

606 are men with the defective gene
113 are carriers
321 are family members and friends of someone living with Kennedy's Disease
83 are researchers and doctors

(*) March, 2012 data

Our focus is on Research and Education

Since the Kennedy’s Disease Association is an all-volunteer organization, 91¢ of every dollar funds Kennedy’s Disease Research Grants (79¢) and Education (12¢).

The remaining 9¢ pays the association's operating costs*.

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