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The mission of the Kennedy's Disease Association is to:
WARNING Anesthesia & Surgery for KD individuals
Kennedy's Disease Association, Inc., Established in August 2000. |
| The hosting of this website is being donated to the KDA by Chicago Web Design - Thank you Aaron Wittersheim |
| NEWS | |
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9/1/08
KDA E-Xpress Archives -
Current & Previous editions of the KDA E-Xpress
Newsletter are now Online.
Click Here to go
to the page.
2008 Helping Neighbors Fundraiser launched (please read) Click Here to find out more. 8/27/08Use Goodsearch to search the web and raise funds for the KDA. Click Here to read more. 8/13/08
The 2008 Kennedy's Disease Association Conference is scheduled for November 19-21, 2008 at the BWI Airport Marriot Hotel, Baltimore MD. CLICK HERE to go to the conference's page for detailed info. 7/22/08 Take a look at the new KDA Calendar. The green button to the left will take you there to see current and upcoming events with links on the calendar to take you to more information. 5/13/08 The KDA has a new chat room. If you use chat you will need to re-register in order to use the new room. Click Here to go to the chat schedule page and look for the ENTER CHAT button to register. 4/11/08 2008 Research Grants Application Click Here to go to the page 4/5/08 Don't forget to check what's new on the website by clicking on the link above the Google search box at the top of this page. 3/5/08 A list of KD Associates & Doctors/Researchers has been added. Click Here 2/22/08The 2007 KDA Annual Report is available for viewing. Please Click Here to open the Adobe PDF file. 1/17/08 The Kennedy's Disease Association is committed to promoting medical research to find a treatment and possibly a cure for Kennedy's Disease. Thanks to the generous donations of so many this past year, the KDA’s board of directors has approved the funding of $50,000 in research grants. Applications were accepted through September of 2007. The Scientific Review Board with the assistance of other researchers reviewed the proposals and recommended the finalists Click Here to read more about the grants 1/15/08 The KDA has added a 2nd option for making Secure credit card donations to the KDA. "Google Checkout" is a new way for non-profit corporations to accept donations. During year 2008 there is no processing fee for transactions so the KDA gets 100% of all monies donated. Click on the Blue "Donate to the KDA" button to the left or Click Here to see the new Google checkout option. Help the KDA by shopping through our Web site. Click on the Green button to the left and take a look! KDA Printable Brochure 12/15/07 The KDA e-Xpress Winter newsletter is now online and available for download. Please click here to go to the page for downloading.The 2007 KDA Conference Hi-Lites web page with pictures is now available for viewing. Please click here to go to the page. Current Fundraising Challenges Ed Meyertholen and Sean Blasko are participating in the Runtex Distance challenge, a series of seven races starting in September 2007 and culminating in February 2008 with the Austin Marathon. Total distance covered will be 87 miles! Click here to read more and support this fundraising event. Mike and Paula Goynes have been walking & rolling for severl months now and plan to continue doing so indefinitely. Someday Mike hopes to be able to once again walk with Paula but, for now, I will keep rolling beside her in my power chair or golf cart. She is walking between 10,000 and 20,000 steps a day! Click here to read more and support this fundraising event. Personal Stories 1 New 1 Updated We have 1 new personal story (Roger Stoufer) and 1 updated story (Ted Abbott) Click Here to read them. 10/5/07Recycle your old Cell Phone and help the KDA. Click Here to find out how. 07/24/-07We have added a KDA Research Grants / Awards page to the web site. There you can view previous grants that the KDA has awarded. If you are a research lab you can also get information on applying for a research grant. The KDA has also added a detailed KD Questions & Answers PDF file to the web site 05/24/07 Where does the money go A report on where money the KDA receives goes. Click Here 05/19/07 KD Smart Exercise Guide The KD Smart Exercise Guide has been updated with a few new exercises that you can try. Click Here to go to the exercise page. 04/05/07 KDA e-Xpress Newsletter The Spring 2007 KDA e-Xpress newsletter is available for reading Click Here to read it. 03/20/07
KDA Funded
Research Update
Chawnshang Chang, Ph.D. and a team of researchers at the University of Rochester Medical Center have published the attached news release concerning their research that could potentially lead to a treatment for Kennedy's Disease. The article was published in the March 6 issue of the journal Nature Medicine. Read more here
Thanks to the
generous support of our associates, Dr. Chang
received a $25,000 research grant from the
Kennedy's Disease Association last fall.
02/22/07
The Kennedy's Disease Annual Report has been added
to the site.
Click Here to read the report. (Adobe Reader
Required)
Memorial Page Note If you have a loved one with Kennedy's Disease who has passed away and would like to have them added to the memorial page e-mail us at info@kennedysdisease.org with the information and a picture. If you do not have a picture on your computer to send via e-mail you can mail it to us via regular US mail at the address at the top of this page and we can scan it and return the original to you. If you have not updated your e-mail address with the KDA in a while or have a new internet provider please e-mail us at the below address info@kennedysdisease.org and let us know your new e-mail address so you can get updates from the KDA.
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