Home About Kennedy's Disease Doctors Familiar with Kennedy's Disease

Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

Our Focus Remains on Research, Education and Support

The Kennedy’s Disease Association has worked to educate others about this lesser-known disease and to support clinical research efforts. We distributed information to more than 10,000 neurologists to help them recognize clinical signs and symptoms of Kennedy’s Disease.

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Will my child be born with this DNA defect?

It takes an enormous amount of money to fund research…more than any of us can afford alone, but together, we are capable of great accomplishments. We are searching for available foundation grants, but the process is lengthy. We need researchers to continue their work, and it is only the KDA that makes funding this disease a priority.

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Kennedy’s Disease Knows No Boundaries...

It is passed on from generation to generation in families worldwide. Males generally inherit the disease symptoms and females are the carriers. The defect is in the ‘X’ Chromosome that makes testosterone almost a poison to his body.

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What is Kennedy's Disease?

Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50. However, onset has also been reported as early as in the teens and as late as the 60s.

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Doctors Familiar with Kennedy's Disease PDF Print E-mail

 

The following doctors' names were given to us by individuals who have Kennedy's Disease (KD) that utilize their services. We have been told that these doctors have a familiarity with KD. They have also agreed to have their names and contact information posted on the KDA Web site.

While the Kennedy's Disease Association cannot recommend any one physician, we can make these names available by geographic location and give you the opportunity to decide if you would like to make contact with them. This list is not all encompassing. There are many doctors who are not on this list that treat KD and have knowledge of KD that we have not yet contacted and invited to be on this list.

If you have a doctor that you wish to recommend and have received permission to list him/her with the KDA, please send the information to This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

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UNITED STATES

ARIZONA | CALIFORNIA | FLORIDA | GEORGIA | ILLINOIS | INDIANA | IOWA | MAINE | MARYLAND | MASSACHUSETTS |
MISSOURI
| MINNESOTA | NORTH CAROLINA | OHIO | PENNSYLVANIA | TENNESSEE
| TEXAS | UTAH | WASHINGTON |

WISCONSIN |

OTHER COUNTRIES

UNITED KINGDOM | PHILIPPINES | SOUTH KOREA | SWEDEN | AUSTRALIA | SINGAPORE

 


ARIZONA

  • Peoria

Dr Steven R. Hempelman
Arizona Medical Clinic
13760 N 83rd Ave., Suite 101
Peoria, AZ 85381
Phone: 623-876-3940

  • Phoenix

Dr. Shafeeg Lahda

MDA Clinic-St. Joseph’s Hospital & Medical Center
Barrow Neurological Institute
500 West Thomas Road, Suite 300
Phoenix, AZ 85013
Phone: (602) 406-6274

  • Phoenix

K. Sivakumar, MD

Neuromuscular Research Center
10200 N. 92nd St., Ste. 101
Scottsdale, AZ 85258
(480) 314-1007 or
222 W. Thomas, Ste. 110-A
Phoenix, AZ 85013
Phone: (602) 406-6360

  • Phoenix

David S. Saperstein, M.D.
Phoenix Neurological Associates
1331 N 7th Street, Suite 350
Phoenix, AZ 85006
Phone: (602) 258-3354
FAX: (602) 258-3368
www.phoenixneurology.com

  • Phoenix

Dr Shi
St. Joseph's Hospital & Medical Center  
Barrow Neurological Institute
500 W. Thomas Rd.  Suite 720
Phoenix, AZ 85013
Phone: (602) 406-6262

  • Sun City

Andrew Gorman, M.D.
Arizona Neurological Center
Thunderbird Rd.
Sun City, Az.  85351

  • Tucson

Timothy M Miller, MD
University of Arizona Health Sciences Center
1501 N. Campbell Ave., Rm6208B
Tucson, AZ 85724
(520) 626-4147 Admin Office
(520) 874-2705 Clinical office (520) 694-8888 Appointment line
(520) 626-2111 Fax
This e-mail address is being protected from spambots. You need JavaScript enabled to view it
www.neuromuscular.arizona.edu

 


California

  • Palo Alto

Jonathan S. Katz, M.D.
Director, Neuromuscular Program
The Forbes Norris MDA/ALS Research Center - (California Pacific Medical Center)
2324 Sacramento Street, Suite 111
San Francisco, CA 94115
Telephone (415) 600-3604
Fax (415) 673-5184
Direct Line (415) 600-3982
e-mail: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

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  • San Diego

Albert La Spada, MD, PhD, FACMG

Telephone (858)-246-0148
Fax: (858)-246-0162
Email:  This e-mail address is being protected from spambots. You need JavaScript enabled to view it
University of California, San Diego
Professor of Pediatrics and Cellular & Molecular Medicine Division Head of Genetics
Department of Pediatrics
Skaggs School of Pharmacy, Room 42589500
Gilman Drive, MC 0642
La Jolla, CA 92093-0642

 


Florida

  • Sarasota

Daniel Stein, MD
Neurologist
1921 Waldemere Street, Suite 701
Sarasota, FL  34239
Phone: (941) 917-6222
Fax: (941) 487-2170

  • Jacksonville

Kevin Boylan, M.D
Department of Neurology - Mayo Clinic
4500 San Pablo Road
Jacksonville, FL  32224
Phone: (904) 953-0323
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  • St. Petersburg

Alan Weiss, MD
Neurologist
1099 Fifth Ave No., St Petersburg, FL  33705-1419
Phone: (727) 820-7701
Fax: (727) 820-7700

 


Georgia

  • Atlanta & Dalton

Linton Hopkins, M.D.
Emory University School of Medicine, Department of Neurology

- Also MDA clinic in Dalton

The Emory Clinic
95 Wakefield Drive
Atlanta, GA 30322
Phone: (404) 778-3452
Fax: (404) 778-2162

  • Atlanta & Dalton

John Sladky, M.D.     
Emory University School of Medicine, Department of Neurology

- Also MDA clinic in Dalton

1365 Clifton Rd NE 3rd Floor
Atlanta, GA 30322-1013
Phone: (404) 727-5756
Fax: (404) 778-3075

 


Illinois

  • Chicago

Robert Sufit, M.D.
Northwestern University Medical Center
Department of Neurology, Neuromuscular Disorders Program
675 N. St. Clair, #20-100
Chicago, IL  60611
Phone: (312) 695-5886
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  • Chicago

Teepu Siddique, M.D.
Northwestern University Medical Center
Department of Neurology, Neuromuscular Disorders Program
675 N. St.Clair, #20-100
Chicago, IL  60611
Phone: (312) 695-5886
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  • Chicago
Julie Rowin, MD
Associate Professor
Division of Neuromuscular Disease
Department of Neurology and Rehabilitation
University of Illinois Medical Center
1801 West Taylor Street,  Suite 4E
Chicago, IL 60612
Phone: (312) 996-4780
Fax: (312) 413-5780

  • Peoria

Richard H. Lee, M.D.
Suite 218, Proctor Professional Bldg. 1
5401 N Knoxville Ave.
Peoria, IL  61614
Phone: (309) 692-1016

 



 

Indiana

  • Indianapolis

David A. Josephson, M.D.
8402 Harcourt Road
Suite 615
Indianapolis, IN 46260
Phone: (317) 338-9191
http://www.neurologychannel.com/jwm

  • Indianapolis

Kristi K. George, M.D.
8402 Harcourt Road
Suite 615
Indianapolis, IN 46260
Phone: (317) 338-9191
http://www.neurologychannel.com/jwm

 



 

Iowa

  • Council Bluffs

Jonathan Moravek, M.D.
Neurology Dept., Methodist Physicians Clinic
One Edmundson Place
Council Bluffs, IA 51503
Phone: (712) 396-4050

 


Maine

  • Augusta

Anthony Pakiam, M.D.
Adult Neurology and Electromyography
56 Winthrop St.
Augusta, ME  04330
Phone: (207) 626-0481

 


Maryland

  • Baltimore

Neil C. Porter, M.D.
University of Maryland School of Medicine- Department of Neurology
Director of the MDA clinic at Maryland General Hospital in Baltimore 
22 S. Greene St.
Baltimore, MD 21201
Phone: (410) 328-3273
Fax:(410) 328-5899
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  • Baltimore

David R. Cornblath, M.D.
Johns Hopkins University
Johns Hopkins Hospital
Baltimore, MD 21287-6965
Phone: (410) 955-2229
Fax:  (410) 502-6727
This e-mail address is being protected from spambots. You need JavaScript enabled to view it

 



 

Massachusetts

  • Boston

Kenneth Gorson MD/SEM/CCHCS
St. Elizabeth's Medical Center of Boston    
736 Cambridge Street
Boston Ma 02135-2997
Phone: (617)789-2375
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  • Boston

Anthony Amato, M.D.
Vice-Chairman, Dept. of Neurology Brigham and Women’s Hospital
Division of Neuromuscular Medicine
75 Francis Street, Boston, MA 02115
Phone: (617) 732-8046

  • Boston

Dider Cross, M.D.
Neurology-Electromyography
Peripheral Nerve and Neuromuscular Diseases    
3 Hawthorne Place
Suite 12
Boston, MA  02114
Phone: (617) 720-0030
This e-mail address is being protected from spambots. You need JavaScript enabled to view it

 



 

Missouri

  • St. Louis

Alan Pestronk, M.D.
Director,Neuromuscular Division Department of Neurology
Washington University, School of Medicine
660 South Euclid Ave.
St. Louis, MO 63110
Phone: (314) 362-6981

 



Minnesota

  • Minneapolis

David Walk, M.D.
Assist. Professor Director, Neurology Clerkship Medical Director, Clinical Neurophysiology Laboratory - University of Minnesota
Clinic 1A, Phillips Wangensteen Building, 516 Delaware Street SE
Minneapolis, MN 55455
Phone: (800) 688-5252 Ext. 6-3004
Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

  • Minneapolis

William David, M.D.
825 So. 8th St., Suite 250
Minneapolis, MN 55404

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North Carolina

  • Chapel Hill

Nizar Chahin, MD
Department of Neurology
UNC Healthcare
101 Manning Drive
Chapel Hill, NC 27514
Clinical Appt:  919-966-4401


  • Charlotte

Elena Brawer, M.D.
ALS MDA Clinic
1010 Edgehill Road N
Charlotte, NC 28207
Phone: (704) 446-2775

  • Durham

Donald Saunders, M.D.
Duke Hospital    
Durham, NC
Phone: (919) 684-6078

 



 

Ohio

  • Lima

Douglas B. Karel, M.D.
Allen County Neurology
Private Practice658 Market Street
Lima, Ohio 45801
Phone: (410) 225-5100
Fax: (410) 225-5110
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  • Cincinnati

John Quinlan, M.D.
University of Cincinnati Medical Center & Chairman of MD Clinic - UC Medical Arts Bldg.,
222 Piedmont Ave., Suite 3200,
Cincinnati, OH 45219
Phone: (513) 475-8730

  • Cincinnati

Laura Sams, M.D.
Aring Neurology Center, University of Cincinnati
222 Piedmont Ave, #3200
Cincinnati, Ohio 45219
Phone: (513) 475-8730
Fax (513) 475-8033

  • Columbus

Jerry R. Mendell, M.D.
Professor and Chairman of Neurology
Director, Neuromuscular Disease Center
Ohio State University Medical Center
Department of Neurology - 4th Floor Means Hall
1654 Upham Drive
Columbus, OH 43210-1228
Phone: (614) 293-4962



 


Pennsylvania

  • Philadelphia

Enrica Arnaudo, M.D.
Thomas Jefferson University
1025 Walnut Street
Room 310
Philadelphia, PA  19107
Phone: (215) 955-7952
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  • Allentown

Terry Heiman-Patterson, M.D., PhD
Good Shepherd Rehabilitation Hospital & MDA/ALS Clinic
850 South 5th. St.
Allentown, PA 18103
Phone: (610) 776-3278

 



Tennessee

  • Memphis

J. Paul Taylor, M.D., Ph.D

St. Judes Children's Hospital
MS 343, D-4026
262 Danny Thomas Place
Memphis, TN 38105-3678
Phone:  (901)-595-6047

 

 


 

 

Texas

  • Houston

Dennis Mosier, M.D.
Methodist Neurological Institute
Scurlock Tower
Suite 802
6550 Fannin Street
Houston, TX 77030
This e-mail address is being protected from spambots. You need JavaScript enabled to view it

  • Houston

Milvia Y. Pleitez, M.D.
Director of Muscle and Nerve Pathology
Methodist Neurological Institute
Scurlock Tower
Suite 802
6550 Fannin Street
Houston, TX 77030
Phone: (713) 441-3335
Fax: (713) 790-2059

  • Houston

Erica Simpson, M.D.
Methodist Neurological Institute
Scurlock Tower
Suite 802
6550 Fannin Street
Houston, TX 77030
Phone:  (713) 441-3336

  • Dallas

Daragh Heitzman, M.D.
Texas Neurology, P.A.
6302 Gaston Ave
Suite 400 West Tower
Dallas, TX  75214

Phone:  (214) 827-3610 



 


Utah

  • Salt Lake City

Dr. David Renner, M.D.
University of Utah Medical Center
729 Arapeen Drive, Salt Lake City, Utah 84108
Phone: (801) 585-6387




 

Washington

  • Mount Vernon
Peter J. Struck, M.D. - Neurologist
1400 E. Kincaid Street
Mount Vernon, WA 98274-4127
Phone: (360) 428-2550 Fax (360) 428-6402
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  • Seattle

Div. of Medical Genetics (Medicine)
University of Washington
Medical Genetics Clinics
Seattle, WA 98195-7110
Phone: (206) 598-2138
Fax: (206) 598-6189  

Contact person for appointments/information:
Robin L. Bennett, MS, CGC
Genetic Counselor &  Manager
Phone: (206) 616-2135
Fax: (206) 616-2414

 



 

Wisconsin

  • Milwaukee

Wendy Larson Peltier, M.D.
Associate Professor,
Department of Neurology, Neuromuscular Program - Medical College of Wisconsin
8701 Watertown Plank Road
Milwaukee, WI 53226
Phone: (414) 805-9719

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United Kingdom

  • Nottingham

Adrian J. Wills, M.D.
Consultant Neurologist - Queen's Medical Centre, University Hospital NHS Trust
Neurology Department, D Floor, West Block,
Queen's Medical Centre, University Hospital NHS Trust,
Nottingham, NG7 2UH
Phone: (+44) (0) 115 709141

  • Harrow

Angela F Brady, M.D.
Medical & Community Genetics, North West London Hospitals NHS Trust
Kenndy-Galton Centre, Medical & Community Genetics, Level 8,
North West London Hospitals NHS Trust,Watford Road,
Harrow, HA1 3UJ.

  • Oxford

Kevin Talbot, M.D.
Clinical Neurology- John Radcliffe Hospital
Third Floor, West Wing
John Radcliffe Hospital
Headington
Oxford OX3 9DU
Phone: 01865 231 904
Secretary: Sandra Steeples
Phone: 01865 231 904
This e-mail address is being protected from spambots. You need JavaScript enabled to view it

 


 

Philippines

  • Manila
Raymond L. Rosales, M.D., Ph.D.

University of Santo Tomas Hospital
Sampaloc , Manila, Metro Manila
Tel No.: (632)7313001
Direct Line: (632)7126348

or:
Metropolitan Medical Center
1357 G. Masangkay Street, Tondo , Manila, Metro Manila
Tel No.: (632)2541111
Direct Line: (632)2547432


 


South Korea

  • Seoul

Jung-Joon Sung M.D., Ph.D.
Assistant Professor, Department of Neurology, Seoul National University Hospital
28 Yongon-Dong, Chongno-Gu, Seoul 110-744, Korea
Fax: +82-2-3672-7553
Phone: +82-2-2072-2237
E-mail: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

 



 

Sweden

  • Stockholm

Lars-Olov Ronnevi, M.D.
Head of Neurology,  Karolinska University Hospital
Stockholm, Sweden
Phone: +468-51775571
This e-mail address is being protected from spambots. You need JavaScript enabled to view it

 



 

Singapore

  • Singapore

Woon Chee Yee, M.D.
National Neuroscience Institute
Singapore

 This e-mail address is being protected from spambots. You need JavaScript enabled to view it
 

 



 

Australia

  • Sidney

Garth Nicholson, M.D.
Concord Hospital, University of Sidney
Sidney, Australia

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