Home About Kennedy's Disease Genetic Counseling/Inheritance

Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

Our Focus Remains on Research, Education and Support

The Kennedy’s Disease Association has worked to educate others about this lesser-known disease and to support clinical research efforts. We distributed information to more than 10,000 neurologists to help them recognize clinical signs and symptoms of Kennedy’s Disease.

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Will my child be born with this DNA defect?

It takes an enormous amount of money to fund research…more than any of us can afford alone, but together, we are capable of great accomplishments. We are searching for available foundation grants, but the process is lengthy. We need researchers to continue their work, and it is only the KDA that makes funding this disease a priority.

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Kennedy’s Disease Knows No Boundaries...

It is passed on from generation to generation in families worldwide. Males generally inherit the disease symptoms and females are the carriers. The defect is in the ‘X’ Chromosome that makes testosterone almost a poison to his body.

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What is Kennedy's Disease?

Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50. However, onset has also been reported as early as in the teens and as late as the 60s.

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Genetic Counseling/Inheritance PDF Print E-mail

deep-thoughtAre you wondering if your children are,
or will, be affected by this Disease?

If the mother is the only carrier of the defective gene, there is a 50 % chance of passing the affected gene on to male children (in which case they would develop symptoms in adulthood). The chance of passing the defective gene to female children is also 50% (in which case they would be carriers of the gene, but usually would not ever develop actual symptoms).

If the father is the only carrier of the defective gene the chances of passing the defective gene to a male child are 0%. However, it is 100% certain that the defective gene will be passed on to a female child, and she will be a carrier of the gene.

Note: Females are usually ONLY carriers with no symptoms.

However, it is not unheard of for females to develop symptoms as well,  although, these symptoms are usually not as severe as in males.

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