| Kennedy's Disease Chat Transcript 4-07-2007 Topics: Topic: Open Forum Host: Terry Waite | ||||
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Chat Participants: BEGIN CHAT TerryW entered the room. craig_h entered the room. craig_h: morning Terry TerryW: Morning craig_h: how are you ? TerryW: I am doing good. rested TerryW: you? craig_h: that's good Michael17860 entered the room. TerryW: Hi Michael chumar entered the room. Michael17860: Hi all, How is everyone craig_h: we just went from 70-80 degree weather to 20-30 ........... throwing my system for a loop TerryW: Hello Chumar chumar: Morning all TerryW: Wow craig, we just warmed up here craig_h: hi michael ............. hi chumar TerryW: I hate the cold Michael17860: Its a cool 35 here today in PA Murf entered the room. robazbob entered the room. TerryW: Hey Murf Murf: Morning all TerryW: Hey Rob craig_h: howdy did your spring action milking stool work out? robazbob: good morning all chumar: Morn Murf chumar: Morn Rob Murf: morning chuck TerryW: Craig, it did not work, I needed something to sttill push off of to get up from the seated position TerryW: I sent it back craig_h: dang, was hoping it was a break thru development !!! Gary_KS entered the room. TerryW: I wish it would have worked TerryW: Hi Gary chumar: //23 brb billeric entered the room. Gary_KS: Good morning, all. Gary Uchiyama joined from Kansas City. TerryW: Yesterday we went to the local Hillside Iris Gardens and I forgot my walking stick and I had to crawl up steps to each level Gary_KS: Hi Terry. craig_h: oh fun Terry ........... but you got better guts than me, I wouldn't of tried that at all TerryW: Susanne stood by some of the steps to allow me to grab her shoulder to get up some billeric: Good morning guys. Wonderful Arizona morning. Michael17860: Terry you should invest in knee pads Ha Ha Murf: How can you forget a cane?? robazbob: sure is bill TerryW: I keep trying even though I may not be able to I still try TerryW: I was loaded with camera gear murf TerryW: too some great pics TerryW: took Murf: Thats what I've got a chair for ...LOL TerryW: the hillside gardens are not accessible Murf: Almost fully chair bound now TerryW: it is someones private property Michael17860: At least you keep trying Terry. never give that up...;. TerryW: they open it up for free Murf: don't fall TerryW: I fell a few times last week but I am still together Murf: I got sick of breaking bones TerryW: I fell under the horse again TerryW: He spooked and I thought i was a gonner billeric: These falls are miserable. Had one this week-no damage thankfully chumar: Terry, sounds like you get around alot PA-PAUL entered the room. craig_h: that article about the Curry thing was pretty wild, huh ? Butch entered the room. Murf: Jan I fell and broke my ankle and tore a tendon Michael17860: HI Paul PA-PAUL: hello ALL TerryW: I was taking his blanket off and the other horse let out a loud scream next to us and the horse I was unblanketing ran around inside its stall with its blanket fragging behind it while I layed on the ground, I thought i was going to get trampled Butch: Good morning all. Happy Easter. chumar: Hi Paul,Butch Murf: Ankle is healed somewhat and tendon is still sore TerryW: dragging TerryW: That is good Murf Murf: Falling hurts and I'd rather not do any more of it chumar: Gee what a way to go Murf: I will be oredering another chair which will made 3 PA-PAUL: I agree with Craig_h any more info on it???? Murf: make TerryW: the horse got free from its blanket right before it got back to me and it stopped just short of me Butch: Falling isn't good but it keeps us looking UP. LOL craig_h: yeah paul, I'd love to see more info about that billeric: Any updates on the NIH trials? TerryW: 3 chairs murf> TerryW: ? Murf: one for the office Murf: one for the house chumar: Nothing from Saskatoon yet TerryW: cool Murf: one for going for the mail doughboy entered the room. Murf: 3 sizes Murf: my exterra TerryW: bill, I am not in the NIH trial so I don't really know chumar: Murf i will have a Quad for you here craig_h: paul, maybe we are the onlt 2 that actually read it, laffs TerryW: hi TJ Murf: a Z-chair from Pride doughboy: hi yall chumar: Hi Murf: and I have not dicided on the third but will probably be an Invicare M41 or Pride Jet 3 Murf: Hey TJ doughboy: Murf, you dog, I was sleeping good till you called! LOL! Butch: You're extremely lucky to be able to have multiple chairs. Makes it a whole lot easier than trying to transport them all the time. TerryW: Just as long as it's not a Pride Jet Blue 3, You will never get out of it LOL robazbob: good morning bill I sold my 2006 mustang conv. wednesday night you wouldn't know anyone selling a caddy cheap in suncity would you? Murf: I'll go down in flames !!!??? LOL Butch: Hi TJ How are you? doughboy: Murf, I walked outside just now and it's cold and rainy, ugh! Murf: Here too TerryW: Murf, you have any influence in lowering those gas prices? Murf: 45 in Houston today doughboy: I'm alright Butch how about you! Murf: HA HA HA chumar: Grande Prairie,Canada is 32f Michael17860: great news on the ASC-J9 compound that DR. Chang is working on..... TerryW: I am glad I filled up the boat last year before winter 75 gallons doughboy: I'm 20 lbs. lighter now, did Murf tell you? Murf: Did you put fuel conditioner in? billeric: robazbob-I don't have any imediate contacts but the Daily news always has some interesting autos in it. TerryW: great news TJ, Slim fast? TerryW: yep murf Murf: good man!! doughboy: No nutri-system Butch: Good for you TJ. How did you do it? robazbob: bill, I have been looking at auto hunter and the az republic TerryW: also drained engine block for freeze protection Murf: Finally started to eat salads doughboy: Murf got me on it! doughboy: Bought me a new truck Thursday, did Murf tell you TerryW: what kind billeric: robazbob, you might try a wanted ad in the Daily news. craig_h: is down 30 pounds on Nutri/System now ...... but I need to get serious about it again doughboy: Chevrolet, the new body style Murf: billeric: or eBay TerryW: cool craig craig_h: Micheal, for sure, I was vert excited reading that craig_h: very TerryW: DOes anyone still do any work in the garden at all robazbob: that's a good idea bill i'll try it doughboy: I tell you, nutri system works because ther isn't much to the meals Murf: Did anyone hear that chevy was built in Europe now? chumar: I got a Gold Claim chumar: lol Murf: TerryW: yup with a telephone doughboy: Must be why the darn things are so high Murf TerryW: gold claim? TerryW: LOL Murf Murf: Chuck hows it going there? chumar: cold TerryW: I still do some weed pulling by sitting on my butt but then my hands give out after a short bit but I still try Murf: find the big one yet? doughboy: I feel so good I was thinking about going back to work! Nah, April fools TerryW: I scoot along on my butt chumar: Ya lol billeric: How do you get up Terry? Murf: doughboy: me too...about chevy chumar: I just need to get it out of the froizen ground Murf: TerryW: that will make un even rows TerryW: also I have found out that if you hold your neck looking down for too long you have a hard time lifting your head back up straight doughboy: My father in law has a 5 acre garden I get fresh veggies from him chumar: True jameson411 entered the room. jameson411: good morning everybody! chumar: Hi J Murf: I did that Terry and it scared the hell oput of me!!! TerryW: Bill I get up like a baby does Michael17860: I hope that they would start trials on ASC-J9 soon..... chumar: Ya my neck snaps like bone on bone Murf: Hey James billeric: What' that? Slowly? jameson411: hey Murf... doughboy: Talk about that Mike if you have any details, please! craig_h: Michael, didn't that notice say they are testing it on humans for something else right now ? TerryW: one one knee then but both arms stretched out on groud then the legs spread and then I can barely get up doughboy: Whats ASC-J9 Murf: I can't do that anymore robazbob: me either billeric: Me neither. TerryW: I still barely can craig_h: doughboy, it's that curry thing (I think) jameson411: i can relate to that Terry... i don't think it'll be long before im there chumar: I can;) Murf: I think I'm to top heavy doughboy: Whats that Craig TerryW: I have heard that the Curry thing makes KDers be able to move faster. You eat indian food and then we run for the bathroom LOL chumar: LOl billeric: If i don't have a stool to get my chest on to- I don't get up. Murf: LOL jameson411: I lol Butch: LOL Terry. craig_h: there was a letter that came out about it doughboy. Give me your email and I'll forward it to you Michael17860: I think that it stated that needed to test it in humans TerryW: That is a Joke from John Pinnett doughboy3128 entered the room. TerryW: he is a funny guy jameson411: yes.. only rats or mice for now doughboy has left the room. doughboy3128 has left the room. craig_h: guess doughboy got skeered doughboy entered the room. Butch: I always move fast when it comes to the bathroom....Don';t want to take any chances. TerryW: wow how dit TJ do that TerryW: Magic jameson411: you want to hear someone funny? Brian Regan...... funniest i've ever heard Murf: I think he hit the wrong button TerryW: I will have to look him up on Youtube chumar: I make $100 bets on Proline here that gets a persons adrenalin going!!1 Murf: welcome back TJ doughboy: ty doughboy: don't know what I did Murf: took a trip and didn't leave the farm chumar: You forget about any pain you might have had before the bet Butch: Where did you go? craig_h: doughboy, need me to forward you that email ? PA-PAUL: that testing NOT ON HUMANS seems like a crock... It is a natural compond right already approved by FDA why has it not been tested on humans Murf: lol Michael17860: Your are right Craig they did state that it was being tested for a different disease.....cancer? doughboy: Please Craig jameson411: uranium is a natural compound jameson411: i won't eat that craig_h: what's your email doughboy? doughboy: ttjn1006@aol.com chumar: So is Platinum for Cancer Murf: that makes your poop glow PA-PAUL: its nbot approved by the FDA chumar: Heavy too Murf: lol doughboy: Leave it to Canadians to know about glowing poop! LOL Murf: lol craig_h: on it's way PA-PAUL: i am not trying to joke here I am disapointed something that may be helpful is just sitting there doughboy: Thank you, Craig Butch: I have been having trouble with tendonitis. Had an operation last year. Reinjured my right shoulder. Of course all KD'ers have trouble getting out of a chair. But, with sore shoulders it is even worse. craig_h: Micheal, it said it's in a creme for Acne right now Murf: where do you think the stuff for all our nukes come from TJ? TerryW: Anyone have a favorite TV show TerryW: I like House TerryW: he craxks me up chumar: NHL Michael17860: Paul you are right! No money going into someones hand .....FDA????? jameson411: Paul, its the idea of "do more good than harm" for medicine. doughboy: Mine is American idol and Suvivor, Terry robazbob: terry house bones all the csi's Murf: Paul whats up? TerryW: SAnjaya must go! jameson411: they need to make sure that the side effects are not worse that the cure doughboy: yep chumar: Baseball Murf: Terry stay on your feet doughboy: golf robazbob: for sure howard stern is not helping that fact billeric: me too, doughboy Michael17860: Yes, That is one of the uses Craig. TerryW: I heard that rob PA-PAUL: what sde effewcts like too many hot peppers your asshole burns jameson411: lol chumar: LOl doughboy: yeah It's been 2 years since I had 2 stop playing craig_h: paul, eat ice cream afterwards jameson411: who knows, thats why they have to test it.. robazbob: sanjaya is mentioned on every talk show and there is a website to help him stay PA-PAUL has left the room. chumar: I have been watching for 39 years TerryW: really Michael17860: Terry you can thank howard stearn................... billeric: Not my favorite razorbob Butch: TJ--If you stopped playing does that mean you are getting serious. I'll have to warn Tiger. TerryW: I don't hear Stern since he went to sattalite doughboy: Hey PA, Jamerson is right you never know what side effects it may have on you or with medicine your currently on! TerryW: Sattelite jameson411: the bummer part about chat rooms is its hard to communicate tone.... jameson411: PA left. doughboy: Ha! HA! jameson411: hope he wasn't upset mobiusloop entered the room. TerryW: hi jameson411: hey mobiusloop jameson411: are you a math person? kellyC_ entered the room. Murf: Morning mobiusloop: Hi, everyone jameson411: Hi kelly TerryW: hi Kelly chumar: I'm not and i havn't got a reply yet. LOL kellyC_: good morning chumar: Hi Kelly Butch: Good to see so many here on a holiday weekend. Michael17860: I heard that after the idol is over, He will be touring with Michael Jackson. (sanjaya) chumar: LOL Butch: LOL doughboy: Murf, are your parents still staying with you? robazbob: very fitting michael craig_h: hiya Butch, when do you return to Bethesda? billeric has left the room. Butch: June 7th. mobiusloop: Boy, I have a tough time getting up this early TerryW: early, ?\ kellyC_: gosh i slept in myself lol Butch: How about you Craig? billeric entered the room. mobiusloop: No math here TerryW: where are you craig_h: wow, would of thought we would of overlapped this time. I'm like May 27 & 28 jameson411: interesting name... TerryW: I am in Calif Murf: They just got here last night and will leave Tuesday morning to migrate bak north chumar: I drove my wife to work at 6:30 am Murf: back chumar: Where Murf chumar: ? Murf: Winterpeg johnweeb entered the room. jameson411: ya, well i'm at work by 6:30 myself ;-) TerryW: Does anyone have any issues driving and using the brakes mobiusloop: I get my best sleep from 6 to 8 am chumar: Oh i used to live there in Manitoba TerryW: tired on long drives? jameson411: not yet, but i'm a kd noobie doughboy: Horses got out on the road this AM, father in law and I were on the road at 3AM getting them back in, took us over an hour! TerryW: holding up body sitting for long periods kellyC_: thats a good question terry! at times i have that problem etc.. Michael17860: I have a hard time holding in the clutch at red lights.... Murf: I just rear ended a car last week jameson411: doh Butch: Hardest part of driving is paying for the gas. LOL doughboy: Terry, my legs get really tired driving very much TerryW: I get tired on mountain driving because you are always vompensating for the curves with your upper body muscles, really wears you out mobiusloop: Travel is getting tugh for me too TerryW: compensating Murf: I broke my rule not to drive in heavy rush hour traffic craig_h: after 2 years of no car payments, I got the "fever"............. sigh, got a payment again doughboy: I second that Butch, kellyC_: lol chumar: There goes my idea of a standard robazbob: me too, in Oct i drove 3000 miles to N.H.--glad I did it but not going to again (can't) TerryW: sometimes I cant get the gas cap off myself TerryW: anyone else jameson411: cash only for me chumar: Hard time opening the doors coak entered the room. Butch: Always a strugle Terry. jameson411: I'm going to NH today to visit family TerryW: hi John craig_h: if I'd of paid cash, I'd have a 1976 AMC Pacer doughboy: Hey did all of you all hear that Murf just wrecked his new Lexus? He rear ended a lady! LOL! coak: Hi all! jameson411: lol billeric: Oh, bur you should try a van-robazbob! Murf has left the room. TerryW: Murf? jameson411: hi coak TerryW: TJ you scared him off Butch: Not funny TJ. chumar: Hi Coak billeric: I carry a small crescent wrench-just in case Terry TerryW: did that really happen? doughboy: No I'm serious he did chumar: For the window robazbob: that's a good idea bill, I think a plane will be the best answer TerryW: Injurys? Murf entered the room. chumar: Hi Murf coak: You OK? chumar: LOl TerryW: Injuries? Murf: Just got punted doughboy: No chumar: Oilers fan coak: TJ is tattle-taleing you, Murf jameson411: i'm taking a family vaca... driving a rented RV through Yellow Stone! Murf: How can save the chat as I will not be able too? TerryW: I will save it Murf: who johnweeb: Hey guys, I just got hit by my neurologist. I'm in the early Murf: Thanks terry mobiusloop: Flying is he only way, they pick you up at the curb and wheel you through the to the gate TerryW: John, I thought you could not get in doughboy: Thanks, John TerryW: Welcome Murf: First time that happened in a long time coak: IIh, but no time (again) chumar: John what was that? coak: IN doughboy: Murray while you got punted, I told the guys you wrecked your Lexus they think I'm kidding johnweeb: My note continues - I'm in the early stages of Parkinson's. Or, do the symptoms mimic Kennedy's? Murf: nope I put a dint in it chumar: Murf had a Lexus? WOW coak: No log-in problems, only time problems (& spelllen ones) TerryW: I am not sure of that John Butch: Just so no one was hurt. Right Murf? doughboy: 2 months old Murf: no thank GOD craig_h: johnweeb, I'm not sure at all Murf: $16000 damage TerryW: John, that may be a good question at one of the upcoming doctor/researcher chats chumar: Lol Murf: good insurance chumar: For a Dent?/ Butch: WOW--you must have dented thew ashtray. LOL coak: Johnweeb -- drop me a line & I'll get back with you early next week to discuss Murf: not the green brit TerryW: ty john kellyC_: Basically i would say so john-weeb coak: coakleysr@earthlink.net mobiusloop: Does anyone have tingling feet? That is a symptom that is getting worse for me coak: Butch -- Any snow now that Easter is here? chumar: Mo, Yes and fingers TerryW: Mobi, my toes are always tingling or just plain old Numb johnweeb: Terry, ignore the note we sent to you via e-mail regarding difficulty getting in. We got it to work by tinkering with the password. Glad that Java download wasn't the problem because the computer didn't want to take it. kellyC_: tingling feet and finger's yup at times i have that to mobius Murf: mobiusloop: walk sit move around. thats what I have to do to get ride of that doughboy: Well I gotta leave now guys, dealership has to put my running boards on my new truck this morning, I'll call you later Murf. Everyone take care and be safe! TerryW: ok Johnweeb TerryW: bye TJ Butch: No thank God. We have an egg hunt today. Don't want to hide the eggs in the snow. doughboy has left the room. chumar: Bye D mobiusloop: My back is such a mess that I am not sure what is causing it chumar: Too much sex, does it for me Murf: John you got snow too? kellyC_: lol Butch: So long TJ. Stay safe. coak: jameson -- your vacation sounds great! Murf: Chuck lier...lier... Murf: lol chumar: LOL mobiusloop: It helps to know if others are having the same problem craig_h: y'all take care..................she ya next time coak: No snow here -- called for 4" last night -- it went south craig_h: see johnweeb: Do any of you know about head drop or significant weakness in the neck making it difficult to hold the head up? Murf: got snow in Dallas last night but none got to here...yet chumar: Bad las year but good now chumar: last craig_h has left the room. mobiusloop: No , just leg and arm weakness robazbob has left the room. johnweeb: Coak - Is this your correct e-mail address? coakleys@earthlink.net? coak: Glad to hear from you 2 today. Sold the house & moving in mid-july TerryW: John yes I get that when I do tasks where I look down for long periods Butch: John....head drop only because of so many brains, Right? chumar: Moving? Not Canada i hope Gary_KS has left the room. TerryW: If you read a lot TerryW: or do a tsk that keeps your head in the down position Murf: Ron thats that top heavy thing TerryW: the neck becomes weak Gary_KS entered the room. chumar: Hi Gary kellyC_: I have alot of neck spasms to TerryW: welcome back Gary kellyC_: and weakness there as well!! Gary_KS: I was kicked out but I could back. Butch: Not my problem Murf. Not too top heavy. chumar: Cold weather Kelly? coak: I loke Canada - but, no. To a 55+ place in Taneytown, MD; about 20 minutes away drom where I am now. mobiusloop: Muscle cramps in neck kellyC_: Actually it starting to warm up here in PA now coak: like coak: bad fingers today chumar: Still cool here in GP Murf: fingers must be cold just thinking about it TerryW: Nice here in Calif kellyC_: Muscle spasms... yes i get those alot in my neck... Michael17860: Kelly where in PA. kellyC_: terry ur lucky lol coak: In MD we had 75 at Christmas -- It'll be 25 toinight kellyC_: I'll trade ya lol places chumar: Kelly How about snapping in neck? kellyC_: prince albert sask canada coak: Where is GP? jameson411: i hate neck cramps... TerryW: Snapping in neck only occurs in Mafia patients jameson411: especially when i'm teaching chumar: Grande Prairie, AB Canada jameson411: lol mobiusloop: What? Murf: 600 miles north of Edmonton TerryW: Joke kellyC_: LOL chumar: Km s Murf johnweeb: Hmm, interesting. We really want to pursue looking into comparisons between Parkinson's and Kennedy's. The doctor has me on some mild meds to see if it will help. The meds havn't helped. So now, with the difficulty holding up my head, my muscles - back and neck- get sore. mobiusloop: Sorry don't have HBO Murf: about 1000 mile north of the boarder Murf: Right kms Murf: lol TerryW: John do you keep your head in the down and forward position much like reading coak: thks. I'll have to get the Atlas. chumar: Closest thing to Kennedy's is Huntingtons billeric: Got to go guys. Thanks for the chat. Stay upright. chumar: Murf Who will win Stanleys Cup? billeric has left the room. johnweeb: I can't hold my head up now without support. Have to wear a collar part of the day. It started in December. Murf: I'll send a map to you later, my daughyter lives there Murf: daughter TerryW: hmmmm chumar: Oh yea Murf: what cup? Murf: lol coak: Huntingtons is close in the biological arena, but different in how it manifests chumar: Whats her last name? Murf: another american teamm Murf: lol Murf: not funny chumar: lol NYR is mine Murf: Sacha Murf: know her? chumar: First Or last Murf: Sach Fawn Murf: first & second chumar: Not yet LOL Murf: good! chumar: I'm Married Murf: lol kellyC_: well got to go everyone.... you all take care and we'll se ya next chat session!..... Murf: really good then chumar: Bye coak: All -- Have to go now. Best to you all chumar: Kelly kellyC_: bye chuck! coak: Bye kellyC_: yes chuck chumar: Bye Butch: Must go for now. Here is hoping that you all stay safe and healthy till next we chat. Bye!! Murf: was it something i said? chumar: lol coak has left the room. Murf: lol TerryW: see ya chumar: You too Butch has left the room. kellyC_ has left the room. johnweeb: Bye. Thanks Terry TerryW: yw Murf: did someone ring a bell or something? TerryW: nope jameson411: pavlovs calling mobiusloop: Yes, thanks Terry. chumar: Got to go shopping for mining equipment. when i go a don't want to be under a roof chumar: See ya's all Murf: Take can Chuck Murf: care chumar: You's too soon TerryW: I am about alll typed out chumar has left the room. mobiusloop has left the room.
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