Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

"Every few days a baby boy is born with this DNA defect"

Our Focus Remains on Research, Education and Support

The Kennedy’s Disease Association has worked to educate others about this lesser-known disease and to support clinical research efforts. We distributed information to more than 10,000 neurologists to help them recognize clinical signs and symptoms of Kennedy’s Disease.

Will my child be born with this DNA defect?

It takes an enormous amount of money to fund research…more than any of us can afford alone, but together, we are capable of great accomplishments. We are searching for available foundation grants, but the process is lengthy. We need researchers to continue their work, and it is only the KDA that makes funding this disease a priority.

Kennedy’s Disease Knows No Boundaries...

It is passed on from generation to generation in families worldwide. Males generally inherit the disease symptoms and females are the carriers. The defect is in the ‘X’ Chromosome that makes testosterone almost a poison to his body.

What is Kennedy's Disease?

Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50. However, onset has also been reported as early as in the teens and as late as the 60s.

KDA Chat Room

The Kennedy's Disease chat room was designed to be a cost-effective way for those who would like to discuss living with Kennedy's Disease. There are three chats each month.

A. The Regular 'Hosted' Public KDA Chat is held on the 1st Saturday of each month at 10:30 a.m. Eastern (USA) Time. The chat normally lasts one hour.

The chat room is scheduled for anyone who wishes to discuss what it is like living with Kennedy's Disease or to learn more about Kennedy's Disease, Kennedy's Disease research and other topics of interest.

B. The Wives, Caregivers, Carriers andSignificant Others KDA Chat is held on the 2nd Saturday of each month at 11:00 a.m. Eastern (USA) Time. The chat normally lasts one hour.

The chat room is scheduled for the wives, caregivers, carriers and significant others. This chat format allows individuals to discuss anonymously everyday issues that they face supporting someone living with Kennedy's Disease. There will be no transcripts published.

C. Three Unhosted Public KDA Chats are held on the 3rd Saturday of each month. The chats normally last one hour.

1) Europe: 10:00 a.m. GMT (London).

2) North and South America: 10:30 a.m. Eastern Time (New York).

3) Pacific Rim: 10:00 a.m. Central Time (Darwin, Australia)

The chat room is open to anyone who wishes to discuss what it is like living with Kennedy's Disease. There will be no transcripts published.

Time Zone Help: If you need help converting the start time to your time zone click on this link: World Time Server.

to enter the chat room

The "click here" button above will take you to the KDA chat login/registration page. If you have not registered for this chat room you will need to "Create a new user account". If you are attempting to create a new user account and the pop up widow does not appear make sure to turn off your pop up blocker. If you are already registered you may continue to login.

Note: If you have a specific question or comment, you can use the Contact Us form on this website and the we will normally respond to your inquiry within 24 hours.. The KDA Discussion Forum is also an excellent tool for asking questions of others that are living with Kennedy's Disease.