| Kennedy's Disease Chat Transcript 10-20-2007 Topics: Topic: Open Topic Host: Bruce Gaughran | ||||
|
BEGIN CHAT Bruce: Morning Eric Bruce: How are you today? MICH: Pretty good, how's the weather in Georgia? Bruce: Fall finally arrived yesterday and it is beautiful. Bruce: I just returned from walking my dog down by the lake (actually, he walks and I ride the golf cart). MICH: I want to thank you again for helping me a few years ago deal with delaying doing Medicare prescriptions since I have my wifes insurance. I forgot what kind of dog do you have? Bruce: How is work going? I think it would be interesting to have job at a planatarium. MICH: I've been working there for about 5 years now just in the morning... it becomes more and more as a physical challenge as does typing this info. Bruce: My dog's name is Fred. He is a beagle. He showed up on our porch four years ago and was about dead. MikeG entered the room. Bruce: Morning Mike MikeG: Hi Bruce Bruce: How are you today? MikeG: fair - we had a MDA fundraiser we attended last night - too much wine! MICH: How are things at Tropicana? MikeG: it was a art auction - we got a nice piece for a goos price. Bruce: Are you into art, or just helping the cause? MikeG: Tropicana? I haven't contracted there in quite some time. They're probably doing ok. MICH: Mike and Bruce, being a state away from each other, have you had a chance to meet? MikeG: just helping... Bruce: Did Terry send out a notice of the chat? I don't remember seeing one. norminstormin entered the room. MikeG: I thought he did - I'll check. Bruce: Morning Normin norminstormin: hello Bruce: Are you all set for winter? norminstormin: getting ready Bruce: It has been a few years since I was in Ontario. We used to have a paper mill up there. MikeG: actuall, I don't see the reminder for this one - Oct 6th is the last I see... MICH: Normin... are you very far from Detroit? norminstormin: where in ontario Bruce: Everything was sold last year to Domtar, however including the mill. Ed_M entered the room. Bruce: I just blanked. I had Prince Albert (another mill) on my mind and can't come up with the name. Bruce: Morning, Ed Ed_M: Good Morning, everyone MikeG: Hi Ed norminstormin: north of minnesota Bruce: I used to fish the Lake of the Woods region when I was young. We would canoe in for a week to ten days. A great place ... I miss those days. Bruce: Walleyes and Northerns for breakfast - lunch - and dinner almost every day. WOW! Was that living. norminstormin: thats nice i used to do that when i was younger too MICH: Normin... I'm bad at geography... are you far from Georgian Bay? norminstormin: north of thunder bay Bruce: People in the south don't know about Walleyes. I tell them they are missing a great game and eating fish. norminstormin: yes they are missing out MikeG: with my hands I couldn't even get a hook out now... Bruce: Well, what does someone want to chat about today? norminstormin: mine are getting like that now Bruce: Hands ... yes, those good ole hands that don't work well anytime, but really don't work when it is cold outside. MikeG: that's why I'm so far south... Bruce: Any temperature below 50 has them not performing well ... below 32 they are clubs that are not even functional. norminstormin: fingers lock up when i,m cold MikeG: upper 80s today. Bruce: I hate going to the bathroom after just coming inside on a cold day. The hands do not do what they are supposed to do. MikeG: 10-4 on that!!! MICH: Mike... you lucky dog at 80... if it gets super hot... does it affect you the same way as cold Bruce: Trying to write is difficult enough, but when the hands are cold I can hardly hold a pen let alone write anything legable. MikeG: one time I was sailing on the Frisco bay and had to use the john... barely got my fingers warm in enough time to unzip... Bruce: I know that feeling ... MikeG: no - hot is fine with me. The hotter, the better. Bruce: Panic in the streets or pants anyway MikeG: yep! Bruce: Ed, do you have another run scheduled soon? MikeG: same here - cursive is impossible now. Bruce: My neighbor has been preparing all this month for the New York Marathon. He is a running machine. TerryW entered the room. Ed_M: Bruce, the first race is tomorrow Bruce: Morning Terry TerryW: Hello all MikeG: hi Terry. TerryW: Sorry I am late Bruce: What distance? MikeG: did you send out a chat notice? MICH: Terry, is it cold in Cal today? Ed_M: It is the shortest one - just 10K - I am not sure if Sean will be running, as he is injured TerryW: I forgot, Dirst time in 6 years LOL Bruce: What happened to Sean? TerryW: first MikeG: //1 Ed_M: He has some ligament injury, pretty typical of bikers and runners TerryW: Ouch, hope he gets better Bruce: Yes, those 'hogs' can be tough on a guy. Ed_M: I have not heard from him in a couple weeks so I do not know how he is doing. fl-don entered the room. Bruce: Morning Don Ed_M: Essentially, it is an overuse injury MikeG: morning Don TerryW: Hi Don fl-don: hi all, trouble getting on again????? MikeG: you're lucky you wern't drinking wine last night... Bruce: My neighbor that runs marathons several times a year always seems to have some type of injury. TerryW: I had a strange error this morning also loggin in, Ut told me the first time that my account was not active Ed_M: Marathons are tough on the legs TerryW: I tried again and I got in MikeG: yep - running is really hard on the joints. fl-don: got in 2nd time TerryW: me 2 Bruce: It has been a long time since I had any sports injury. I actually miss those days. fl-don: looking 4ward 2 conference TerryW: I fot my 2 pups back last night from the Vet, I had the works done on them, Spayed, Neutered, dew claws removed and on small tumor removed, they are doing good Bruce: Yes, the conference is two weeks away. TerryW: got Bruce: Glad to hear it Terry. Have they calmed down any? TerryW: yes a bit Bruce: Good TerryW: they are now 50lbs Bruce: Don, are you going in early or staying late this year? fl-don: any news on the research front? MikeG: what kind of temps can we expect in Vegas? TerryW: We will be arriving sometime Mon afternoon fl-don: goint to vegas on nov 2 (fri) and staying a week Bruce: Nothing new from my side. Ed has reviewed a couple of research projects that are taking place by post-docs. fl-don: temp in poker room is 72 with no rain TerryW: It starts to get cool in Nov MikeG: 70s TerryW: windy possibly Ed_M: Not really, although there was an announcement that a British group was given the go ahead on a new treatment for Duchene's (sp) Muscular Dystrophy Bruce: Don, what kind of poker do you play? Hold-em? fl-don: hold em TerryW: <-----not a big gambler TerryW: Show me the buffet :) MikeG: craps for me! TerryW: Murray broke his foot again I hear Bruce: I enjoy watching the Hold-em tournaments on TV. The main event is one of my favorites. fl-don: staying out on the strip and taking the double decker buses to downtown MikeG: how'd he do that? TerryW: he fell and also hurt fom vertebrea Bruce: Ouch! How did that happen? MikeG: swimming too hard in his endless pool??? TerryW: slipped I think Bruce: Bummer! fl-don: i use a chair to prevent bone breaks MikeG: I've been real lucky here lately - no falls at all. MikeG: knock on wood! norminstormin: this past thursday too my knee buckled and i fell Bruce: Murray and I seem to hold the record for injuries the last few of years. FOruntately, I haven't had a spill in a long time now. TerryW: Within the last week I have fallen about 20 times, no breaks yet TerryW: on grass and dirt & gravel TerryW: no cement TerryW: been busy MICH: The U here in Utah has a doctor who just received a Noble Prize for being one of the 1st to do knock outs in DNA of mice to study disease... their lab is planning on researching MS to alzheimers... I trying to get my ALS/MND doctor to test my blood for number of neurons in the spinal cord... and maybe I show now try for other studies? TerryW: done now Bruce: I am a little concerned after my last break. I am very cautious and spend more time in the chair. I still exercise every day and believe that has really helped strengthen my quads. TerryW: All I have left is to split firewood but I am going to hire the neighbor kid to hand me the logs and I put them on the splitter and make the kindling Murf entered the room. Bruce: Mornig Murray Murf: morning all MikeG: Hi Murf TerryW: Hi murray Ed_M: Morning, Murray Bruce: I heard you had another fall. What happened? MikeG: how's the foot? Murf: I'd forget my head lately if it wasn't screwed on Murf: foot is ok the back hurts Bruce: Where did you fall? Murf: I fell in the bathroom again Murf: pulled a bruce but got lucky TerryW: Murray your wer'nt apping your fett in the stall were ya ? LOL TerryW: tapping Murf: I noe have the " I fell and I can't get up" button Bruce: Good to hear. I hate the bathroom ... bad memories. TerryW: kidding Murf: I hear that TerryW: one of those devices are food to have TerryW: good TerryW: my typing is terrible this morning Bruce: Ever since I bought the shower stool, my life has been a lot better. Murf: one for the wrist and one for the neck fl-don: are they meeting for dinner the day be4 conference this year? Bruce: Yup fl-don: where and when? Murf: Don - yes we havew tickets to the Tournament of Kings Bruce: Murray has arranged a fun evening. Murf: 8:30 TerryW: Don, did you get our e-mail announcment fl-don: probably, but dont bother to read stuff TerryW: Excalibur Knights dinner fl-don: mon? TerryW: yes Murf: we'll leave the hotel about 7:30 or so with the first load LOL TerryW: let murray know if you want to attend norminstormin has left the room. fl-don: k TerryW: he has the tickets Murf: I bought extra tickets so will have some extra Ed_M: Guys , I need to go - till next time. Ed_M has left the room. Murf: Is Norman ok Murf: where is everyone going? Bruce: He was fine this morning. He said he fell this week, but didn't hurt anything important. Murf: was it something i said? TerryW: I need to take a shower to be presentable for the board meeting Murf: good Murf: you need one terry LOL Bruce: We didn't hgave much of a turn-out today. TerryW: I forgot to send the reminder out TerryW: :( Murf: Just be for the conference attendance goes down TerryW: was so busy here Murf: I heard that Terry TerryW: I am taking a Mulligan on that MikeG: the t-shirt thing took up a lot of your time too. Murf: I finally got the dehumidifiers out of the house MikeG: thanks for helping. Murf: Flooded on Monday night TerryW: you are welcome Bruce: Mike, the t'shirt idea seems to be coming together. Thanks for running with it. fl-don: i cant find any e-mail re dinner on monday? TerryW: you guys did most of the work, thanks fl-don: could anyone resend? MikeG: it was my sister that did it all. Murf: only three rooms but cut the house in have for a week TerryW: Don I will send you the announcment Murf: I'll vote Ya on the T shirts GOOD JOB Mike fl-don: ty terry Bruce: I believe one of the topics we should have on a future chat should be something about dealing with winter. Murf: Don don't buy tickets online ... we got them cheaper fl-don: k MikeG: yes - move south! Bruce: I thought I had MICH: Do the taxi-vans for wheelchairs in Vegas also usually have lifts that could even lift a 350 pound power chair? Murf: Ya move south!! like the birds fl-don: is this one of the eat with your hands places? fl-don: taxi's in vegas have ramps Murf: Mick all cab co in Vegas have accessable taxis fl-don: minivans Murf: Don - yes!! Murf: and cheer for your knight! fl-don: had rrouble eating with hands here in or lando fl-don: more food on floor then in belly Bruce: You can ask for a fork or spoon fl-don: k Murf: yes ask for a fork Bruce: Or a straw fl-don: gotcha Murf: or a shovel Murf: My daughter says she is comming to look after me. I can't wait TerryW: Just sent it to you Don fl-don: ty TerryW: yw fl-don: ill buy u a beer in vegas terry Bruce: It looks like we will have a good turnout again this year at the conference. Nice job Murray. And, thanks to the rest of the planning team for their help. TerryW: ty Murf: thanks to the committee MikeG: yes - thank you! You guys did great! TerryW: I am going to go shower & eat before the meeting. See youall later MikeG: cya TerryW has left the room. fl-don: take care t Bruce: It is a lot of work and requires constant attention. Murf: me too see you guys in Vegas Bruce: Take care fl-don: bye m Murf has left the room. Bruce: We are getting down there pretty quick. It just shows we do need a good topic to keep everyone's attention. fl-don: we will b together in 2 weeks Bruce: Eric, you have been extra quiet today. What is happening up in Utah? MICH: Being Bruce and Mike and Don live in the South... do you guys ever get together inf Fla or Ga? MikeG: Bruce, have you heard anything about stem cell treatment in Costa Rica? fl-don: mike & i get together often. only live 1 mile apart Bruce: We have asked for one year updates from the two doctors we gave grants to this last year. The initial reports sound pretty promising. Bruce: No, Mike. MikeG: Don & I were together at a MDA fundraiser last night. MikeG: we live in he same community. fl-don: mike & i drink beer together. good medicine Bruce: Mike and I chat via emails and occasionally on the phone, but we are ten hours apart. MikeG: used to be 3 of us but John Mengel passed away in 2004. fl-don: miss john MikeG: me2 Bruce: John is someone that keeps coming up. I miss that guy. MikeG: everyone does! Bruce: He had a great attitude. fl-don: john did alot for the community re: computers MikeG: yep! MikeG: very positive! fl-don: good friend 2 Bruce: Eric, do you know of anyone in your area with KD? fl-don: gotta go guys, cya in 2 weeks fl-don: bye Bruce: Take care don MICH: I'm the sole KD person in Utah it seems... but see a person in Arizona when I go down there and a KDer from Conneticut stopped by on his way to Yellowstone this last summer (Bill & Jameson) fl-don has left the room. MikeG: cya Don Bruce: That was nice Bruce: We have developed a good community of friends throughout the northern hemisphere and some from around the world. MICH: We'll you guys have a good week... and if youre ever in Salt Lake or Phoenix let me know Bruce: Take care
END CHAT |
||||